Tweet
Hi everyone, I think the last time I visited was early in the year. Aaron had a CT on April 6, 2007 which shows a new 3cm ovoid lesion/mass on the Aorta. Would this be how a recurrence would manifest itself? Anyone know of anything similar? Just to review, Aaron has autism with speech and social delays although he is high functioning. He has a high pain threshold. At 21, he had a CT scan April 5,2006 for r groin pain, 20 lb. weight loss, and constipation. One oncologist thought he had burkitts lymphoma and another oncologist thought lymphoma. Had laproscopic bx mid April 06 & bx came back with Germ Cell Tumor. Diagnosis changed to R testicular cancer.. He had R I/O May4, 2006 with placement bil. kidney stints. He received bld transfusion and was started immediately in hosp. on chemo after I/O for nonseminoma. He received 2 BEP and 2 EP and residual mass was 3.5 cm so bil RPLND was recommended to prevent recurrence. He had his RPLND at Cleveland University Hosp. by their Dir. Urology Oncology. Aaron's treating oncologist(also a cancer survivor) refused referral to Cleveland Clinic based on her own opinions. Nov 1, 2006 had bil RPLND, removal R kidney, scrapping of inferior vena cava leaving it scarred and narrowed, nic to duodenal/sm intestinal junction with flap repair. Ten hour surgery, 9 days hospitalization, home 4 days, back in hosp 6 more days for ileus at the area of the flap repair. Placed on Plavix. Immediate biopsies done during surgery and those sent away did not show any cancer. Was told the kidney itself was healthy. Also, lower incision opened in hosp. with multiple drsg. changes done daily. Reopened and hematoma beginning of March 07.
My last visit here, I was upset and wondering if he was being seen enough for surveillance as seen Jan 07 and not scheduled again till May 07. Plus our treating oncologist was not receptive to any questions. His tumor markers were normal in Jan. He had not had a CT scan since Oct 9, 2006. Some of you suggested a visit to his GP in between or a change to a listed expert. Aaron is also on medicaid d/t the autism. So major changes in the mediaid system now where you join a managed care insurance plan which has you see certain Drs. in their plan. More headaches. Anyway, Aaron's GP concerned about the Plavix and we are concerned that no cardiovascular Dr. had seen him regarding this. So GP ordered CT scan abd and pelvis to see what was going on. He had this April 6, and GP calls me and says there is a 3cm lesion/mass on his aorta. Not sure what it is, could be lymph node, scarring, pool of blood, cyst or...... so making a referral to a cardiovascular surgeon for eval. I have not called the oncologist, not sure she will be the oncologist come May1 due to when the new managed care plan for medicaid starts. Same goes for the urologist, next visit Jun 07. And really not sure that is a bad thing. They have to accept terms to continue for just 90 days. This medicaid system is just for blind, aged and disabled. So tried to let them just keep him on the straight medicaid(there are exceptions) due to all this but was denied. My insurance has not covered him since he was 19. Any comments or suggestions will be appreciated.
My last visit here, I was upset and wondering if he was being seen enough for surveillance as seen Jan 07 and not scheduled again till May 07. Plus our treating oncologist was not receptive to any questions. His tumor markers were normal in Jan. He had not had a CT scan since Oct 9, 2006. Some of you suggested a visit to his GP in between or a change to a listed expert. Aaron is also on medicaid d/t the autism. So major changes in the mediaid system now where you join a managed care insurance plan which has you see certain Drs. in their plan. More headaches. Anyway, Aaron's GP concerned about the Plavix and we are concerned that no cardiovascular Dr. had seen him regarding this. So GP ordered CT scan abd and pelvis to see what was going on. He had this April 6, and GP calls me and says there is a 3cm lesion/mass on his aorta. Not sure what it is, could be lymph node, scarring, pool of blood, cyst or...... so making a referral to a cardiovascular surgeon for eval. I have not called the oncologist, not sure she will be the oncologist come May1 due to when the new managed care plan for medicaid starts. Same goes for the urologist, next visit Jun 07. And really not sure that is a bad thing. They have to accept terms to continue for just 90 days. This medicaid system is just for blind, aged and disabled. So tried to let them just keep him on the straight medicaid(there are exceptions) due to all this but was denied. My insurance has not covered him since he was 19. Any comments or suggestions will be appreciated.
Comment