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  • Quick update. Good news

    Well so far so good. I am keeping my chin up as I am a lucky one. So far after 3 CAT scans and x-rays nothing to worry about, all clear. I do have some other issues though, and would love to here your thoughts.
    First I found out that I have internal hemeriods, and wounder if that has any effect of the cancer.
    Also, my wife and I lost the pregnancy we had. It wasn't developing correctly and was just 7 weeks into it. I have had a recent sperm analisis and they were going to freeze any good ones found. Unfortunatly, they were unable to find any to freeze. That has really gotten me down. Any thoughts on that subject? Everything else is good, so I am really lucky, but wanted to have kids of my own some day.

    Thanks for your kind thoughts and words in advance.
    Oct 2005
    Stage I Non-Seminoma
    teratoma, immature teratoma, yolk sac, and embryonal carcinomal
    Diagnosed 10/26/05
    Rt Orch 10/27/05
    -------------------------
    Sept 2006
    Stage I Seminoma
    Lt Orch 11/14/06
    -------------------------
    Jan 2007
    RPLND
    73 Lymph Nodes - ALL CLEAR!
    [email protected]

  • #2
    hey man, I would keep on it and definitely try again to see if they can freeze some. what is your testosterone level? after the Right I/O, I had almost 0 testosterone and it has been fluctuating up and down ever since. if you get into taking readings, make sure you note at what point during the day they take the blood because the testosterone level will vary at different points in the day. I think it usually highest in the morning and then tapers off.

    my oncologist told me that everyone that develops TC has TWO abnormal testicles since birth, regardless of whether both develop TC or not. my advice is to keep trying and hopefully something good will happen. don't give up.
    Age 33, Right I/O Mar '05, 90% embryonal, 10% teratocarcinoma, Surv until 4 mo CT (+), 3 x BEP Aug/Sep '05, CT 10/05 ok, CT 2/06 ok, CT 3/06 ok, CT 6/06 ok, X-Ray, Blood 8/06 ok, Sperm Count 09/06: Low but active, CT 10/06 ok, X-ray 12/06 ok, CT 02/07 ok, X-ray/blood 4/07 ok, CT 6/07 ok, X-ray/blood 09/07, CT 10/07 ok, CT 4/08 ok, CT 10/08 ok

    LAST NIGHT I DREAMT 1000 LIES
    I CAN SEE THE DAWN
    THROUGH A DIFFERENT SET OF EYES

    Comment


    • #3
      Originally posted by Apache
      my oncologist told me that everyone that develops TC has TWO abnormal testicles since birth, regardless of whether both develop TC or not.
      I don't buy it.
      Scott
      right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

      Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

      Comment


      • #4
        Scott

        I am afraid that apache is not totally wrong. I have read a similar quote on the net a few months ago. It was saying that if someone born with an undescended testis he can develop TC in both, not necessarily the undescended one. I still believe that i have only 1 or 2% chances to have a problem with lefty
        Eric

        Stage 1 seminoma in august 2001
        with invaded spermatic chord and treated with RT
        Relapse november 2005, 4 BEP and now back to surveillance

        Comment


        • #5
          I never heard that one either.. Is that saying that we all have very high chances for reoccurence???
          Moffitt Cancer Institute
          CANCER SUCKS
          Diagnosed/Left I/O 9/18/2004--Non-Seminoma/Stage IIIC--3X B.E.P chemo--3X T.I.P. Salvage chemo---Abdominal [email protected] 34cmX 24.5cmX 17.5cm---4/19/2005 --RPLND/Left Kidney,8 1/2lb Abdominal tumor,42 nodes removed---7/16/2005 Remission/Surveillance---Severe Peripheral Neuropathy--

          Comment


          • #6
            Originally posted by Don
            I never heard that one either.. Is that saying that we all have very high chances for reoccurence???
            It is true that if you've had cancer in one testicle, your odds of having it in the other are higher than the general population's. However, that's still uncommon. It only happens to 3 or 4 out of 100.
            Scott
            right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

            Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

            Comment


            • #7
              My understanding is that tc patients are twice as likely as the general population to get tc in the remaining testicle. That still makes gives you only a 3% chance of getting it again.
              Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

              Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

              Comment


              • #8
                My onco has always talked to me about 1%
                Since i come to this site i see numbers like 4% sometime.
                Eric

                Stage 1 seminoma in august 2001
                with invaded spermatic chord and treated with RT
                Relapse november 2005, 4 BEP and now back to surveillance

                Comment


                • #9
                  Lower back pain

                  Hello again.

                  I must say that there are some of the best people I have ever talked to in these forums. Its an honor to be part of this club.

                  And now for further information wanted. I seem to have a bit of lower back pain on the right hand side. During one of my original posts, they told me that in a CT scan they showed "prominent mesenteric lymph nodes in right lower quadrant" and never have I noticed those words scense then. I have had multiple CT scans as well. I am at work and don't remember looking for the same diag before and it just came to me. Is there anyway they can be related? Also I just had blood work done for testostorone levels do to infertility issues. I hope I am not just being to much of a whimp here. Thanks for your thoughts.

                  forgot to ad,I do notice at times when I take a nap to wake up very sweaty. Has happened at night, but mostly just naps.
                  Oct 2005
                  Stage I Non-Seminoma
                  teratoma, immature teratoma, yolk sac, and embryonal carcinomal
                  Diagnosed 10/26/05
                  Rt Orch 10/27/05
                  -------------------------
                  Sept 2006
                  Stage I Seminoma
                  Lt Orch 11/14/06
                  -------------------------
                  Jan 2007
                  RPLND
                  73 Lymph Nodes - ALL CLEAR!
                  [email protected]

                  Comment


                  • #10
                    Lots of things can cause back pain, but it's best to give your oncologist a call and ask him about it.
                    Scott
                    right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

                    Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

                    Comment

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