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Possible TC recurrence

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  • Possible TC recurrence

    Firstly I'd just like to say hello, and say what a great place I think this is. It’s really nice to see such warm people to give support to those that need it.


    In October 2005 (I was 19 at the time), I discovered a suspect lump in my left testicle, while in my first year of university. I got it checked out, and I was told it was cancer, which was devastating, but I didn’t want it to affect my studies, as I worked hard to get there. I had the ochidectomy (lymph node removal isn’t common practice in the UK) and the prosthesis was put in place (which looks awful btw!). As the CT scan was clear, I was put on surveillance, without any chemotherapy.
    The cancer was found to be a teratoma (they didn’t give me any more details). I continued university, and I haven’t done too badly, considering everything, and got on with my life. The whole event passed by so quickly, that I didn’t even tell my friends, as I didn’t want any special treatment. I only visit my urologist once a month for a blood test and quick inspection, which isn’t too bad either.

    It’s been 9 months since I had the testicle removed, and my blood levels (ADF? - or something like that) are as expected, but over the last few days, to my horror, I have found a small nodule (a few mm max) toward the back of the other testicle. It could be my imagination, but I think the testicle has grown in size, and become a little harder. There isn’t really a dull pain, as I found with my previous lump, but I sometimes feel a little bit of discomfort.

    I am terrified of the prospect of being diagnosed with TC again, and having my only other testicle removed, leaving me in an infertile sex-less state. I would undoubtedly have to have a high course of chemotherapy too, which from what I’ve read, is a horrifying. I humoured myself for a few hours today, convincing myself it just a cyst. But cysts don’t occur at my age, and they aren’t hard. But I guess I won’t know for sure before I have a scan.
    I will be contacting my consultant urologist tomorrow morning, and making an urgent appointment.

    My family have been amazingly supportive so far, and I know they will continue, whatever happens, but to lose both testicles at 20, before I have established a proper relationship, and had children and having to drop out of university (which I love) because of treatment, is a prospect nearly as bad as death for me.

    I’m sorry for the negative post, but as I’m sure you can appreciate, it not been the best few days.

  • #2
    Welcome to the forums! First off, what you're feeling is very likely to be something other than cancer. Do have it checked out, but don't assume the worst. Cysts certainly can occur at your age, and it's not always easy to tell a solid mass from a cyst without an ultrasound.

    Further, if it is cancer, don't assume chemotherapy will be required. That all depends on what type it is and whether it has spread. This would be a new cancer, not metastasis from the first.

    Be sure to let us know what you find out from your doctor.
    Scott
    right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

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    • #3
      You've obviously been doing a great job in keeping up with your follow-ups and doing self-exams. Make sure you get the appointment with your urologist right away like you said you were going to do. The hard part is the waiting and not knowing. Good luck to you. Please let us know what you find out.
      Joe's Mom - Nancy
      [Co-Survivor - My Son Joe: (RasJoe)
      TC 1:Right I/O December 5, 2000 (Stage I -seminoma, teratoma, embryonal, yolk sac) RPLND-- 12-29-2000 (Nodes Clear) Surveillance- Recurrence-- 4-22-2001 (Stage III) Chemotherapy-- 4-30-2001, BEP x 3 cycles(successful) - Surveillance

      TC 2: Left I/O-- 7-19-2006 (100 % seminoma Stage I) - Hormone replacement - Surveillance
      Joe's Mom - Nancy

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      • #4
        We can certainly understand your fears, but I would like to put your mind at ease regarding your statement "leaving me in an infertile sex-less state." If it is TC you should do what you can to bank sperm before the I/O, secondly, the removal of your second testicle will not leave you in a sex-less state (I have been married to a man who lost both testicles for almost 36 years). With testosterone replacement therapy (TRT) you will be able to have a sexual relationship and with banked sperm you may have children of your own. Even if you can't bank sperm, should you marry, there is no reason you cannot have a family. You have to keep an open mind and a generous heart. You are going to have to take this one step at a time, first get diagnosed (could be nothing) and second, be cured. You are what is important, not your future, the future will take care of itself and there is no reason to think it can't be what you want. Hang in there. Dianne
        Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
        Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

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        • #5
          Hang in there-- I hope that it is something else, but either way you are doing the best thing by going to the doctor. Super-scary and really no fun at all to be faced with the possibility TC for a second time. You are in my prayers.
          TC 1
          Right I/O-- 12-5-00 (seminoma, teratoma, embryonal, yolk sak)
          RPLND-- 12-29-00 (All Clear)
          Surveillance
          Recurrence-- 4-22-01 (3 mets in right lung-- biggest 3cm, small met on pancreas, one lymph node enlarged-- 2x normal)
          Chemotherapy-- started 4-30-01, 3xBEP
          Surveillance
          TC 2
          Left I/O-- 7-19-06 (seminoma)
          Hormone replacement therapy-- Androgel
          Surveillance

          Jeremiah 29:11
          Listen to Bob Marley

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          • #6
            Please check your private messages TSS-UK!

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