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  • We have chemo!

    We finally.....have chemo set up for January 29th.

    My husband will be in next Thursday with the oncologist for a whole battery of tests and information. I should be able to join him for all of it.

    He will also be going in Saturday the 27th for his Neulasta shot and will have a port put in sometime that weekend as well.

    I heard no mention of how many rounds, but then again, they would have to do another chest x-ray and CT before they knew if they needed to up it to 4xBEP.

    So that is the plan for now. I know we will know even more by this time next week.

    Forward we go!

    Becki

    Husband Right I/O 09/06
    -70% Embryonal Carcinoma
    -20% Teratoma
    -10% Yolk Sac Tumor
    11/06- lymph nodes 1.8x1.4 and 1.9x1.4
    12/06-PET Scan confirms activity in lymph nodes, lymph nodes 2.2x2.2 and 2.4x2.3
    1/07-Start 3xBEP
    4/07-PET clear, lymph nodes down to 1.1x0.5 and 1.8x1.0
    6/07-lymph nodes 1.2x1.0 and 1.9x.9
    8/07-lymph nodes 1.1x1.0 and 2.0x1.2
    10/07-lymph nodes 2.0x1.5 and 2.7x1.8
    11/07- PostChemo LRPLND-found burnt out teratoma
    11/09-Enlarging lymph node 1.2 cm near renal veins

  • #2
    Well that's a relief! (Who ever thought anyone would say that about having chemo?) Keep us posted, Becki.
    Scott
    right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

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    • #3
      That's a relief. You did really well by your husband, congratulations and good luck.
      Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

      Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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      • #4
        I have to first correct something that I misunderstood. The Nuelesta will be given the Saturday AFTER chemo, not before.

        No I have no idea what stage it is, I have no idea if chest x-rays or CT's are going to be done. I have no idea if Dr. Einhorn wrote a written report. I have no idea if Dr. Einhorn will be consulted on this through out. Honestly, I guess I don't even know for 100% certaint that he has been consulted, but I can't imagine someone being that untruthful. Yes we are still with the same oncologist, once again my husband has complete faith in him. Dr. Glode is NOT covered by our insurance.

        I will do my best to cover all the questions when I am there next week. I try calling and having test results and such sent to me and they never do.

        I am still frustrated by all of it, but I will most likely have to wait until next week to find anything out.

        Thank you for all the encouragment, I'm sorry I don't have more answers.

        Becki

        Husband Right I/O 09/06
        -70% Embryonal Carcinoma
        -20% Teratoma
        -10% Yolk Sac Tumor
        11/06- lymph nodes 1.8x1.4 and 1.9x1.4
        12/06-PET Scan confirms activity in lymph nodes, lymph nodes 2.2x2.2 and 2.4x2.3
        1/07-Start 3xBEP
        4/07-PET clear, lymph nodes down to 1.1x0.5 and 1.8x1.0
        6/07-lymph nodes 1.2x1.0 and 1.9x.9
        8/07-lymph nodes 1.1x1.0 and 2.0x1.2
        10/07-lymph nodes 2.0x1.5 and 2.7x1.8
        11/07- PostChemo LRPLND-found burnt out teratoma
        11/09-Enlarging lymph node 1.2 cm near renal veins

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        • #5
          Doctor Einhorns recomendations

          Becki,

          Just FYI. If you call Dr. Einhorns office and ask for the dictation they will fax it to you. We have done it many times in order to insure my husbands local oncologists ae doing EXACTLY what he says. It is really easy. Just give them a number to fax it to or ask for it to be mailed. I have a fax machine here if they will only do it that way and would be happy to mail it to you. Good luck!

          Erin
          Erin (caregiver)
          Hubby Stage IIIC Diagnosed 10/27/05,
          HCG 512,000 AFP 636 LDH 1012, I&O 10/28/05
          1 x EP, 2 x VIP, then 2 x BEP (10/31/05-1/06)
          Sterotactic Radiation to two brain tumors 12/05
          Sterotactic Radiation to new brain tumor 4/4/06
          Whole brain radiation 4/15 -5/18/06
          Tandem High dose chemo and stem cell 6/5/06-7/31/06 - markers normalized
          RPLND with 9cm x 24 cm abd mass removal 9/14/06 - Only teratoma and necrotic tissue removed
          Currently on surveillance

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          • #6
            Awsome Erin!

            Thank you so much.

