Announcement

Collapse
No announcement yet.

My upcoming stem cell transplant

Collapse
X
Collapse
 
  • Page of 2
  • Filter
  • Time
  • Show
Clear All
new posts
Previous 1 2 template Next
  • #1

    My upcoming stem cell transplant

    Well, I had my consulation at Jewish in Cincinnatti. I have a tumor wrapped around my spinal cord T5 area causing numbmess in my hands/legs. Its not going into the cord (thank god) just pressing against it! I was treated with 4 x EP finishing up in february, AFP normal until about 6 weeks later it went to 22. Did five days of (in patient)chemo last week to relieve the pain in my back (Ifosfamide, one day of cisplatin, one day of vinblastine) No big deal. Radiation I will continue..no surgery they said it works really well againts the type/location of the tumor. I will have tandem stem cell transplant eventually, which isn't as horrible as the process use to be. This is the only tumor ever found during my entire TC experience. Only concern is about me is that my AFP 6 weeks after chemo. . they are thinking cisplatin refractory which worries me too, but high dose of etoposide/carbo platin is standard. I kinda wonder about the spot on my spine being there for quite some time though, maybe the whole reason for this "recurrence"

    My police department just held a benefit all weekend and have many more benefits planned. I'm really impressed how well I'm liked after only being on the department for 7 months!! Well i'm weak bad. .i think this radiation is doing it although its a painless process to go through!!!!!!!!
    Diagnosed August 2005
    R/O August 2005 AFP 210

    4xEP beginning December 2005
    End Feb/March 2006 AFP 4.6
    April 2006 AFP 22 and rising

    Tandem Stem Cell Transplant 7/06 - 9/06
    December 07 AFP = 3.3
    December 07 CT = Clear!

    15+ months remission
    Tags: None
  • #2
    I'm glad to hear that you're hanging in there. I would consider the fact that they found just the one tumor to be positive news. I hope they knock the h*ll out of that tumor and get you back up and around soon.

    That's fantastic that your department is being so supportive. I like to see that my faith in humanity well deserved.

    Take care of yourself, you're in my thoughts and prayers. I hope the transplant goes well.
    Fish
    TC1
    Right I/O 4/22/1988
    RPLND 6/20/1988
    TC2
    Left I/O 9/17/2003
    Surveillance

    Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.

    Comment

    • #3
      It's really great to hear you're fully in the fight. Keep it up!
      Scott
      right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

      Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

      Comment

      • #4
        I can only echo the comments and thoughts of Fish. I know doing more chemo must be difficult, but do what has to be done and I know you'll blast that monster away.

        I'm rooting for you.....Davie
        Diagnosed March 2006, Stage IIB, 3cm RP mass
        10% Seminoma, 90% Non-Seminoma (Embryonal, and a tiny amount of choriocarcinoma and teratoma)
        Prechemo bHCG-2648, AFP-582
        3xBEP March-June, markers normalised
        3 months postchemo - 1.2cm residual RP mass
        RPLND September 2006 - mostly necrotic tissue plus tiny amount of well differentiated teratoma
        June 2009 - TRT commenced to help out my lefty
        May 2011 - check-up, all clear

        Comment

        • #5
          I think between radiation and chemo they will kill that tumor. Wonderful about your support. See, you mean a lot to a lot of people. Looks like you turned the corner and got that fighting spirit back. Keep posting on your progress. Dianne
          Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
          Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

          Comment

          • #6
            Wonderful to hear this news Cop!! What great support you're
            getting from your co-workers. You must be one heck of a guy!!

            Keep up the fighting spirit! We're all thinking of you!!!

            Diane

            Comment

            • #7
              I think you have the right treatment that fit with your situation and you will go through it. Next year you will talk about it like an old story.
              Eric

              Stage 1 seminoma in august 2001
              with invaded spermatic chord and treated with RT
              Relapse november 2005, 4 BEP and now back to surveillance

              Comment

              • #8
                What was your original tumor makeup? Did it incldue cloricarcinoma? Were you diagnosed at Stage III?
                Right I/0 March 30, 2005
                Left I/O April 20, 2005
                Embryonal carcinoma, teratocarcinoma
                Surveillance since May 19, 2005

                Comment

                • #9
                  Pathology was 95% embryonal, 5% Seminoma. Stage IIa was the original diagnosis. No tumor ever found up until now.
                  Diagnosed August 2005
                  R/O August 2005 AFP 210

                  4xEP beginning December 2005
                  End Feb/March 2006 AFP 4.6
                  April 2006 AFP 22 and rising

                  Tandem Stem Cell Transplant 7/06 - 9/06
                  December 07 AFP = 3.3
                  December 07 CT = Clear!

                  15+ months remission

                  Comment

                  • #10
                    DianeE said it all for me as well. We're all suporting you!!!!!
                    Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

                    Comment

                    • #11
                      tccancercop, how are you doing?
                      Scott
                      right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

                      Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

                      Comment

                      • #12
                        Hey scott, thanks for the email! I lost my password on here and have been busy in Cincinnati, but i'm back online!

                        This past friday I had a neostar catheter placed, and began neupogen injections, and today was my first day of stem cell collections. I go back on Tuesday (hopefully I will have enough collected and will have Wednesday off). Thursday I have a pre admission teaching day and also meet up with the doctor before being admitted this Friday at 9am for High Dose Etoposide and Carboplatin (apparently an "updated" version of cisplatin). my pet scan came back good - the tumor on the spine appears much smaller and no other areas of metastasis appear!! Although My AFP a few weeks ago came back over 600, we think it was much higher BEFORE i was admitted to the hospital weeks ago for chemo/radiation. So there was likely a favorable response to the previous treatment.
                        Diagnosed August 2005
                        R/O August 2005 AFP 210

                        4xEP beginning December 2005
                        End Feb/March 2006 AFP 4.6
                        April 2006 AFP 22 and rising

                        Tandem Stem Cell Transplant 7/06 - 9/06
                        December 07 AFP = 3.3
                        December 07 CT = Clear!

                        15+ months remission

                        Comment

                        • #13
                          Really nice to hear from you and you sound so good!! You are facing that dragon and slaying it. Stay positive. Dianne
                          Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
                          Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

                          Comment

                          • #14
                            Great to hear from you. Keep on fighting! You're in our prayers!!

                            Diane

                            Comment

                            • #15
                              Glad you're back online. It sounds like things are looking up. You definitely deserve some good news after the past few months. You'll be in my thoughts and prayers as your treatment moves forward.

                              Best wishes, Jim
                              Fish
                              TC1
                              Right I/O 4/22/1988
                              RPLND 6/20/1988
                              TC2
                              Left I/O 9/17/2003
                              Surveillance

                              Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.

                              Comment

                              Previous 1 2 template Next
                              Working...
                              X