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  • Weight loss

    I am not even sure if it is of concern, but I thought I would ask you all.

    My husband managed to drop 15 pounds in 10 days. Is this something we need to mention to the Dr?

    We are in the middle of round two of 3xBEP, he didn't loose any weight during round one and it was strange for me to hear him tell me this morning he had dropped 15 pounds since the last Dr's visit.

    You guys are such a great wealth of information, so thanks for letting me pick your brains!

    Becki

    Husband Right I/O 09/06
    -70% Embryonal Carcinoma
    -20% Teratoma
    -10% Yolk Sac Tumor
    11/06- lymph nodes 1.8x1.4 and 1.9x1.4
    12/06-PET Scan confirms activity in lymph nodes, lymph nodes 2.2x2.2 and 2.4x2.3
    1/07-Start 3xBEP
    4/07-PET clear, lymph nodes down to 1.1x0.5 and 1.8x1.0
    6/07-lymph nodes 1.2x1.0 and 1.9x.9
    8/07-lymph nodes 1.1x1.0 and 2.0x1.2
    10/07-lymph nodes 2.0x1.5 and 2.7x1.8
    11/07- PostChemo LRPLND-found burnt out teratoma
    11/09-Enlarging lymph node 1.2 cm near renal veins

  • #2
    My sons oncologist weighs him at every appointment, but a sudden loss of 15 lbs is definitely something I would mention if it were my son.

    A lot of people lose weight when they are on chemo, but I would still mention it. Is he eating? Even more important, is he drinking a lot of fluid?

    My son eats like a horse now .. he has always been very tall and lean, and wanted to gain weight but never could. He has gained about 7 lbs. since he started chemo. Two more rounds to go though, so who knows what is to come.

    Son Anthony DX 12/11/06
    L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
    4XEP 1/29-4/6/ 07
    AFP started increasing3 wks later
    Residual abdominal mass found on CT
    RPLND 6/8/07
    Cancer in pathology-
    80% mature teratoma, 20% Yolk Sac. --
    No adjuvent chemo and
    AFP normalised

    July 22, 2010 ---- 3 years all clear!

    Comment


    • #3
      I wouldn't lose sleep over the weight loss but mention it to the doctor at your next visit. As Becki mentioned the doctor is probably weighing him and will spot it anyway. Has he been eating well?
      Last edited by dadmo; 03-04-07, 05:22 PM.
      Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

      Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

      Comment


      • #4
        Originally posted by dadmo
        I wouldn't lose sleep over the weight loss but mention it to the doctor at your next visit. As Becki mentioned the doctor is probably weighing him and will spot it anyway. Has he been eating well?

        Tammy <<<

        How have you been dadmo
        Last edited by dadmo; 03-04-07, 05:22 PM.

        Son Anthony DX 12/11/06
        L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
        4XEP 1/29-4/6/ 07
        AFP started increasing3 wks later
        Residual abdominal mass found on CT
        RPLND 6/8/07
        Cancer in pathology-
        80% mature teratoma, 20% Yolk Sac. --
        No adjuvent chemo and
        AFP normalised

        July 22, 2010 ---- 3 years all clear!

        Comment


        • #5
          Eating hasn't changed since the first round, in fact I would say it is better now then it was the first round.

          Of course my husband thinks I am over-reacting....oh well!

          Even if he won't mention it to the nurses on Tuesday when he goes for Bleo, he has a appointment with the oncologist a week from tomorrow (Monday). So it will be seen then at least.

          Robert, thank you for the shake suggestion, I will look into if my husband wants something to increase his caloric intake.

