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  • Seminoma not so easy too kill

    Hi people

    I just got a mail from TCLEFT before going to sleep and he asked me to inform everybody that they found metastasis again in his liver pancreas and chest. I don't know what else to say i am very sad for him tonight and will pray for him before going to sleep. I hope he will be back on the forum soon to keep us updated on his situation
    Eric

    Stage 1 seminoma in august 2001
    with invaded spermatic chord and treated with RT
    Relapse november 2005, 4 BEP and now back to surveillance

  • #2
    I'm really, really sorry to hear this, though I'm glad you shared the news. I hope Mark is in the best possible hands to deal with this recurrence.
    Scott, [email protected]
    right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


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    • #3
      Mark:
      Indomitable Spirit my brother, Indomitable Spirit. Perhaps I can come down to your Gym and we can work the heavy bags together.
      Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

      Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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      • #4
        This news is incredibly upsetting. I only know you from your posts but you have always had a special place in my heart. Let us know if we can do ANYTHING to help. Hang in there, Mark. Dianne
        Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
        Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

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        • #5
          Mark:
          Don't forget how close Sloan is to my home. You and your family are more then welcome to use it as a base camp or in your case a dojo.
          Last edited by dadmo; 01-11-07, 01:48 PM.
          Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

          Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

          Comment


          • #6
            Mark,
            You have a big (sometimes dysfunctional) family here and we will do whatever we can to help and support you. Please update us when you can.
            Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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            • #7
              How does something as ugly as Cancer and something as beautiful as You All exist on the same planet? Thank you, All of you. My biggest fear at this moment is breaking the news to my kids Again! I'll be treated in Hunterdon Regional Cancer Center again, and we'll be consulting with Fox Chase again. I'm getting ready to meet the Onc shortly. I spent most of the day sleeping, I'm a bit emotionally drained. I'll keep you posted as things develop again.
              And Again Love to you All,
              Mark
              I Love My Pack!

              sigpic

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              • #8
                Originally posted by TCLEFT
                Love to you All,
                Mark
                Mark,

                I'm so sorry you're in the belly of the beast again, however, I feel you'll beat this now as you have done in the past. Clearly your tumors responded well to chemo earlier, and a slightly different combination will work! Also are they sure that it's metastasis? Could it be anything else?

                Anyway, please PM me if you need ANYTHING. I live in NJ, too (as you know) and I would love to help...even if you just want to call to talk.

                Also read these:

                This case shows a seminoma with metastases at retroperitoneal site, mimicking a primary pancreatic neoplasm. It provides an example of the possibility of an uncommon clinical appearance of seminoma metastases and again underlines the importance of exact radiological and histopathological examination …


                Radiation-induced fibrosis within the upper retroperitoneal space is an important differential diagnosis versus pancreatic cancer in patients with prior radiotherapy for seminoma. Diagnosis based only on clinical and radiological findings may lead to incorrect patient information and registration er …


                Stay strong my brother...

                djm
                Last edited by djmac; 01-11-07, 09:31 PM.
                Detected mass 10-6-06, Radical left I/O 10-10-06, Stage I seminoma, 1.5 cm primary, No LV invasion, No Rete Testis Invasion... Currently on Surveillance.

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                • #9
                  I'm so glad to hear from you, Mark. Keep the faith.
                  Scott, [email protected]
                  right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


                  Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

                  Comment


                  • #10
                    Mark,
                    You've done lots for others by being here, and now it's our turn to return the favor. I'm confident that you have the strength and the will to fight this. We're here for you, and I'm sure you'll beat this.
                    "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
                    11.22.06 -Dx the day before Thanksgiving
                    12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

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                    • #11
                      Mark --
                      I echo everything the others have said. You will be in our prayers.

                      I did find the links djmac posted very interesting. I guess it is as my urologist told me after my surgery - seminoma is curable, but we need to be vigilant because it can pop up much later and in some odd places.

                      I know you have been through a lot already, but try to stay positive. You will beat this.
                      Right I/O 4/17/06, Seminoma Stage Ib
                      RT (15 days) completed 6/1/06
                      All clear as of 5/8/09

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                      • #12
                        Mark,
                        Is this an embryomal recurrance or don't they know yet? I cannot get this out of my mind and am really pissed that you need to deal with this again!! But notfurnuthin', we grow 'em tough here in Jersey and you are a proven warrior! Go kick cancer's a*s. I'm praying for strength for you and your family and please know we are here for you!!
                        Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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                        • #13
                          Hi Karen,
                          They biopsied the liver and found more Seminoma. There is new growth on the last met in the chest. Presumed Seminoma at this point. The Pancreas mass is still undetermined, no biopsy as of yet (djmac sent out two good articles with a couple of reasonable possibilities). Fox Chase should tell me more on Tuesday. That's where I'm at so far. I'll be shaving my head for battle some time next week.
                          (Old Japanese Proverb):
                          "Fall down 7 times. Get back up 8"
                          All of you are special and treasured. You keep me going. Thanks!
                          I Love My Pack!

                          sigpic

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                          • #14
                            Gee, Karen, you always know the right things to say! Fox Chase is in my neck of the woods and has an excellent reputation. Mark, stay positive. Dianne
                            Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
                            Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

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                            • #15
                              Dianne you All know the right things to say . I'm just horribly typing impaired. My fingers need a running start before they hit the keyboard .
                              I Love My Pack!

                              sigpic

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