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  • #1

    Post Stem Cell Transplant Update

    Well as you know I had to have a tandem stem cell transplant this summer and finished up at the begining of September at the Jewish Hosptial in Cincy. My AFP two weeks before starting the second transplant was 15. . down from nearly 600 (due to a tumor compressing my spinal cord - radiation was killing it while at 600 -causing a possible surge of AFP). I go tomorrow to get the results of my AFP, BHCG, CT and Pet Scans. I know for a fact my BHCG will be normal as I have never had elevated BHCG. Doctor told me he would be surprised if anything comes back on the scans as I had very little activity on the pre-admission scans.

    Overall I'm glad this summer is over. Jewish Hospital was great in Cincy. .Dr. Broun apparently did research years ago with Einhorn and he follows the same transplant protocol as Indiana University.
    Diagnosed August 2005
    R/O August 2005 AFP 210

    4xEP beginning December 2005
    End Feb/March 2006 AFP 4.6
    April 2006 AFP 22 and rising

    Tandem Stem Cell Transplant 7/06 - 9/06
    December 07 AFP = 3.3
    December 07 CT = Clear!

    15+ months remission
    Tags: None
  • #2
    Really great to here everything went well during the stem cell transplant. It sounds a pretty grim couple of months, but you've battled through it now. Best of luck with the results tomorrow.

    Davie
    Diagnosed March 2006, Stage IIB, 3cm RP mass
    10% Seminoma, 90% Non-Seminoma (Embryonal, and a tiny amount of choriocarcinoma and teratoma)
    Prechemo bHCG-2648, AFP-582
    3xBEP March-June, markers normalised
    3 months postchemo - 1.2cm residual RP mass
    RPLND September 2006 - mostly necrotic tissue plus tiny amount of well differentiated teratoma
    June 2009 - TRT commenced to help out my lefty
    May 2011 - check-up, all clear

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    • #3
      tccancercop,
      Glad you're through with all that!! Good luck with the results and getting this behind you.
      Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

      Comment

      • #4
        tccancercop:
        Congratulations on getting that out of the way. If I were you I'd be glad summer was over to. But next year you can make up for some lost time. After my son was cured (I love saying that) Nancy and I did a reevaluation of our lives and we are living fuller lives now then ever. Sometimes you can turn lemons into lemonade.
        Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

        Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

        Comment

        • #5
          Glad to see you're back online and to hear that the stem cell transplant went well. Best wishes on the upcoming tests.
          Fish
          TC1
          Right I/O 4/22/1988
          RPLND 6/20/1988
          TC2
          Left I/O 9/17/2003
          Surveillance

          Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.

          Comment

          • #6
            So glad to hear your doing well. Will you need surgery for the tumor or did it shrink away? Good luck tomorrow!
            Lori and Jon
            Diagnosed 5/22/2006
            I/O 5/26/2006, Stage 3, Good
            Teratoma (Majority), Seminoma (10%), Yolk Sac
            3xEP then determined not working
            HDC w/stem cell transplant 8/16/06 to 9/25/06
            Chest and Neck surgery 10/9/06 - immature teratoma
            RPLND 11/16/06 - immature Teratoma
            2/29/2008 - markers continue to be normal!
            9/16/2008 - released from Dr. Einhorn's care

            Comment

            • #7
              I'm very glad to hear from you! I've been wondering how you were doing.
              Scott
              right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

              Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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              • #8
                great news...I'm happy to hear from you.

                pete
                - lump first noticed 11/20/2005
                - I/O right Dec 8, 2005
                - 95% embryonal / 5% seminoma
                - normal markers PRE surgery
                - no vascular invasion, tunica free of cancer, epididymis free of cancer, lungs free, lymph free
                - Stage I diagnosis
                - surveillance
                - mid feb '06, beta hcg slightly elevated = 4.6...small enlarged lower node seen on CT scan...
                - 3BEP began feb 20, 2006
                - finished 3 BEP, last bleo, april 17, 2006
                - CT scan, blood markers, chest..all clear
                - back on surveillance

                Comment

                • #9
                  Hey Cancer Cop, so good to hear from you. We've been thinking of
                  you and praying for your good health!!

                  Diane

                  Comment

                  • #10
                    Lori. .yes the tumor was probably gone months ago. .

                    Everyone, my cat scan AND pet scan came back clean. BHCG <1. AFP=3.6 THe LOWEST it has every been after treatment (4.6 after orchiectomy. .5.0 after initial chemo). Dr. Broun told me I'm in remission!
                    Diagnosed August 2005
                    R/O August 2005 AFP 210

                    4xEP beginning December 2005
                    End Feb/March 2006 AFP 4.6
                    April 2006 AFP 22 and rising

                    Tandem Stem Cell Transplant 7/06 - 9/06
                    December 07 AFP = 3.3
                    December 07 CT = Clear!

                    15+ months remission

                    Comment

                    • #11
                      tccancercop it's a great news congratulations.
                      Eric

                      Stage 1 seminoma in august 2001
                      with invaded spermatic chord and treated with RT
                      Relapse november 2005, 4 BEP and now back to surveillance

                      Comment

                      • #12
                        Fantastic!!
                        Scott
                        right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

                        Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

                        Comment

                        • #13
                          Congratulations on remission after HDC!!! That's fanstastic news. I am so happy for you.

                          go have fun.
                          Patti
                          Wife of Kevin Murphy
                          Diagnosed 7/16/04 100% Choriocarcinoma
                          Oriechtomy 7/20/04
                          4xBEP 8/04-11/04 BHCG:1200 (lung only)
                          Rediagnosed 12/27/04 BHCG: 50
                          1xVIP 1/05 (lung)
                          HDC/Stem cell Indiana 2/05-4/05 BHCG: 51-4.5 (lung)
                          HDC failure 5/05
                          3xGemzar/Taxol 6/05-9/05 (lung only)
                          VP-16 w/Avastin 9/05-1/06 (lung only)
                          Cyberknife 5" lung tumor 2/06
                          cyberknife 6 brain tumors 3/06
                          1xOxaliplatnin 3/06 (liver, lungs, kidneys, left hip)
                          Passed away 4/13/2006

                          Comment

                          • #14
                            That's spectacular. Thanks for the update.
                            Left I/O 5/9/05, 100% Embryonal Call Carcinoma, Stage IIIa, Laparoscopic RPLND 7/19/05, 4X EP 9/05-11/05

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