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  • Like night and day

    Today I had an appointment with the new med onc at the Farber. Wow. What a difference. My new doc was extremely attentive, paid attention to my concerns, did a thorough physical exam, and gave me a well laid out timetable for labs and exams. He pretty much said, as others did, that the case was found early enough to warrant surveillance. He did stress out that he will have a tight leash on me for a couple of reasons: 1) the seminoma was multifocal, which apparently is indeed rare; and 2) my original U/S revealed a 3 mm mass in the remaining one, so I will be having ultrasounds incorporated into the surveillance schedule. Bottom line, the doc change was worth it.

    The plan was laid out within reason, and I had no objections to it. So I guess that now, I'm officially on surveillance keeping in mind that I haven't heard back from the Sloan second opinion (my buddy was presenting to Sheinfeld today, so it could be several more hours till I hear back). Situations may change, but it is what it is, and I'll take it as it comes.

    I did have one more reason to celebrate. I found out today that my first "first author" research paper was accepted for publication today. It'll be my first contribution to the world of novel cancer therapeutics. It's a tiny step, but that's really how all of our treatments have come to fruition.

    Yes, it's time to open the celebratory Scotch. Best to all,
    "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
    11.22.06 -Dx the day before Thanksgiving
    12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.


  • #2
    Hey Fed,
    Sounds like you've had a great day- Between being published and happy with the new doctor- enjoy that scotch!
    I have a reason to celebrate today too- today was my final day of chemo!
    I have a nurse coming out Sat and Sunday for fluids- than Neulasta on Monday at PENN, then God willing I'll be done!
    My CT Scan is being scheduled for late January.

    Enjoy your weekeng Fed, but be prepared- Dr. Sheindfeld will probably be more aggressive on your treatments.
    Joe
    Stage III. Embryonal Carcinoma, Mature Teratoma, Choriocarcinoma.
    Diagnosed 4/19/06, Right I/O 4/21/06, RPLND 6/21/06, 4xEP, All Clear 1/29/07, RPLND Incisional Hernia Surgery 11/24/08, Hydrocelectomy and Vasectomy 11/23/09.

    Please see a physician for medical advice!

    My 2013 LiveSTRONG Site
    The 2013 Already Balders

    Comment


    • #3
      Hey Fed and Joe,

      I raise my glass of vodka to both of you!!! It's always
      so nice to hear good news here!!

      Diane

      Comment


      • #4
        Welcome to the surveillance ranks, Fed, and congratulations on being published!

        I'm glad things got off to a good start with your new oncologist. A good relationship and sense of trust is so important.
        Scott, [email protected]
        right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


        Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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        • #5
          Good to see you have a good doctor now.

          My tumour was multifocal aswell, dont know what that has to do with anything?
          Aged 23 ;; 09/06 left I/O ;; Markers normal ;; 100% Seminoma Stage 1. ;; 10x8x16mm & 7x7x8mm ;; rete testis invasion. ;; no vascular invasion. ;; surveillance. ;; HRT.

          Comment


          • #6
            Hey Fed, I asked my oncologist during my 1st apointment about my pathology wich is simular to yours, I had 2 foci as you can see in my signiture, I always asumed multifocal ment 2 difrent consistancies of solidness in an individual tumour, although now I think it means more then 1 primary??

            I asked him about heterogenouses etc, he said its irrelevant, he is a directory of medical oncology so I trust him although his specialty is brain tumours and breast cancer.

            He said necrosis is due to the tumour not getting enough blood, they try make there own blood supply, necrotic tumour = dead tumour.

            What happens is we would of had Carcinoma in situ, wich is precancerous cells, then they turn into tumours wich can take even 10 years, thats why you get more then 1 primary.

            I dont see how this increases risk of re-ocurrance.
            Aged 23 ;; 09/06 left I/O ;; Markers normal ;; 100% Seminoma Stage 1. ;; 10x8x16mm & 7x7x8mm ;; rete testis invasion. ;; no vascular invasion. ;; surveillance. ;; HRT.

