Stage 3c - my fight

[Davepet]

As long as it stays down, all is good. With 3 tests the same, it s stable, probably your new normal value.

Dave

[JeskiM69]

+1 to what the others say. I don't think you have anything to worry about with that number.

- Matt

[chad-in-berlin]

Yep. AFP can be even higher than yours and be fine. What you don't want is anything approaching 25, or a spike, Otherwise, enjoy the good news.

[Kelturas]

Hello everyone,

i just wanted to give an update:

I had 2 checkups since my last post here and i am still ALL CLEAR
Its one year since my diagnosis and 9 months since the end of 4x BEP.

I feel better like i did in the past 5 years and doing a lot of sports now. My bodyweight is back on 84kg/183cm (66kg after my first round BEP).

Sending my best wishes to all fighters here!

[stufax]

Dude, your story is quite similar to mine. I think yours is also primary retroperitoneal like mine as you didn't mention you had anything in testis. I think you are in good hands if you are treated by Prof Heidenreich. Have heard only good things about him here. I agree you have had a very good response to chemo if the pathology report came clear for you. I think RPLND was the right thing to do. You probably had a very good and experienced surgeon as he could do it in only 5 hours, it's very fast. Mine was 21 hours. Strange you have been suggested additional rounds after 4*BEP. It is definetly not a standard practice and I think Dr Einhorn would not recommend it. It was probalby a good decision from you to deny from it. I would probably follow Prof Heidenreich's recommendations in the future.

[Trekga]

Happy to hear that you are doing well one year since being dx. The ALL CLEARs x 2 are the best news!!! And that you are active, and have gained some weight back.

[JoeTheAstronaut]

Great to hear you're doing well!!! Take care

[Kelturas]

Thanks all. The next step is a biopsis of my right testis if there are TIN-cells or not. Ultrasound showed that there is a "Sternhimmelsyndrome" (Sorry, don' know the english term for that)!

I think yours is also primary retroperitoneal like mine as you didn't mention you had anything in testis.

My left testis had the primary tumor and was removed. But the tumor was extremly small, but infiltrated the vein and lymphroad. (L1 and V1). I couldnt feel it , it was just found on the ultrasound.
The metas in my lymph nodes were very big, so they thought i had lymphoma. 1 Day later they found my BHCG was about 225.000, so they checked my testis.
I followed your whole story since my diagnosis and i am glad that you are doing well now! Seminoma metas are extremly sticky after chemo, so they are hard to remove, but 21hours is insane! Really glad, that you are back on your feet!

[Kelturas]

Hey everybody,

i just remembered, that this forum exists.

I want to give an update to everyone.

I had my 6 years checkup and everything is fine! :-)

Cancer isnt a big part of my life anymore. I married, bought a house and live a very good life. My health is super!

I hope this gives hope to all fighters. I made it as a stage3c patient.

Greetings

Martin

[Mike]

Thanks for the update and the wonderful news Martin!! You're a perfect example of what we wish for and that's getting back to living life after diagnosis. Well done and congratulations.

Mike

[ralphsong]

Good news!

[SamanthaS]

Congratulations, Martin! You are an inspiration! I hope the same for my son, who is still in limbo six months after chemo, because he still has one problematic lymph node at 1.2cm. Surgery is an option but so is waiting, we are told. You were brave to go through the surgery and get everything out.

[Mike]

Hey everyone!
Today i got my pathology report of my RPLND. Only Nekrosis was found!!! :-)
So i'm ALL CLEAR right now? :-)

-Martin

Awesome news and congratulations!!!

Mike