First Post

[L.A. Chimp]

Just got the results back from my first surveillance appointment -- blood work and x-rays all came back normal! 1 down, 11 more to go this year....

[matthias]

If I were in your shoes, I'd opt surveillance. I was 85% sem./ 15% EC w/ VI/LI; has worked for me so far...18 mo. out. (Also check out Kman's story whose make-up more closely resembles yours, I believe.)

RPLND and Chemo appear not to be a walk-in-the-park. Save it for when it's really needed.

/M

Hey everyone!

This is a great website and I'm glad I found it. There is a wealth of information here!

I had a left I/O two weeks ago today (woo-hoo!) and am feeling a little lighter on one side (if you know what I mean)... My urologist here in L.A. said my tumor was Stage I and 60% embryonal and 40% seminoma, with possible VI.

My oncologist (and my urologist) here in L.A. said that my CT scans showed no cancer and my blood work was normal. My urologist said I have three options: RPLND, 2xBEP, or surveillance.

My oncologist knows the doctors at Indiana University very well and he spoke to them about me and the IU doctor (Williams, I think) said based on my case I had two options, RPLND or surveillance. He did not recommend chemo. Right now, I'm leaning towards surveillance.

I'm going to be in NY next week for vacation and was leaning towards going to Sloan-Kettering for a third opinion. Just curious if anyone on the board here can recommend any doctors at S-K. Also, based on my diagnosis, I was wondering what you guys thought about my choice of surveillance.

Thanks in advance for your input and thanks again for the website!

[L.A. Chimp]

Thanks for all the info guys. I will keep you posted.

[dadmo]

The doctors to see at Sloan are:

Dr Robert Motzer
Associate Chairman for Clinical Trials, Department of Medicine
Phone: (646) 422-4312

Dr George Bosl
Chairman, Department of Medicine
Patrick M. Byrne Chair in Clinical Oncology
Phone: (212) 639-8473

[petep]

LA chimp,

click on my name and see my post "new member..."

I did fly to indy for my 2nd opinion, similar situation as you...and chose surveillance...I did end up having to go thru chemo after only 2 months of surveillance as my markers went from normal to increasing and had a mass show up in my CT scan...

but even if I had to do it again, I'd choose surveillance....the odds are in your favor...you are in an exceptionally good risk category.

please be certain though to keep up with your monthly checkups...

[L.A. Chimp]

Thank you!

[Scott]

Welcome! Surveillance is a fine choice; you just need to stick to the schedule and be prepared for the possibility of chemotherapy in case of recurrence. (I suspect Sloan would recommend RPLND.)

[L.A. Chimp]

Hey everyone!

This is a great website and I'm glad I found it. There is a wealth of information here!

I had a left I/O two weeks ago today (woo-hoo!) and am feeling a little lighter on one side (if you know what I mean)... My urologist here in L.A. said my tumor was Stage I and 60% embryonal and 40% seminoma, with possible VI.

My oncologist (and my urologist) here in L.A. said that my CT scans showed no cancer and my blood work was normal. My urologist said I have three options: RPLND, 2xBEP, or surveillance.

My oncologist knows the doctors at Indiana University very well and he spoke to them about me and the IU doctor (Williams, I think) said based on my case I had two options, RPLND or surveillance. He did not recommend chemo. Right now, I'm leaning towards surveillance.

I'm going to be in NY next week for vacation and was leaning towards going to Sloan-Kettering for a third opinion. Just curious if anyone on the board here can recommend any doctors at S-K. Also, based on my diagnosis, I was wondering what you guys thought about my choice of surveillance.

Thanks in advance for your input and thanks again for the website!