            Comment


            • #7
              Fed,
              Great news on both, you must be so happy. Good for you.
              Krista
              Brother Diag. 10/05 Non-Sem.
              Right I/O 11/05
              Surv
              4XBEP 8/06
              RPLND 12/06
              2X VIP 1/22/07
              Only completed 1 Rd.

              Comment


              • #8
                Originally posted by Fed
                Today I had an appointment with the new med onc at the Farber. Wow. What a difference. My new doc was extremely attentive, paid attention to my concerns, did a thorough physical exam, and gave me a well laid out timetable for labs and exams. He pretty much said, as others did, that the case was found early enough to warrant surveillance. He did stress out that he will have a tight leash on me for a couple of reasons: 1) the seminoma was multifocal, which apparently is indeed rare; and 2) my original U/S revealed a 3 mm mass in the remaining one, so I will be having ultrasounds incorporated into the surveillance schedule. Bottom line, the doc change was worth it.

                The plan was laid out within reason, and I had no objections to it. So I guess that now, I'm officially on surveillance keeping in mind that I haven't heard back from the Sloan second opinion (my buddy was presenting to Sheinfeld today, so it could be several more hours till I hear back). Situations may change, but it is what it is, and I'll take it as it comes.

                I did have one more reason to celebrate. I found out today that my first "first author" research paper was accepted for publication today. It'll be my first contribution to the world of novel cancer therapeutics. It's a tiny step, but that's really how all of our treatments have come to fruition.

                Yes, it's time to open the celebratory Scotch. Best to all,
                Hey Fed, I am glad to hear you found a new doctor that is on his toes and you feel confidant in. That is so important for anyone that is dealing with something as scary as cancer. Wonderful ..
                I don't drink scotch, but CHEERS!

                Son Anthony DX 12/11/06
                L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
                4XEP 1/29-4/6/ 07
                AFP started increasing3 wks later
                Residual abdominal mass found on CT
                RPLND 6/8/07
                Cancer in pathology-
                80% mature teratoma, 20% Yolk Sac. --
                No adjuvent chemo and
                AFP normalised

                July 22, 2010 ---- 3 years all clear!

                Comment


                • #9
                  Originally posted by Already Bald
                  I have a reason to celebrate today too- today was my final day of chemo!
                  This is great, Joe! See? You could totally pull it off. Congratulations on such a great accomplishment! Best of luck with the recovery,
                  "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
                  11.22.06 -Dx the day before Thanksgiving
                  12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

                  Comment


                  • #10
                    This is a great day!

                    Fed and Joe -- I will raise a special pint to both of you this evening, it's truly a day for celebration for you both!!

                    I was feeling "irrational amounts of exuberance" today, don't know why, so it's good to have an outlet to direct it to ... !!

                    Fed, I'm sure you perhaps wrote about this in another thread ... but I'd love to hear more about exactly what it is that you're getting published?

                    Congrats again!
                    Scott
                    Scott
                    Right I/O 8/1/06
                    Stage I Seminoma -pT2 (Size 4.2 x 3 x 3 cm) w/vascular invasion
                    Adjuvant Therapy: RT 9/18/06 - 10/5/06
                    All Clear #1: 5/15/07
                    New CD available on CD Baby and iTunes! (Visit michellehotaling.com for more info)

                    Comment


                    • #11
                      They concur!

                      Got the call from the pathology department at Sloan concurring with the original assessment from BWH. So, surveillance it is! I am comforted by the fact that the first "formal" follow-up is in 4 weeks. Besides, I got other things cooking right now which should keep me distracted.

