Jen, I wish I could do or say more than simply, I'm thinking of you and your family. I'm so sorry.
Lori
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Started Sutent!
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Oh Jen I'm so sorry. If you can think of anything we might be able to do please let us know.
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Glad to hear you have started the trial, wishing you all the best and hearing more from you.......
Michael, I spoke to Dr Schwartz and unfortunately he said my brother was not a candidate for the trial that your brother is on....thanx for the information to be able to contact him tho as it helps to follow all leads....
Dr Einhorn has been in touch with my brother's Dr and has confirmed that Gerrards tc is incurable.....he did mention treatment options, but Gerrards Dr says that they have tried those combinations thruout his chemo and they have had little affect....
Thankyou all for your support thruout all of this, Gerrard, my family and I have truly appreciated it....
Jen
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Niki:
One of my goals is to climb Mt. Rainier. Perhaps some day you can help me do that.
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This is great. Make sure you document everything that happens during the trial. Sometimes the minutiae make a difference in all of this. Best of luck!
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Niki:
Good luck with the Sutent trial. Let's hope you recovery from this is quick so you can get back to your personnel quest of conquering 7 summits.
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thinking about you...
you have been through so much. i have faith that this clinical trail has the potential to achieve the success you have been fighting for.
danny was very close to beginning a Sutent study before he began his current regiment, a study of flavopuridol.
please keep us updated. and check your messages.
-michael
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Started Sutent!
After 1 month of waiting, 11 vials of blood and 1 CT scan, I have been fully registered in the Sutent trail! Yesterday was day 1 of 4 cycles for myself with 28 days on and 14 days off. I've been told to expect some side effects, but they wont show up for at least 2 weeks. The 2 most expected side effects seem to be just fatigue and having a hyper sensitive tongue. Although they have found that after 2-3 cycles the side effects completely subside, so only time will tell what happens to me. Well I'll give regular updates with what this pill does to me, it should be interested for a lot of people on this forum that have run into chemotherapy 'problems'.Tags: None
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