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Will you be coming to DFCI for your appointment?
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"Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
11.22.06 -Dx the day before Thanksgiving
12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.
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June 2007 Suveillance Tests
Blood work and chest xray - - - ALL Clear.
T-minus 11 days until my 2 year tests at DFCI._____________________________________________
Left I/O 5/7/05, Stage 1(pT1)
No VI or LI, Normal Markers
70% Embryonal, 30% Seminoma
Surveillance
1st child born on 8/08Comment
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Magnificent news!!Scott
right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since
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Beautiful, dude!Originally posted by Kman99
Will you be in town just for the day? I work in the building next to where the adult clinic is."Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
11.22.06 -Dx the day before Thanksgiving
12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.
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Fed - we get into town on Sat 7/7. To complete the 2 year circle, we're staying at the Marriott in Copley Sq (we stayed here for my 1st ever visit to DFCI and again for the Marathon in 2005)._____________________________________________
Left I/O 5/7/05, Stage 1(pT1)
No VI or LI, Normal Markers
70% Embryonal, 30% Seminoma
Surveillance
1st child born on 8/08Comment
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I just remembered that Kman99 is in Boston right now! I don't know if you're checking in while you're in the area, but we'll expect good news from your appointment on Monday.Scott
right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since
Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!Comment
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Hey,Originally posted by Kman99
If you're up for it (and if you're checking messages), you can find me in Mayer 615. The Mayer building is right next to Dana where we get our CT scans (with the crystal light contrast agent
) and have the clinic with Dr. Ross. There's a bridge to Mayer right on my floor (6). I'll be at lab meeting from 11-1, but if you do stop by, feel free to have our admin call me out.
"Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
11.22.06 -Dx the day before Thanksgiving
12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.
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Hi Kman99: Wishing you and your wife happy thoughts on your appointment today.
Maria
*Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
*Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
*CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillanceComment
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"Cured!"
I am just getting a chance to access this...
M doc says I am medically cured! I could hardly contain myself when he said that. He says I have about a 10% chance of a recurrence and wants to continue with this surveillance schedule....
Years 3-4: 3 visits to Dana Farber for a CT and bloodwork. No more med tests here in Bermuda, which I am very happy about.
Year 5 - 2 visits to DF
After 5 - 1 per year (for life most likely)
Unless there is a setback, I will not post to this thread any longer. Hopefully this thread doesn't get deleted as my hope is for others to get a sense of what the surveillance approach is like.
I also want to thank those who have followed my story along the way. Even though I haven't be able to access the site as often, I think of you all very much. All of your encouragement, advice, etc has meant more than I can say, so thank you very much.
I'll try and do a better job having hanging around here more than I have recently.
Quick story...which KRoy will appreciate. The center piece on the tables of the Boston Marathon reception dinner in 2006 was a ceramic sneaker. My wife and I keep it on my bed side table. Well, we officially retired our Livestrong bands and placed them around the top of the sneaker. It will continue to serve as motivation to keep my chin up when things don't always go the way I want them to.
Cheers! Scott_____________________________________________
Left I/O 5/7/05, Stage 1(pT1)
No VI or LI, Normal Markers
70% Embryonal, 30% Seminoma
Surveillance
1st child born on 8/08Comment
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I was looking foward to this day. It was great to have you around but better to have you cured. Best of luck Scott.Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.
Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.Comment
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Congrats! That is awesome news!4/26/07 - mass confirmed w/ no elevated markers
4/27/07 - left I/O
5/2/07 - Dx: 100% seminoma stage 1A
Surveillance: CT/blood (6 month cycle)
4/27/13 - 6 years cancer free!
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Scott, that is great! You sound so happy, I can feel it coming right through the computer!!!
The Livestrong band was one of those funny issues for me...when do I take it off? When Boyce first got sick, I kept telling myself that when chemo ends, I will take it off...and then I figured I would take it off after the RPLND...and then I told myself when Danny was cured I would take it off...but now I see that there will always be a reason or someone to wear it for.
Boyce and I are thinking about getting our bands tattooed someone on our bodies....that way they can bury me with mine
Have a wonderful and happy life Scott!!Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
Current DVT
Current testosterone replacement therapy, Testim.
"You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forumComment
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Dadmo - I'm not going anywhere and will try and spend more time here. Someday, soon I hope, we will have that coctail (or 2) to celebrate.
Margaret - I agree. Everyone is different. It was as emotional to put on as it was to take off. It's a strange sensation to not have it there...almost a freeing sensation if that makes sense. You can trust I will never forget my experiences and will always remain strong and positive. You need both when going through a battle w/ cancer..._____________________________________________
Left I/O 5/7/05, Stage 1(pT1)
No VI or LI, Normal Markers
70% Embryonal, 30% Seminoma
Surveillance
1st child born on 8/08Comment
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Thats Great news Scott!
Thats also a very good idea with the sneakers,i remember those! Running that marathon with you guys is something i'll never forget =)
Talk to you soon.
-KevinDiagnosed 10/03/03
I/O 10/15/03
RPLND 1/21/04
Completed the Boston Marathon 4/19/05
Completed the Boston Marathon 4/17/06
Baby Riley born on 3/29/09
2012 Livestrong Challenge Web pageComment
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Wonderful news, thank you for sharing!Lori and Jon
Diagnosed 5/22/2006
I/O 5/26/2006, Stage 3, Good
Teratoma (Majority), Seminoma (10%), Yolk Sac
3xEP then determined not working
HDC w/stem cell transplant 8/16/06 to 9/25/06
Chest and Neck surgery 10/9/06 - immature teratoma
RPLND 11/16/06 - immature Teratoma
2/29/2008 - markers continue to be normal!
9/16/2008 - released from Dr. Einhorn's careComment
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