                      Originally posted by QuantumSheep
                      Fed, I'm sure you perhaps wrote about this in another thread ... but I'd love to hear more about exactly what it is that you're getting published?
                      My postdoc work is finally getting out. I've been doing cancer chemical biology; our lab designs and makes synthetic molecules that we then use to study cancer processes. We're working on controlling the pathway that makes cancer cells unaware that they are supposed to stop dividing. There's a tiny blurb about it in my first thread. Studying this forces me to understand how these renegade cells operate at the molecular level. Kind of ironic that they've turned into my personal enemy.
                      "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
                      11.22.06 -Dx the day before Thanksgiving
                      12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

                      Comment


                      • #12
                        Originally posted by Fed
                        Got the call from the pathology department at Sloan concurring with the original assessment from BWH. So, surveillance it is!
                        Great news, Fed!
                        Scott, [email protected]
                        right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


                        Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

                        Comment


                        • #13
                          Originally posted by Fed
                          Got the call from the pathology department at Sloan concurring with the original assessment from BWH. So, surveillance it is! I am comforted by the fact that the first "formal" follow-up is in 4 weeks. Besides, I got other things cooking right now which should keep me distracted.



                          My postdoc work is finally getting out. I've been doing cancer chemical biology; our lab designs and makes synthetic molecules that we then use to study cancer processes. We're working on controlling the pathway that makes cancer cells unaware that they are supposed to stop dividing. There's a tiny blurb about it in my first thread. Studying this forces me to understand how these renegade cells operate at the molecular level. Kind of ironic that they've turned into my personal enemy.
                          Fed Congrats on your publication, and may you have many, many more! Also, congrats on your path forward with surveillance. My first CT is on the 29th ( a little bit longer than 3.5 months) so I'll let you all know how all goes!

                          djm

                          PS Did you get to talk with Dr. Sheinfeld?
                          Detected mass 10-6-06, Radical left I/O 10-10-06, Stage I seminoma, 1.5 cm primary, No LV invasion, No Rete Testis Invasion... Currently on Surveillance.

                          Comment


                          • #14
                            Originally posted by djmac
                            My first CT is on the 29th (a little bit longer than 3.5 months) so I'll let you all know how all goes!
                            I'll be tuned in!
                            Originally posted by djmac
                            PS Did you get to talk with Dr. Sheinfeld?
                            It wasn't necessary. The pathologist actually called me at work to give me the rundown, answering every single question I posed very thoroughly. This is what led me to switch to surveillance. I haven't heard from my friend yet (I'm sure he's busy as hell), but I would assume that if there was something of concern, I would have heard something already.

                            Added 01/21: Heard from my buddy yesterday. He and Sheinfeld arrived at the same assessment as everyone else, so the surveillance decision stands.
                            Last edited by Fed; 01-21-07, 02:44 AM. Reason: Update not warranting a separate post
                            "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
                            11.22.06 -Dx the day before Thanksgiving
                            12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

                            Comment


                            • #15
                              Originally posted by Fed
                              This is great, Joe! See? You could totally pull it off. Congratulations on such a great accomplishment! Best of luck with the recovery,
                              Fed,
                              Thanks for your encouragement! The recovery is going slowly, but I'm getting there. For some reason yesterday was better than today. I go for my post chemo CT on Friday 1/26, then I see Dr. Vaughn at PENN on Monday.
                              I will post an update.

                              Congratulations to you Fed on choosing surveillance, I truly hope that you are already cured.
                              Kudos to you for having such an indepth conversation with the Pathologist- too many patients don't even get a copy of the report!
                              Keep writing.
                              Joe
                              Stage III. Embryonal Carcinoma, Mature Teratoma, Choriocarcinoma.
                              Diagnosed 4/19/06, Right I/O 4/21/06, RPLND 6/21/06, 4xEP, All Clear 1/29/07, RPLND Incisional Hernia Surgery 11/24/08, Hydrocelectomy and Vasectomy 11/23/09.

                              Please see a physician for medical advice!

                              My 2013 LiveSTRONG Site
                              The 2013 Already Balders

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