pain in the remaining one after i/o and rplnd

[italian_tc]

hi Fed and thank to all of you for your support... I decided to take surveillance!
I hope I'm already cured...otherwise i will have chemo...

x fed:
micromets are 3 in the lower position embryonal carcinoma...no more in my body!!!

thank thank thank again!!!
ciao
davide

[Fed]

Davide,
The need for chemo here would be two-fold. First, the fact that there were micrometastases found in three nodes indicates the possibility that there may be other ones elsewhere. Second, embryonal carcinoma can skip the lymph nodes because it has the ability to travel through the bloodstream and plant itself inside the lungs.
I don't know what the exact stats would be under these circumstances, but if your doc is correct, then there's an 80% chance you are already cured and won't need further treatment (of course, you will need to follow the strict surveillance schedule of chest X-ray and markers every 2-3 months and CT every 6 months). The current NCCN guidelines in the US state that in your case, your staging post-RPLND is pN1, and the recommended follow-up is either surveillance or 2 cycles of BEP.
It's hard to make an assessment on whether the delay may have had an impact. I recall your primary tumor being mixed. What was the composition of the micromets found in the lymph nodes?

[italian_tc]

i'm thinking about this...but the doctor told me don't do nothing...at 80% you are cured...

the question is:
- if rplnd can't cure me if i have positive nodes is useless, if it's negative i'm already cured...if something is find i'll do for shure chemo, why doing rplnd?
only for tryin to avoid one cycle of chemo?
They found the smallest amount possible in my lynph...3 microscopic nodes (less than 1mm)...
the only problem i see is the delay of 3 months...

[Mom]

If they find live cancer in your dissected lymph nodes they usually do 2 x BEP in the US as a precaution. I know you are probably tired of this disease, but 2 x BEP is tolerable and will help give you peace of mind going forward. You've done great so far, just hang in there. Dianne

[italian_tc]

yep! the pain disappear...and the ultrasound doesn't show nothing!
...
other question:
at rplnd they found 3 microscopic lynph (i don't know the exact size, but impossible to see with eye, the patologist discover them)...the doc say me don't do nothing, you can consider the idea of 2 bep now but at 80% you are already cured...

if i chose to have now 2 bep i jump immediatly at 98% cure rate...
if i chose surveillance, the cure rate with 3 bep is the same?
they doesn't give me a protocol yet, the next step will be ct scan at 2 months and rplnd and markers, if everithing ok we will plan for a surveillance...
how do you think? consider i have a very good surgeon team but i did rplnd 3 moths and 1/2 after inguinal orchiectomy...

i'm in doubt...for the second time. If the cure rate is the same, i would chose surveillance, but i'm not shure about this statistics...
thank everyone for helping me!
davide

[Karen]

Davide,
I'm glad to hear you are feeling better!

[italian_tc]

thank you for the reply fed, I spent yesterday relaxing on the sofa and today everithing seems ok, no more pain. I will have a ultrasound soon, just to trown away bad thinking....
tk again!
davide

[Fed]

pain in the remaing testis after i/o and orchiectomy? could be related to the surgery?

Hey Davide,
It is very common for the general area involving the surgery to be painful and swollen for a few weeks; after all, pretty much any surgery is traumatic on the body no matter how simple and routine. In some cases (and this is an extreme), it could take up to six months for everything to come back to normal. Bear in mind that usually it takes considerably less than that for an I/O. I can't speak for the RPLND, but I do know it takes a bit longer than the recovery from an I/O.
An ultrasound (I gather that's what you call an "eco") will certainly give you peace of mind in that regard. If it becomes an issue, talk it over with your doc.

[italian_tc]

I'm starting to have my normal activities since two days, i spent a lot of time walking yesterday...i finished my low fat diet and today I have some pain in my remaing one...just for stopping anxiety i will ask for a eco on monday...(3 week after rplnd)
for the moment i would know if someone had a similar experience?
pain in the remaing testis after i/o and rplnd? could be related to the surgery?
thanks
davide