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Checking in at Mass General tomorrow for High Dose Chemo & Stem Cell Trans.

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  • #16
    Congrats on being home. What a huge accomplishment!
    Lori and Jon
    Diagnosed 5/22/2006
    I/O 5/26/2006, Stage 3, Good
    Teratoma (Majority), Seminoma (10%), Yolk Sac
    3xEP then determined not working
    HDC w/stem cell transplant 8/16/06 to 9/25/06
    Chest and Neck surgery 10/9/06 - immature teratoma
    RPLND 11/16/06 - immature Teratoma
    2/29/2008 - markers continue to be normal!
    9/16/2008 - released from Dr. Einhorn's care


    • #17
      Great up and be well!!!
      Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.


      • #18
        Glad to hear things went well!
        Right I/O 4/22/1988
        RPLND 6/20/1988
        Left I/O 9/17/2003

        Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.


        • #19
          If you can, try to work during your 2nd round. Usually the second round goes better than the first round. My husband would occasionally do work while going thru the 2nd round.

          My husband also had an allergic reaction to platelets. He was fine for about 20 minutes after the transfusion started, then his body temperature dropped very rapidly. all this on my bday too, wow what a day. Anyways, after that the nurses wrote up a medication profile that's always in his wallet. 600 mg Tylenol, 50 mg bendadryl (IV) 100mg Hydrocortisone (IV) is what he got each time he got a tranfusion for all blood products.

          He also get a medic alert bracelet for his allergic reaction, to also take Low level oxygen (due to Bleo) and that he also had stem cell transplant. It seems like a pretty good idea in case something happened to him and I wasn't around or if he couldn't tell anyone what he had been through.

          Wife of Kevin Murphy
          Diagnosed 7/16/04 100% Choriocarcinoma
          Oriechtomy 7/20/04
          4xBEP 8/04-11/04 BHCG:1200 (lung only)
          Rediagnosed 12/27/04 BHCG: 50
          1xVIP 1/05 (lung)
          HDC/Stem cell Indiana 2/05-4/05 BHCG: 51-4.5 (lung)
          HDC failure 5/05
          3xGemzar/Taxol 6/05-9/05 (lung only)
          VP-16 w/Avastin 9/05-1/06 (lung only)
          Cyberknife 5" lung tumor 2/06
          cyberknife 6 brain tumors 3/06
          1xOxaliplatnin 3/06 (liver, lungs, kidneys, left hip)
          Passed away 4/13/2006