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He's at Sloan in New York right now. I met him when I was there for my RPLND in November. He's 20 years old, from Phoenix, and he and his family have moved from Phoenix to NYC to get his treatments. Here's what I know of his story:
He was diagnosed in July (misdiagnosed many times before that). Mixed germ cell cancer that has metzed to lungs and brain. Been through radiation and 4x BEP before being diagnosed resistent.
He has Not had the I/O, nor the RPLND.
His hCG was 4000 and they need it below 2 before they can do either surgery.
Getting ready to start round 4 of TIP....Here's the weird stuff:
2 weeks ago, between 3rd and 4th round of TIP, hCG went from 20 to 40 to 80 to 85. Drs. sat with him and family and said that he must be resistent to this too, and that rising counts during chemo are a brutal sign. Told him to get affairs in order, that he was terminal.
He went in last Thursday and they drew his hCG. It had dropped to 13! The best docs in the world agree that there is no medical explanaion for this. As of yesterday his hCG is at 8! Is this a miracle?
Now he's sheduled to go in Monday for Round 4 of TIP.
All this boy wants in the world is to have the RPLND and I/O. He's fought harder and longer than anyone should have to. The chemo has wrecked him physically and emotionally, but he keeps finding a way to get up and do it again.
Danny is a huge Lance Armstrong fan and I have tried every avenue I can think of to try and get him 5 minutes on the phone with Lance. Went to the Mgmt company, and actually met the LAF dietician at a party and asked for her help as well. Nothing yet, but if any of you know of anything else I can try, please tell me.
This boy is 3000 miles from home. His family has stopped everything in their lives to fight with him and every time there has been progress it has been immediately followed by a setback. This new hCG count could be a real light at the end of the tunnel for him.
Please share your thoughts or ideas on this one. My wife posts here often (Margaret) - Hi Honey...she knows more detail about Danny than I can post here.
Please pray for him. Please share your experience if it has been similar. Please help this boy Fight. Danny..if you find this post...Don't Quit!
He was diagnosed in July (misdiagnosed many times before that). Mixed germ cell cancer that has metzed to lungs and brain. Been through radiation and 4x BEP before being diagnosed resistent.
He has Not had the I/O, nor the RPLND.
His hCG was 4000 and they need it below 2 before they can do either surgery.
Getting ready to start round 4 of TIP....Here's the weird stuff:
2 weeks ago, between 3rd and 4th round of TIP, hCG went from 20 to 40 to 80 to 85. Drs. sat with him and family and said that he must be resistent to this too, and that rising counts during chemo are a brutal sign. Told him to get affairs in order, that he was terminal.
He went in last Thursday and they drew his hCG. It had dropped to 13! The best docs in the world agree that there is no medical explanaion for this. As of yesterday his hCG is at 8! Is this a miracle?
Now he's sheduled to go in Monday for Round 4 of TIP.
All this boy wants in the world is to have the RPLND and I/O. He's fought harder and longer than anyone should have to. The chemo has wrecked him physically and emotionally, but he keeps finding a way to get up and do it again.
Danny is a huge Lance Armstrong fan and I have tried every avenue I can think of to try and get him 5 minutes on the phone with Lance. Went to the Mgmt company, and actually met the LAF dietician at a party and asked for her help as well. Nothing yet, but if any of you know of anything else I can try, please tell me.
This boy is 3000 miles from home. His family has stopped everything in their lives to fight with him and every time there has been progress it has been immediately followed by a setback. This new hCG count could be a real light at the end of the tunnel for him.
Please share your thoughts or ideas on this one. My wife posts here often (Margaret) - Hi Honey...she knows more detail about Danny than I can post here.
Please pray for him. Please share your experience if it has been similar. Please help this boy Fight. Danny..if you find this post...Don't Quit!
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