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finished 3 x BEP

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  • finished 3 x BEP

    Hi all,
    I had my last of 3 rounds of BEP with last bleo push last wed.
    Onco ordered CTs and markers thu. followed by a phone call today . maybe i am a little pesamistic but my AFP went from 6 after 2 rounds to 7 after 3. HCG gone from 2 to 2.5 , i have not seen the CT results but she said there was a 2cm (the pre chemo scan read 3 x 2 !) node which has shrunk to 1.1 cm.
    I said i was concerned about the AFP and the node being over 1 cm , her reply was not to worry about the marker and the node we will keep an eye on, and overall she is very pleased with this result ,go and celabrate you are in remission and i will see you in 8 weeks with markers and chest x ray!

    I thought she may want to check markers earlier than this and no mention of CT scan ( I recall her saying earlier ct every3 months ) as they (markers and node ) are right on the limit ?
    In saying this she is very approachable and said any Q.s or anything you want to know just call.
    I think this 8 weeks is going to take forever or should i listen to her and not worry about it and keep celabrating (flushing the kidneys )
    Cheers swan
    I/O Feb.06
    90% embryonal carcinoma/10% teratoma
    lymphatic invasion
    3 x 2.2 cm lymph node abdomen
    3x BEP started March 06
    currently on surveillance

  • #2
    after I finished my 3xBEP last month, my surveillance called for monthly chest xray and blood...and every 3 months a CT scan...for year 1...and then it goes down after that for the next 4 years...

    all my labs and CT scans were clear after chemo...a tiny spot where the node was but doc said it was nothing...

    I recall reading lance armstrongs book and after his chemo he waited quite a while (months) till all markers and visible signs were it seems these markers can continue to drop over time...

    on the nervous part...whatever is going to happen, good or bad, will no point in worrying about it...just enjoy yourself, eat good foods...but don't stress, that's worse than anything....after seeing some of the terminally ill children, my perspective on my situation changed entirely.
    - lump first noticed 11/20/2005
    - I/O right Dec 8, 2005
    - 95% embryonal / 5% seminoma
    - normal markers PRE surgery
    - no vascular invasion, tunica free of cancer, epididymis free of cancer, lungs free, lymph free
    - Stage I diagnosis
    - surveillance
    - mid feb '06, beta hcg slightly elevated = 4.6...small enlarged lower node seen on CT scan...
    - 3BEP began feb 20, 2006
    - finished 3 BEP, last bleo, april 17, 2006
    - CT scan, blood markers, chest..all clear
    - back on surveillance


    • #3

      I was told by my oncologist that he has patients that have been in remission for 10+ years, and have continuous AFP levels of 12. Therefore, you may be one of those people who have a slightly higher background level.

      What with your low bHCG, seems like you have nothing to worry about. I know that's easily said, because I worry the same about my numbers.

      Enjoy remission......Davie
      Diagnosed March 2006, Stage IIB, 3cm RP mass
      10% Seminoma, 90% Non-Seminoma (Embryonal, and a tiny amount of choriocarcinoma and teratoma)
      Prechemo bHCG-2648, AFP-582
      3xBEP March-June, markers normalised
      3 months postchemo - 1.2cm residual RP mass
      RPLND September 2006 - mostly necrotic tissue plus tiny amount of well differentiated teratoma
      June 2009 - TRT commenced to help out my lefty
      May 2011 - check-up, all clear


      • #4
        My AFP before chemo was 2.1 , 2.2. After chemo, within 1 year of surveillance, it is oscillating between 3.2 and 5.8. The latest result is 5.2
        Stage III EC 85% + Sem 15%
        AFP=2.6; HCG=10, 20,28 and rising
        FULL CAT scan:
        -abdominal lymph clear
        -subpleural lungs metastasis [bipulmonary lesions with diam <= 1cm]
        4 x BEP changed to 3 x BEP at my request
        from 2005-05....Surveillance