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My husband has 2 months to live

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  • #1

    My husband has 2 months to live

    does anyone have einhorns e-mail address, I wanted to run his case by him. I'll write more later.

    Jennifer in AZ

    husband dx may '05 non seminoma germ cell tumor 80% , 20 % yolk sac orchiectomy 6/05
    bep sept-nov '05
    vip x2 dec05 and jan06
    high dose chemo/tandem stem cell transplant march-june '06
    radiation 4 weeks just stopped
    cancer metastisized from the one lymphnode to all over the lungs!!
    Has 2 months to live according to his Doctor at the Mayo in Scottsdale
    Husband dx May 2005
    Non seminoma germ cell tumor AFP 25.2, Ldh normal, HCG 800
    Stage II
    Right orchiectomy 06/05
    9/05 chemo 3xBEP
    12/05 Salvage Chemo 3x VP
    03/06High dose chemo
    Tandem Stem cell tansplant
    07/06 Radiation 5 weeks
    Passed away 09/17/06 HCG 650,000
    Tags: None
  • #2
    Here's Dr. Einhorns contact information

    NAME : Lawrence H. Einhorn
    PHONE : (317) 274-3515
    FAX : (317) 274-3646
    E-MAIL : [email protected]
    DIVISION : Hematology/Oncology
    Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

    Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

    Comment

    • #3
      Jennifer,
      Glad you're getting Einhorn in the loop. I wish there were words to say or things to do to make this better, but all I can say is stay strong, stay hopeful, and know we're are pulling for you and your husband.
      Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

      Comment

      • #4
        Jennifer:

        I really don't know what to say.

        I believe there is always hope. You will both be in my thoughts and prayers in the days ahead.
        Fish
        TC1
        Right I/O 4/22/1988
        RPLND 6/20/1988
        TC2
        Left I/O 9/17/2003
        Surveillance

        Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.

        Comment

        • #5
          Dadmo
          thanks for the contact info. I just e-mailed him. Thanks for all your supprt. Had I'd known any better we should have gone to Indiana University all along. But I guess heinsight is 20/20
          Husband dx May 2005
          Non seminoma germ cell tumor AFP 25.2, Ldh normal, HCG 800
          Stage II
          Right orchiectomy 06/05
          9/05 chemo 3xBEP
          12/05 Salvage Chemo 3x VP
          03/06High dose chemo
          Tandem Stem cell tansplant
          07/06 Radiation 5 weeks
          Passed away 09/17/06 HCG 650,000

          Comment

          • #6
            Oh, no. I'm so sorry. Please let us know what you hear from Dr. Einhorn.
            Scott
            right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

            Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

            Comment

            • #7
              cellblock:
              Don't ever look back. Save all your energy for what's ahead. You've done great so far just keep pushing.
              Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

              Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

              Comment

              • #8
                you both are in my thoughts and prayers!
                diagnosed 01/15/2005 bi-lateral seminoma stage IIa,4cm lymph node, right I/O & partial left I/O mar/2005, 18 days of radiation, remaining left I/O- aug/2005, surveillance, Wife did IVF oct/2005, DAD OF BABY GIRL born 08-02-2006!!! testosterone implants May 2008

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                • #9
                  I'm so sorry for what you're going through! Dr. Einhorn has a history of responding very quickly to emails, but don't hesitate to pick up the phone if a response doesn't come soon.
                  _____________________________________________

                  Left I/O 5/7/05, Stage 1(pT1)
                  No VI or LI, Normal Markers
                  70% Embryonal, 30% Seminoma
                  Surveillance
                  1st child born on 8/08

                  Comment

                  • #10
                    Jennifer.

                    I'm sending you a private email with my personal email and phone number. Please call me. I know EXACTLY where you are at and what you are going through. My husband passed away from testicular cancer in April but we never gave up, even at the end.

                    There are other treatment options NOT part of the standard treatment protocol for testicular cancer and maybe I can help you with that.