          Becki

          Husband Right I/O 09/06
          -70% Embryonal Carcinoma
          -20% Teratoma
          -10% Yolk Sac Tumor
          11/06- lymph nodes 1.8x1.4 and 1.9x1.4
          12/06-PET Scan confirms activity in lymph nodes, lymph nodes 2.2x2.2 and 2.4x2.3
          1/07-Start 3xBEP
          4/07-PET clear, lymph nodes down to 1.1x0.5 and 1.8x1.0
          6/07-lymph nodes 1.2x1.0 and 1.9x.9
          8/07-lymph nodes 1.1x1.0 and 2.0x1.2
          10/07-lymph nodes 2.0x1.5 and 2.7x1.8
          11/07- PostChemo LRPLND-found burnt out teratoma
          11/09-Enlarging lymph node 1.2 cm near renal veins

          Comment


          • #6
            As long as he is eating well, i would also not be too concerned. One interesting thing to note, is that post chemo people having a higher rate of weight gain through out their lives. I would have guessed that weight loss would be more of a concern, but it is not. Now that my husband is finished with chemo, weight gain is something they said he will have to work against the rest of his life.

            Good luck,

            Margaret
            Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
            Current DVT
            Current testosterone replacement therapy, Testim.

            "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

            Comment


            • #7
              Originally posted by mercyriver
              I am not even sure if it is of concern, but I thought I would ask you all.

              My husband managed to drop 15 pounds in 10 days. Is this something we need to mention to the Dr?

              We are in the middle of round two of 3xBEP, he didn't loose any weight during round one and it was strange for me to hear him tell me this morning he had dropped 15 pounds since the last Dr's visit.

              You guys are such a great wealth of information, so thanks for letting me pick your brains!

              Becki
              Becki,
              I think it is very important to share this with your doctor.
              The amount of chemo each patiens is given is a strict calculation based on weight and height. Tell your oncologist so the prescription levels can be adjusted.
              Joe
              Stage III. Embryonal Carcinoma, Mature Teratoma, Choriocarcinoma.
              Diagnosed 4/19/06, Right I/O 4/21/06, RPLND 6/21/06, 4xEP, All Clear 1/29/07, RPLND Incisional Hernia Surgery 11/24/08, Hydrocelectomy and Vasectomy 11/23/09.

              Please see a physician for medical advice!

              My 2013 LiveSTRONG Site
              The 2013 Already Balders

              Comment


              • #8
                Thanks Joe,

                That is exactly the kind of information I was looking for....that is something that will motivate my husband to be honest with the Dr's. Last thing he would want is to much chemo...



                Becki

                Husband Right I/O 09/06
                -70% Embryonal Carcinoma
                -20% Teratoma
                -10% Yolk Sac Tumor
                11/06- lymph nodes 1.8x1.4 and 1.9x1.4
                12/06-PET Scan confirms activity in lymph nodes, lymph nodes 2.2x2.2 and 2.4x2.3
                1/07-Start 3xBEP
                4/07-PET clear, lymph nodes down to 1.1x0.5 and 1.8x1.0
                6/07-lymph nodes 1.2x1.0 and 1.9x.9
                8/07-lymph nodes 1.1x1.0 and 2.0x1.2
                10/07-lymph nodes 2.0x1.5 and 2.7x1.8
                11/07- PostChemo LRPLND-found burnt out teratoma
                11/09-Enlarging lymph node 1.2 cm near renal veins

                Comment


                • #9
                  Originally posted by Already Bald
                  Becki,
                  I think it is very important to share this with your doctor.
                  The amount of chemo each patiens is given is a strict calculation based on weight and height. Tell your oncologist so the prescription levels can be adjusted.
                  Joe
                  Good call Joe! I would be concerned if my son suddenly dropped that much weight , but I didn't even think about the weight and chemo dose aspect.

                  Son Anthony DX 12/11/06
                  L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
                  4XEP 1/29-4/6/ 07
                  AFP started increasing3 wks later
                  Residual abdominal mass found on CT
                  RPLND 6/8/07
                  Cancer in pathology-
                  80% mature teratoma, 20% Yolk Sac. --
                  No adjuvent chemo and
                  AFP normalised

                  July 22, 2010 ---- 3 years all clear!