            Becki

            Husband Right I/O 09/06
            -70% Embryonal Carcinoma
            -20% Teratoma
            -10% Yolk Sac Tumor
            11/06- lymph nodes 1.8x1.4 and 1.9x1.4
            12/06-PET Scan confirms activity in lymph nodes, lymph nodes 2.2x2.2 and 2.4x2.3
            1/07-Start 3xBEP
            4/07-PET clear, lymph nodes down to 1.1x0.5 and 1.8x1.0
            6/07-lymph nodes 1.2x1.0 and 1.9x.9
            8/07-lymph nodes 1.1x1.0 and 2.0x1.2
            10/07-lymph nodes 2.0x1.5 and 2.7x1.8
            11/07- PostChemo LRPLND-found burnt out teratoma
            11/09-Enlarging lymph node 1.2 cm near renal veins

            Comment


            • #7
              Never mind. I guess I missed something.

              The not nice lady on the telephone, before she could even help me informed me she was having computer problems, left me on the phone while she yelled at someone to ask them for a network address and then yelled at them when it directed her to a free porn sight.

              Lovely way to do customer service.

              After that she asked me if I wanted the notes from the most recent appointment. I let her know he never had an appointment and that Dr Einhorn had done a phone consultation with our oncologist and I was wanting the notes/dictation from that.

              She then laughed at me and said "do you realize how many phone consultations Dr. Einhorn does ever day, he would never have enough time to have all of them dictated". She then went on to inform me that unless my husband was going to be seen by Dr. Einhorn there never would have been a dictation done.

              I honestly was almost in tears by the end of the conversation. I have never had someone make me feel so stupid in my entire life.

              What an experiance.

              Guess I will try with our oncologist next week.

              Becki

              Husband Right I/O 09/06
              -70% Embryonal Carcinoma
              -20% Teratoma
              -10% Yolk Sac Tumor
              11/06- lymph nodes 1.8x1.4 and 1.9x1.4
              12/06-PET Scan confirms activity in lymph nodes, lymph nodes 2.2x2.2 and 2.4x2.3
              1/07-Start 3xBEP
              4/07-PET clear, lymph nodes down to 1.1x0.5 and 1.8x1.0
              6/07-lymph nodes 1.2x1.0 and 1.9x.9
              8/07-lymph nodes 1.1x1.0 and 2.0x1.2
              10/07-lymph nodes 2.0x1.5 and 2.7x1.8
              11/07- PostChemo LRPLND-found burnt out teratoma
              11/09-Enlarging lymph node 1.2 cm near renal veins

              Comment


              • #8
                I personally work with cardiac surgeons who are considered experts. I have witnessed many phone consultations with other doctors at other institutions, and they NEVER dictate notes afterwards. These experts just don't have the time for that. Unless Becki's husband had an appointment with Dr. Einhorn there will be no evidence of a consultation, and Dr. Einhorn himself may forget all about it. If someone called our office requesting what Becki did they would get the EXACT response she described in her post.

                Robert I understand your good intentions, but you are now accusing Becki of making up phone conversations. Do you really think this will encourage her to call you? Your posts are becoming demeaning, and patronizing, and I for one am tired of reading them. I would imagine Becki is too.

                We all wish the best for them both and I hope they continue to post on this forum, but I imagine it is becoming less of a positive experience for them.

                Sincerely, Robin

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                • #9
                  We're seeing signs of communication problems left and right on this one. Each of us is always aware of only a portion of the whole picture, so let's be careful.
                  Scott
                  right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

                  Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

                  Comment


                  • #10
                    I have been following this post since the start and am ready to
                    strangle the doctor!!!

                    When Brian (son) discovered "something not right" with his testicle,
                    he saw his primary physician the next day, had an ultra sound the
                    day after, saw the urologist the next day and had the testicle removed
                    the day after that. Six days after the I/O, he got the path results,
                    was advised to get an RPLND, and was referred to an oncologist, who
                    he saw the next week! Four weeks later, he had the RPLND, and
                    six weeks after that started his chemo. Every doctor had a sense of
                    urgency about it and Brian was in the good risk category. I don't
                    think Brian's experience was unusual. He was advised to have the
                    RPLND done at Indiana, and called IU to talk with them. He was
                    immediately transferred to Dr. E's personal scheduler, who listened
                    to him and advised him to call back within a specified amount of
                    time and he would be scheduled in. He ended up having the
                    surgery at Hospital of Univ. of Penna, because it is close
                    to home and we heard great things about the surgeon, but when he
                    called IU, he was treated as if his case was as important as
                    any they've had.

                    I understand Robert's complete frustration with this. I feel it too,
                    and am not involved at all. I don't know what to think about this
                    doctor, if Becky wasn't even told what stage the cancer is.

                    Becky, my best wishes are with you and I hope your husband gets
                    the proper treatment soon.

                    Diane

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