                    Hang in there.
                    Wife of Kevin Murphy
                    Diagnosed 7/16/04 100% Choriocarcinoma
                    Oriechtomy 7/20/04
                    4xBEP 8/04-11/04 BHCG:1200 (lung only)
                    Rediagnosed 12/27/04 BHCG: 50
                    1xVIP 1/05 (lung)
                    HDC/Stem cell Indiana 2/05-4/05 BHCG: 51-4.5 (lung)
                    HDC failure 5/05
                    3xGemzar/Taxol 6/05-9/05 (lung only)
                    VP-16 w/Avastin 9/05-1/06 (lung only)
                    Cyberknife 5" lung tumor 2/06
                    cyberknife 6 brain tumors 3/06
                    1xOxaliplatnin 3/06 (liver, lungs, kidneys, left hip)
                    Passed away 4/13/2006

                    Comment

                    • #11
                      My family will pray for you and your husband

                      Jennifer, May your faith comfort you. Try to enjoy every day and count it as a blessing. My family and I meet every night to count our blessings, we will certainly include you and your family in our prayers. It helps.

                      I am just curious and I couldn't tell, did your husband have the RPLND (lymph node surgery) and how old is he? I used to live in beautiful Scottsdale and I hope to retire there some day.
                      Kevin Ricks (46 years old)
                      Diagnosed 2-2006, AFP = 3800, BHCG = 1226. Left I/O 3-2006, Stage 2 Nonseminomous (50% embryonal carcinoma, 30% teratoma), 4XBEP, two tumors in lymph nodes, (12cm x 5cm left periaortic region and 5cm x 5cm left pelvic region) RPLND 8-2006, Pathology is negative, tumor markers negative, surveilance beginning 9-2006.

                      Comment

                      • #12
                        Kevin,

                        No he has never had the rplnd. He is 32 years old. They did chemo 3xbep, hcg still elevated, then 2x vip , hcg still elevated, then tandem stem cell transplant, hcg still elevated. Had a 1 inch mass in the lymphnode in abdomen,Then they scheduled surgery for rplnd, cancelled it the night before and thought that doing 5 weeks radiation would be better to shrink it, he went through 4 weeks of radiation and got sick, all the sypmtoms of pneumonia , no energy, fever, trouble breathing, coughing. Went in for a chest xray and chest ct scan and it showed the lungs had tumors all over them. so it wasn't pneumonia it was the cancer. The doctor said he had roughly 2 months to live. The Dr also said he could do salvage chemo but it would only extend his life a month or so and it would be inpatient and basically referred us to hospice. So that's the short of it. Now they will not do any surgery according to the Mayo because the cancer spread bilaterally in the lungs.
                        Husband dx May 2005
                        Non seminoma germ cell tumor AFP 25.2, Ldh normal, HCG 800
                        Stage II
                        Right orchiectomy 06/05
                        9/05 chemo 3xBEP
                        12/05 Salvage Chemo 3x VP
                        03/06High dose chemo
                        Tandem Stem cell tansplant
                        07/06 Radiation 5 weeks
                        Passed away 09/17/06 HCG 650,000

                        Comment

                        • #13
                          Jennifer,
                          I wish there was something to do or say that could help. You have been so proactive and so strong for your husband through this. Please take care of yourself as well.
                          Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

                          Comment

                          • #14
                            I'm no doctor.. but with this type of thing, 2 months doesn't always mean 2 months. When my grandma had her first cancer the doctors told her she had 6 months to live. This was over 20 years ago and she's still alive.

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                            • #15
                              Jennifer, I wish I knew what to say other than I will keep you and your hubby in my thoughts and prayers.
                              Lori and Jon
                              Diagnosed 5/22/2006
                              I/O 5/26/2006, Stage 3, Good
                              Teratoma (Majority), Seminoma (10%), Yolk Sac
                              3xEP then determined not working
                              HDC w/stem cell transplant 8/16/06 to 9/25/06
                              Chest and Neck surgery 10/9/06 - immature teratoma
                              RPLND 11/16/06 - immature Teratoma
                              2/29/2008 - markers continue to be normal!
                              9/16/2008 - released from Dr. Einhorn's care

                              Comment

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