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embryoner cell ca from TURKEY

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  • embryoner cell ca from TURKEY

    Hi!!
    I'm from Turkey
    My name is Özgür. 1 am in 32 years old. Unfortunately , My English isn’t good.

    Diagnosis
    Diagnosed oct 2006
    Stage IIa
    Embryonic Carcinoma + seminoma
    3.5 cm tumor in testicle
    Multiple paraaortic lymph nodes ( 2cm ↓ )
    AFP : 110 BHCG : N LDH :700 ( good prognosis )


    Treatment
    Radical orchiectomy
    Four cycles of BEP

    Status
    It wasn’t looked after yet.
    Last edited by karyaleylant; 12-21-06, 05:58 AM.

  • #2
    We're glad to welcome another international member to the forums!
    Scott, [email protected]
    right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


    Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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    • #3
      Welcome! We're not really glad you've needed to join, but glad you found us! Are you done with your chemo?
      Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

      Comment


      • #4
        So few words you used, but so much we understood. How are you doing? Dianne
        Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
        Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

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        • #5
          Welcome and from what you wrote it seems that your on the right path to a cure. I do have to admit the heading of this thread threw me a bit. I thought someone was asking if they could get cancer from eating turkey
          Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

          Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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          • #6
            Gecmis olsun

            Merhaba Ozgur

            welcome to the forum and glad you are making effort to learn more about your cure and getting support from this forum

            you can contact me if you need any support for language etc.

            just curious, where do you go for your treatment ?

            Bekir
            diagnose 18 Aug 06
            Orchiectomy 24 Aug 06
            pure Seminoma, markers normal, PALP positive
            CT 35x45x60 mm at L3
            EPx4 cycle from 6 Oct 2006
            CT no shrinkage after 4 cycle, PET negative 12 Jan 07
            Post chemo mass resection 14 Feb 07
            Found mature teratoma (unusual for seminoma)
            Surveillance !

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            • #7
              Originally posted by karyaleylant
              Hi!!
              I'm from Turkey
              My name is Özgür. 1 am in 32 years old. Unfortunately , My English isn’t good.

              Diagnosis
              Diagnosed oct 2006
              Stage IIa
              Embryonic Carcinoma + seminoma
              3.5 cm tumor in testicle
              Multiple paraaortic lymph nodes ( 2cm ↓ )
              AFP : 110 BHCG : N LDH :700 ( good prognosis )


              Treatment
              Radical orchiectomy
              Four cycles of BEP

              Status
              It wasn’t looked after yet.
              Karyaleylant,

              I'm interested to know why your doctors are giving you 4xBEP.

              The standard protocol for good prognosis non-seminoma is 3xBEP, as studies have shown that the additional cycle is of little benefit to cure rates. The additional cycle of BEP may be regarded as overtreatment, and put you at further risk of BEP side effects.

              Have your doctors recommended this because your LDH is high?

              Davie
              Diagnosed March 2006, Stage IIB, 3cm RP mass
              10% Seminoma, 90% Non-Seminoma (Embryonal, and a tiny amount of choriocarcinoma and teratoma)
              Prechemo bHCG-2648, AFP-582
              3xBEP March-June, markers normalised
              3 months postchemo - 1.2cm residual RP mass
              RPLND September 2006 - mostly necrotic tissue plus tiny amount of well differentiated teratoma
              June 2009 - TRT commenced to help out my lefty
              May 2011 - check-up, all clear

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              • #8
                I am currently being treated at a hospital in Izmir Turkey.
                The pathology report listed it as embryonal carcinoma and apparently the procedure in Turkey and Europe requires 4 cycle BEP.
                At the moment I'm in the 3rd cure cycle.
                My LDH level is at the peak. (laboratory LDH peak value: 480)

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                • #9
                  I've attched the European Guidlelines on Testicular Cancer, as agreed throughout the European states.



                  Section 8.1 specifically states that for good risk testicular cancer, 3xBEP is prescribed.

                  I'm not saying you don't require 4 cycles. Your doctors know best, but it would be interesting to find out why your doctors are giving you the extra cycle.

                  Davie
                  Diagnosed March 2006, Stage IIB, 3cm RP mass
                  10% Seminoma, 90% Non-Seminoma (Embryonal, and a tiny amount of choriocarcinoma and teratoma)
                  Prechemo bHCG-2648, AFP-582
                  3xBEP March-June, markers normalised
                  3 months postchemo - 1.2cm residual RP mass
                  RPLND September 2006 - mostly necrotic tissue plus tiny amount of well differentiated teratoma
                  June 2009 - TRT commenced to help out my lefty
                  May 2011 - check-up, all clear

                  Comment

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