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Had original RPLND in January of '05. We had been monitoring, through CT and PET Scans, what we thought was lymphcele. However, it continues to enlarge and now the Doc's believe it is teratoma again. My Doc suggests I go to Indiana U for the procedure.....which I am OK with. here's my questions.......has anyone out there had 2 RPLND's??? Seems to me, that a 15 inch scar and all the scar tissue, makes the second procedure all the more dangerous.
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A member who posted a few times last month, kewlkane, had RPLND surgery twice.Scott
right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since
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PJVP:
It stinks that you need a second RPLND but it's not anymore dangerous. As awful as the scar can be it's only on the surface. The real important stuff thats inside just gets moved out of the way, no scaring in there other then where the nodes were cut, and that area is trickey every time. Going to IU is a great idea if for no other reason then to make sure they get it all out. The nodes are like a string of pearls and they should remove several on either side of the last affected one. That may not have been done with your first RPLND. If you look at some of the threads you will see numbers like 40 nodes removed when in reality only 8 or 10 were affected.Last edited by dadmo; 11-06-06, 08:24 PM.Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.
Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.Comment
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This report concludes:Recurrences after RPLND usually reflect inadequate primary surgery especially in the retrocaval and suprahilar region. Repeat RPLND is safe and effective in the majority of patients; however, it requires careful preoperative planning with regard to potential involvement of adjacent vascular and visceral structures making close interdisciplinary collaboration necessary in many cases. Repeat RPLND is a mandatory surgery to be performed at centres of expertise.Scott
right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since
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My husband just had surgery at IU to remove lymph nodes in his chest and neck (the RPLND is Nov 16). He had about 2 pounds of teratoma removed. Due to the amount and what Teratoma does, Dr Einhorn said not to be surprised if through survelliance additional nodes grow from Teratoma and surgery would again be required.Lori and Jon
Diagnosed 5/22/2006
I/O 5/26/2006, Stage 3, Good
Teratoma (Majority), Seminoma (10%), Yolk Sac
3xEP then determined not working
HDC w/stem cell transplant 8/16/06 to 9/25/06
Chest and Neck surgery 10/9/06 - immature teratoma
RPLND 11/16/06 - immature Teratoma
2/29/2008 - markers continue to be normal!
9/16/2008 - released from Dr. Einhorn's careComment
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