My husband finished high dose EPx4 in April. Now he says that his fingers (now his hands) and toes are numb. Has anyone else experienced this? The oncologist doesn't think it is chemo related because it only started about a month after treatment. He will be referred to nuerology.
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Sounds like Chemo related Neuropathy to me. I started experiencing it after my 4EP, and it got to be even more pronounced after my TIP protocol. Lyrica was helping but it really fatigued me. Lyrica is worth a try if it persists if you don't experience the fatigue.I Love My Pack!
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one year post BEP and I still feel it...I welcome it...reminds me of what I went thru...just don't think about it...sometimes it will takes up to two years to go away, based on others posts.
pete- lump first noticed 11/20/2005
- I/O right Dec 8, 2005
- 95% embryonal / 5% seminoma
- normal markers PRE surgery
- no vascular invasion, tunica free of cancer, epididymis free of cancer, lungs free, lymph free
- Stage I diagnosis
- surveillance
- mid feb '06, beta hcg slightly elevated = 4.6...small enlarged lower node seen on CT scan...
- 3BEP began feb 20, 2006
- finished 3 BEP, last bleo, april 17, 2006
- CT scan, blood markers, chest..all clear
- back on surveillance
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My numbness (in my feet) came a couple of months after my last chemo treatment. And it took two year to feel "almost" normal. Very hard were the first months (maybe first year) then, slowly, I felt it fading away day after day.
A neurologist should be able to measure the intensity of neuropathy (they gave little electric impulses to my legs "reading" nerve's response time); and unless it is very severe (as someone in this forum unfortunately has) it will go away.
Take care!
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I must disagree with your doctor and agree with the guys here...it sounds almost exactly like post chemo numbness. I am sure it will pass in time. We are thinking of you both.
mCo-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
Current DVT
Current testosterone replacement therapy, Testim.
"You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum
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I had the numbness too, mostly in my right hand and right foot.
When it was bad I walked with a limp, and I just couldn't shake it off or stomp it out. Havn't noticed it for maybe 6 weeks now, and I'm only 5 months post chemoStage III. Embryonal Carcinoma, Mature Teratoma, Choriocarcinoma.
Diagnosed 4/19/06, Right I/O 4/21/06, RPLND 6/21/06, 4xEP, All Clear 1/29/07, RPLND Incisional Hernia Surgery 11/24/08, Hydrocelectomy and Vasectomy 11/23/09.
Please see a physician for medical advice!
My 2013 LiveSTRONG Site
The 2013 Already Balders
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LYRICA! and see a Neurologist
I had neuropathy in my fingers and toes post-chemo. I went to a Neurologits and he prescribed Lyrica. Great stuff for neuropathy. The doc told me nerves regrow about 1/4 of an inch a MONTH, so be patient. I am almost two years post chemo now, been off Lyrica for about six months, and I am almost 100%.
And I agree...it is like a battle scar. Reminds me of what I went through.
Also, see my responses at:
Here
and here
Good luck!
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CAMS LIVELast edited by BeachTech; 08-11-11, 11:26 PM.BeachTech
Diagnosis
Diagnosed May 2005
Stage IIa
Pure Embryonic Carcinoma
One 2.0cm tumor in testicle
One 1.0cm tumor in lymph node
Treatment
Radical orchiectomy
Two cycles of BEP
Two cycles of EP (the Bleo was causing lung issues)
Complications
Pulmonary Embolism (Almost died)
Extremely low red blood count (Required 4 blood transfusion)
Status
In remission since August 2005
July 2011-tumor markers clean!
Favorite Question
"Which testicle did they remove?"
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