Where did your cancer spread to?

[cbuysse]

Alucard good to see you post again hadn't seen you post anything in the past few months and I was wondering how your treatment has been coming? I lurk more than i post in case you're wondering who the heck i am.

[Alucard]

Look at my case....

Did the 3xBEP cure you?

[Alucard]

I have (or had) lung mets. Brain MRI 3 days ago.

I felt much better after the 4xBEP, my lungs feel completly normal.. although sometimes I will feel that weird pain again. Kust waiting for the PET now to know if it's all history.

[rlhawk]

I had embroyonal carcinoma and it spread to the lungs, but chemo wiped it out. Your brother will be fine. Feel free to contact me if you have more questions.

[mk6439]

My husband's cancer skipped the abdominal nodes and went to the lungs

[AdrianB1971]

!

Look at my case....

[QuantumSheep]

Hi candace,

One thing that is worth mentioning, for you but also for any new people that might be reading this: Even when testicular cancer spreads (to the lungs, for example) it does NOT become lung cancer. Even though it now exists in his lungs, it is still testicular cancer, and therefore is every bit as curable as testicular cancer in the lymph nodes or in the testicle itself. I never knew this before my own experience with testicular cancer and it did lower my fears about recurrence a bit.

Of course it's normal to be nervous, but as Davie & dadmo said, your brother will be fine. It's completely understandable that there is an emotional hit when cancer recurs like this, but everything will be ok. Be sure to keep us posted!!

[dadmo]

candace:
The lungs are part of the normal path for testicular cancer to travel. It does not change the outlook for your brother. The chemo will be tough but not as tough as most think and your brother will be cured.

[Davie]

Candace,

Sorry to hear that the RPLND did not cure your brother.

Unfortunately embryonal carcinoma and choriocarcinoma, which are types of TC germ cell tumours, can spread via the bloodstream as well as the lymphatic system. My guess is that your brother had a good chunk of embryonal carcinoma in his original pathology.

Unfortunately a RPLND can only stage the cancer if it has spread lymphatically, ie. to the lymph nodes in the abdomen. It sounds as if your brother TC has spread through the bloodstream and directly to the lungs. You are not alone in this respect, and it is very common for TC to spread to the lungs. Rusty009 has just recently posted the same findings, having also had a RPLND. I've attached the link.

http://www.tc-cancer.com/forum/showthread.php?t=4316

The good news is that the disease is highly curable and your brother will be fine. The cure rate for metastic TC does not distinguish between spread to the lungs or abdomen. It is based on tumour markers. Given your brother will have been on surveillance, he will have likely caught the recurrance very early. This will put hime in "good risk" category.

The international cure rate for good risk disease is 92%, but this covers everything from minimal spread to abdominal lymph node through to widespread lung disease (as long as the markers are not above 1000 mg/ml for AFP, and 5000 mIU/ml for bHCG).

If the recurrence has been caught very early, my guess is that the cure rate would be in the mid to high 90s.

Davie

[candace]

My brother was diagnosed early this year with TC.
He had an i/o and then RPLND.
After a few months on surveilence it was found that it spread to his lungs.
His doctor says it's totally curable, and after 3 rounds of chemo he'll be cured, but I'm nervous.
I scanned some of the posts here and didn't see many people saying theirs had spread to the lungs.
Guess I would feel better knowing that someone else had a similar situation.
Thanks.