                  Comment


                  • #10
                    I have to agree. That's a great catch on Joe's part.
                    Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                    Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

                    Comment


                    • #11
                      Honestly they could be doing that, but my husband has a hard time sharing much of anything regarding chemo with me. And with four kids to take care of during the day, I only get a chance to go with him on the days he has an actual Dr's appointment and then I only get to stay for the appointment, not for his chemo session. Thankfully his family has been coming and sitting with him two out of the five days.

                      He still seems very down about all of this. As to be expected....I just kind of wish sometimes he had the "we're going to kick this in the booty" type of an outlook. Right now he is just mad and a bit depressed about it all. Even his sense of humor seems to have waned a bit.

                      Can't wait until we are done with all this!!!!!

                      Becki

                      Husband Right I/O 09/06
                      -70% Embryonal Carcinoma
                      -20% Teratoma
                      -10% Yolk Sac Tumor
                      11/06- lymph nodes 1.8x1.4 and 1.9x1.4
                      12/06-PET Scan confirms activity in lymph nodes, lymph nodes 2.2x2.2 and 2.4x2.3
                      1/07-Start 3xBEP
                      4/07-PET clear, lymph nodes down to 1.1x0.5 and 1.8x1.0
                      6/07-lymph nodes 1.2x1.0 and 1.9x.9
                      8/07-lymph nodes 1.1x1.0 and 2.0x1.2
                      10/07-lymph nodes 2.0x1.5 and 2.7x1.8
                      11/07- PostChemo LRPLND-found burnt out teratoma
                      11/09-Enlarging lymph node 1.2 cm near renal veins

                      Comment


                      • #12
                        Attitude

                        My wife and I went through very similar emotions as you and your husbnd. She wanted to get excited and "kick cancer's ass". I just wanted to get through another day and another treatment.

                        Please give your hubby a wide berth here, as the steroids combined with the regular physical and emotional burden are definitely attitude changing.

                        Going to treatment: being committed to beating this disease is enough, the patient doesn't have to be excited or "up" about it.

                        The man you married will be back soon, and he'll have have a whole new appreciation for you and the kids. I certainly felt that about my wife and son.
                        Stage III Non-Seminoma- 7/11/06
                        Right I/O 7/12/06
                        Completed 4x BEP 11/06
                        Bi-Lateral RPLND (Dr. Shenifeld)- 11/27/06
                        Surveillance since then

                        When you think about it, what other choice is there but to hope? We have two options, medically and emotionally: give up, or Fight Like Hell.
                        Lance Armstrong.

                        Comment


                        • #13
                          I just wanted to assure people, by no means am I jumping around being super positive about beating this.

                          I've learned after 6 years of being married it is easiest to match my husbands emotions. It doesn't do any good for anyone most of the time to be overly positive, because it only comes off as being a fake emotion, usally brought on by stress and uncertinty.

                          Plus if my husband is down he really does not like it if people are all walking around with fake smiles and attitudes saying everything will be alright. I just provide a gentle hug and verbal assurance that it will get better.

                          So like I said, I don't try to overwhelm my husband by being extreme in any direction, I just do my best to match his emotion and add a little support to it as best I can.

                          Becki

                          Husband Right I/O 09/06
                          -70% Embryonal Carcinoma
                          -20% Teratoma
                          -10% Yolk Sac Tumor
                          11/06- lymph nodes 1.8x1.4 and 1.9x1.4
                          12/06-PET Scan confirms activity in lymph nodes, lymph nodes 2.2x2.2 and 2.4x2.3
                          1/07-Start 3xBEP
                          4/07-PET clear, lymph nodes down to 1.1x0.5 and 1.8x1.0
                          6/07-lymph nodes 1.2x1.0 and 1.9x.9
                          8/07-lymph nodes 1.1x1.0 and 2.0x1.2
                          10/07-lymph nodes 2.0x1.5 and 2.7x1.8
                          11/07- PostChemo LRPLND-found burnt out teratoma
                          11/09-Enlarging lymph node 1.2 cm near renal veins

                          Comment

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