Help with Radiology Report

[Fish]

Some doctors really need to be in another profession. I'm glad you're being persistant. I'll bet anything that if your doctor was the one with the tumor, he would have had a 2nd, 3rd, 4th, etc, opinion. I'm not sure of the legal issues, but I would hope that tissue block belongs to your husband, after all the tissue is from his body

Best wishes

[yvonne]

We finally met with the doctor regarding the results on the abdomen ct scan. He thinks that it would be best to redo the ct scan in 3 months to see if there is any change. He said with a Schlerosing Sertoli Cell Tumor , it is unlikely this has spread. We asked for a 2nd opinion on the pathology report and am having a little trouble getting cooperation from the 1st pathologist. We are having the slides sent to Indiana, and they also asked for a block of tissue to be sent, but the original pathologist refuses to send them the block.
The doctor also seemed a little annoyed that we would even ask to have this done, as the original pathology report shows it was looked at by 2 pathologist in that office, but he agreed to do it anyways. So hopefully we will get that back by next week. I just wanted to thank everyone for their help, as we are truly clueless with all this.
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[Scott]

No, it's not too late to get a second opinion on the pathology report. The slides are kept for several years. Your oncologist should be able to help you get a second opinion from an expert.

[yvonne]

Thanks SO much for the info!It is so much help !
So does anyone know how to go about getting a second opinion on the pathology slides? He had the orchiectomy done June 28th....Have we waited to long to do this??
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[Karen]

Yvonne,
Sertoli cell tumors can be benign or malignant, and there are different subtypes that vary in their prognosis and metastatic capabilities. I have read that the pathology can sometimes be mistaken for seminoma and visa versa. I would suggest taking a look at the url Fish sent you and getting a second read on the path slides as well as an opinion form an expert in this area. When something is rare you want the most experienced people in the loop, even if just for an opinion. The size of the tumor and localization is definately good! Lymph nodes in the abdomen can be 11mm and condidered within normal limits. My husband's first CAT was 2 days afer his I/O and the "note several lymph nodes <1cm". His onc and radiologist said while that wasn't cause for worry, and could be from the recent surgery, they did want a repeat in a few months. The nodes were "unchanged" after 5 months. I suspect radiologists are very cautious in cases of a tumor to make sure nothing is overlooked or not specifically noted in a report, to be sure as well as to cover their butts. Good luck! Yes, the waiting is the hardest part. Welcome to the forum!

[yvonne]

Thanks for the replys. So I guess what we were not sure about is whether they are looking for enlarged nodes, or if they should not see any nodes at all even if they are less than 1cm??
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[AdrianB1971]

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I didn't know sertoli tumors aren't malignant. Anyway, the risk of malignant transformation still exists so I advice you to take it very serios

[Fish]

Hi Yvonne:

My understanding is that sertoli cell tumors are usually not malignant, and nodes less than 1cm are not very big, but do warrant observation. However, as this is a very rare tumor type you might want to contact an expert in the field to review your husband's results. Look here: http://tcrc.acor.org/experts.html for some potential contacts.

Best wishes.

[AdrianB1971]

hi

If the report shows enlarged lymph nodes in abdomen there are a great chance the cancer is there. If blood markers are normal just wait 2 weeks and repeat CAT scan. If there are any increase in size of nodes then it's clear.
RPLND or chemo. If not, you can choose to undergo a very carrefuly blood/radio/CAT surveillance protocol or an adjuvant treatment.

[yvonne]

Hello all, This is our first post , and we need some help..
My husbands doctor discovered a lump on his left testicle during a regular exam, which turned out to be cancer. He had an orchiectomy June 28th and has recovered well from that. The pathology turned out to be a 1.4 cm Sertoli Cell tumor which I hear is quite rare. His urologist thought everything looked postitve as there was no signs of spread to cord or epididymis. His tumor markers were not elevated. He had his abdomen and pelvic ct scan done last week and since then has picked up a copy of the report from the radiology place, since his doctor is on vacation. The report shows Several tiny lymph nodes in the retropertonieum less than 1cm. Is this normal , or can anyone tell me if this means there is a chance it has spread?

Thanks for your help, the waiting part is the worst and any input is really appreciated. His doctor wont be back until Thursday and we are dying to know what this means.
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