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  • A couple odd questions

    As I've posted in other threads, I was recently diagnosed with TC and had my orchiectomy (right side) on June 28th. The pathology report said it was an embryonal / yolk sac tumor (the doctor didn't give me any percentages) in stage T3NxMx.

    I know I'm looking at RPLND and possibly chemotherapy in the near future and I've pretty much done my homework on that so I don't really have any questions that can't wait until my next appointment with my doctor.

    My fiance and I are planning on moving soon because we honestly can't afford to continue living in Southern California. We're thinking of Henderson, Nevada as a possibility. My questions are...

    How long (realistically) should I wait before moving out of state? I know I'd like to have at least a few months of clean bloodwork.

    Can anyone recommend a good doctor or hospital for this type of thing in the Henderson/Las Vegas area?

  • #2
    Actually...

    I do have one question about the RPLND.

    According to everything I've read, they go in from the front and cut you open from your sternum to just above your groin. My urologist told me that they go in from the back, does this mean he's considering laproscopic surgery? In a way I'd prefer this if I know he has experience with this type of surgery, I think the recovery time would be faster and the scar (scars?) would be a lot smaller.

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    • #3
      stevenh77:
      Doing an RPLND through the back is certainly not normal, how many has your doctor done? The two doctor's who do them most often are in Indiana and New York, they each do over 100 per year and all of those are from the front.
      Last edited by dadmo; 08-01-06, 09:29 AM.
      Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

      Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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      • #4
        Originally posted by stevenh77
        My urologist told me that they go in from the back, does this mean he's considering laproscopic surgery?
        I've never heard of such an approach. Even with laparoscopic surgery, the incisions are from the front of the body.
        Scott, [email protected]
        right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


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        • #5
          Originally posted by stevenh77
          I know I'm looking at RPLND and possibly chemotherapy in the near future and I've pretty much done my homework on that so I don't really have any questions that can't wait until my next appointment with my doctor.
          What did your chest x-ray, abdominal CT scan, and blood tests show?
          Scott, [email protected]
          right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


          Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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          • #6
            If this doctor is really planning a RPLND from the back you need to get another doctor right away! You may have misundestood. The lymph nodes that they will take out are "in the back". They have to make their way from the front to get to them.
            Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
            Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

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            • #7
              I may have misunderstood my doctor about the RPLND, I'll have to ask him again when I go in for my next appointment on the 11th.

              My chest x-ray before the orchiectomy was normal and I haven't heard back from my doctor about the most recent blood tests (taken at my post-op followup appointment, about a week after the surgery). Maybe that's a good sign? I'm sure if the tumor markers were high, he would have called me and tried to get me in as soon as possible. I know he did tell me that I would probably still have tumor markers in my blood for about a month after the surgery, and that they were only "slightly elevated" prior to the surgery. He didn't give me any numbers, but he said it didn't look bad.

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              • #8
                knowing the CT scan results would be helpful...I had 95% embryonal....

                and typically from the testis the cancer, if it has advanced via the empididymis or blood, will hit the lymph nodes then the chest...so a clear chest xray is positive news...as you have probably read, sometimes embryonal will jump to the chest via the circulatory system.

                it sounds like you are in the good risk category anyway...with low blood markers, nothing in chest...and possibly nothing or little in the lymph nodes.

                keep us posted and be certain to ask questions...if in doubt, it is worth a plane ticket to one of the leading centers...I know I traveled to indy b/n xmas & new years to see einhorn after my orchiectomy and it was the best $ I ever spent...
                - lump first noticed 11/20/2005
                - I/O right Dec 8, 2005
                - 95% embryonal / 5% seminoma
                - normal markers PRE surgery
                - no vascular invasion, tunica free of cancer, epididymis free of cancer, lungs free, lymph free
                - Stage I diagnosis
                - surveillance
                - mid feb '06, beta hcg slightly elevated = 4.6...small enlarged lower node seen on CT scan...
                - 3BEP began feb 20, 2006
                - finished 3 BEP, last bleo, april 17, 2006
                - CT scan, blood markers, chest..all clear
                - back on surveillance

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                • #9
                  I doubt I can afford a plane ticket anywhere, but I'll definitely ask my doctor for more information (and take notes).

                  I had my orchiectomy at Los Angeles County / USC Medical Center. I'm comfortable with the doctors and nurses there, but it's a very busy hospital and I sometimes have to wait a few hours just to see my doctor. I also donated the tumor and a blood sample to a USC Medical School study, I figured it probably won't help me but it might help a lot of people in the future.

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