Announcement

Collapse
No announcement yet.

RetroGrade Ejaculation

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • RetroGrade Ejaculation

    To all post RPLND'ers!
    There has been some recent discussion on who has retrograde ejaculation post RPLND. There may be some of us who have had function return several months or more after surgery, some with no fluid at all (like me), and some with normal function from the beginning.
    So please reply to this poll, it may very well be the most complete survey our surgeons can get on the subject!
    20
    Normal function immediately following RPLND
    35.00%
    7
    Partial/normal function 2 months post RPLND
    10.00%
    2
    Partial/normal function 6 months post RPLND
    20.00%
    4
    Partial/normal function 12 months post RPLND
    5.00%
    1
    Normal function never returned
    30.00%
    6
    Stage III. Embryonal Carcinoma, Mature Teratoma, Choriocarcinoma.
    Diagnosed 4/19/06, Right I/O 4/21/06, RPLND 6/21/06, 4xEP, All Clear 1/29/07, RPLND Incisional Hernia Surgery 11/24/08, Hydrocelectomy and Vasectomy 11/23/09.

    Please see a physician for medical advice!

    My 2013 LiveSTRONG Site
    The 2013 Already Balders

  • #2
    Joe, you should add the chemo element into the poll. I think that could make a difference. Dianne
    Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
    Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

    Comment


    • #3
      Dianne,
      I'm certainly okay with changing the parameters of the poll. Adding the chemo element or other options... I just don't know how to go in and change it, maybe Scott can help with that. Also, let me know if there is anything else that sensible should be added.

      I really hope that we get a good response on this- going into the RPLND I was real concerned about losing sensation due to retrograde, and just the whole idea of this surgery scared the hell out of me. All the guys out there facing RPLND need to here it from the "veterans" that retrograde does not change things.
      So, for the newbies, please respond to the poll.
      Joe
      Last edited by Already Bald; 05-07-07, 07:46 PM.
      Stage III. Embryonal Carcinoma, Mature Teratoma, Choriocarcinoma.
      Diagnosed 4/19/06, Right I/O 4/21/06, RPLND 6/21/06, 4xEP, All Clear 1/29/07, RPLND Incisional Hernia Surgery 11/24/08, Hydrocelectomy and Vasectomy 11/23/09.

      Please see a physician for medical advice!

      My 2013 LiveSTRONG Site
      The 2013 Already Balders

      Comment


      • #4
        I'm not sure how to answer the poll, so just thought I'd tell you my husband's outcome. We were told going into the RPLND that he would have retrograde ejaculation - and he does. However, sexually speaking all is well. I love my husband more than ever and this outcome of the surgery has never been an issue!
        Lori and Jon
        Diagnosed 5/22/2006
        I/O 5/26/2006, Stage 3, Good
        Teratoma (Majority), Seminoma (10%), Yolk Sac
        3xEP then determined not working
        HDC w/stem cell transplant 8/16/06 to 9/25/06
        Chest and Neck surgery 10/9/06 - immature teratoma
        RPLND 11/16/06 - immature Teratoma
        2/29/2008 - markers continue to be normal!
        9/16/2008 - released from Dr. Einhorn's care

        Comment


        • #5
          I voted above, but also wanted to relay the following info.

          My doctor performed what he called a "nerve sparing" RPLND; this was in 1988. But before surgery he told me that if there was a lot of nodal involvement, he would opt to get the cancer rather than preserve ejaculation. Luckily I had no enlarged nodes and normal ejaculation was present right away. So the outcome might also depend on the extent of the spread/size of the nodes
          Last edited by Fish; 05-15-07, 09:17 AM.
          Fish
          TC1
          Right I/O 4/22/1988
          RPLND 6/20/1988
          TC2
          Left I/O 9/17/2003
          Surveillance

          Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.

          Comment


          • #6
            L-rplnd

            I had a L-RPLND on April 9th, 2007 and have since had severe retrograde ejaculation to the extent that there is no fluid what-so-ever. My doctor prescribed to me today a drug called Imipramine, a mild antidepressant that has been known to restore function to patients with retrograde ejaculation. I'll let everyone know how it goes.
            Yeah, I've only got one

            ->Left I/O 2/7/07
            ->Non-Seminoma Stage I
            ->L-RPLND 4/9/07 Dr. Gill, Cleveland Clinic

            Comment


            • #7
              BouncingChris:
              Don't lose hope. It took my son almost a full year to get back to normal.
              Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

              Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

              Comment


              • #8
                Just saw this thread, hopefully my son won't mind me sharing but he had 4 X BEP and a full-bilateral RPLND to remove a large teratoma post chemo, & Dr. told us up front he could not do nerve sparing due to the size of teratoma, so Justin expected & got retrograde...the surgeon was Dr. Chris Nichols' guy in Oregon so we felt confident Justin had no option, just thankful his surgery went miraculously well!!!!! Lanette ><>
                Son (21) Diag 6/29/05;non-seminoma stage II;embryonal carcinoma & teratoma; right I/O 7/1; 4 X BEP; 21.5 x 19.0 x 9.5cm abdominal mass; full bilateral RPLND 11/21/05; 8-06 right arm/hand continues to heal from paralysis due to nerve injury

                Comment

                Working...
                X