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here is my thread...very similar to yours...I chose surveillance...had a recurrence, then chemo...but given the stats I'd still choose surveillance again...
the single biggest reason....odds are with you that you will be fine...if you do have a recurrence, during your MONTHLY followups....your cure rate does not diminish....
that was my decision making metric - I asked einhorn and benedetto when considering RPLND or 2 rounds BEP post orch. - if I wait, have a recurrence and need 3BEP, will my cure rate go down...then said no...so I chose surveillance.
also important for me....I'm not a worrier...so I knew that I could approach it with the attitude whatever happens, happens, and I will deal with it then if I need to.
einhorn also indicated that yes, the extra cycle of chemo is more toxic on paper...but they do not have evidence that there is any significant problems associated with the extra round of chemo...and I felts better during round 3 than round 2...which may be an anomoly or maybe I was just excited as it was the final round...
PM me if you want to discuss in more detail via phone.
You are in a great risk category by the way...most comforting to me was when einhorn said, rplnd, surveillance or 2 rounds chemo as preventative...all are fine choices and you will be fine....it really took the pressure off.
pete
the single biggest reason....odds are with you that you will be fine...if you do have a recurrence, during your MONTHLY followups....your cure rate does not diminish....
that was my decision making metric - I asked einhorn and benedetto when considering RPLND or 2 rounds BEP post orch. - if I wait, have a recurrence and need 3BEP, will my cure rate go down...then said no...so I chose surveillance.
also important for me....I'm not a worrier...so I knew that I could approach it with the attitude whatever happens, happens, and I will deal with it then if I need to.
einhorn also indicated that yes, the extra cycle of chemo is more toxic on paper...but they do not have evidence that there is any significant problems associated with the extra round of chemo...and I felts better during round 3 than round 2...which may be an anomoly or maybe I was just excited as it was the final round...
PM me if you want to discuss in more detail via phone.
You are in a great risk category by the way...most comforting to me was when einhorn said, rplnd, surveillance or 2 rounds chemo as preventative...all are fine choices and you will be fine....it really took the pressure off.
pete
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