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  • Karen
    replied
    Tammy,
    I hope each day Anthong gets stronger and you can relax a bit. Moms never stop being Moms. So glad he's home!
    Karen

    Leave a comment:


  • jdunn
    replied
    Hi Tammy,
    Just wanted you to know that I am thinking of you and your son, Anthony.
    As a mother, I know the pain and heartache we feel to see our children suffer.
    Best wishes always. Stay strong.
    jane

    Leave a comment:


  • NavyHoldi99
    replied
    Originally posted by mstlyn
    Hey Brett

    I don't know if he had a rougher time or not, but he sure did have a lot of pain and violent vomiting after a day of drinking water and juice. He thought he was dying and I had to re-assure him that he wasn't.

    I read your site and I'm glad to hear that you are on the mend as well. Is your appetite returning yet? Anthony's is gradually returning. He eat's, but small amounts at a time.

    He also lost weight.

    During chemo he got up to around 184 and as of two days ago he is at 164. The nutritionist said he should weigh about 200 lbs. She gave him a list of things to help with that.

    She told him to eat 6 times a day consisting of

    High calorie/high protein, 2800 calories a day and try to get around 110 g. protein daily.

    RIGHT! Thats A LOT OF FOOD!
    Yeah...I felt the same way on my first day of water. It was too early so I had them put the NG tube back in. It was worth it because I felt better almost immediately.

    I gained so much weight in the hospital from the fluids...close to 30 pounds (normally around 210). I can tell all that is gone now and I'm definitely below my normal weight. I don't have a scale...but I would venture I'm around 190-195 maybe.

    My appetite is coming back slowly. I am eating a little more everyday. I had a couple hot dogs yesterday and that didn't sit well...must have been the processed food. Everything else has been good on the stomach, though. And thanks for the info regarding what to eat...I'm trying to eat more fruit, too...to help with the number 2s!

    Leave a comment:


  • mstlyn
    replied
    Originally posted by Russell's Mom
    Going back to the food after surgery. From my nursing experience, many people tolerate food post-op, but whenever the bowel is involved, it stops working for a while. If you introduce food and it is not moving along, it can be torture for the patient. The nausea and vomiting can be ruthless and then comes the naso-gastric tube. So very uncomfortable to be vomiting after an abdominal surgery. I tend toward the cautious side..Russell's Mom, Sharon
    Sharon, torture is a very descriptive word for this. I urge anyone that is having RPLND to just put up with the dry mouth for a few extra days. My son was trembling in pain and seemed mentally out of it for awhile. He really thought he was going to die and at one point I heard him through labored breathing say .. mom can you do something
    From that night on through when he started on fluids again I slept on the hard wood floor next to his bed.

    Leave a comment:


  • mstlyn
    replied
    Originally posted by Margaret
    That is GREAT news. I hope he also gets great numbers and results back soon!
    Margaret and Boyce,

    I know your hearts are in this and I thank you for that.

    Hugs,
    Tammy & Anthony

    Leave a comment:


  • Margaret
    replied
    Tammy, I am so happy this is behind you and I am wishing for great results going forward.

    m.

    Leave a comment:


  • mstlyn
    replied
    Originally posted by Fed
    Thanks for the update. The results are quite promising, considering that as you said, the AFP could potentially be coming from the yolk sac component they found. If you happen to speak to him or Tammy again, send them our best.

    Thanks Fed .. I feel pretty hopeful about the outcome of the surgery. It is even more encouraging to read posts like yours "the results are quite promising"

    As soon as we know something I will most certainly let everyone here know too.

    Hugs,
    Tammy & Anthony

    Leave a comment:


  • mstlyn
    replied
    Originally posted by Scott
    It's great to hear from you. I'm sure Anthony is very glad to be home to rest and recover.

    Thank you Scott, yes we are both glad he is home recovering. I read in another thread that you have having your scans today.

    Waiting to hear that everything is ok is hard.

    I just said a prayer for you, and I am sure everything will be fine.

    Will be watching for your results.

    Hugs,

    Tammy & Anthony

    Leave a comment:


  • mstlyn
    replied
    Originally posted by honeybee
    I'm so glad Anthony is finally home. Hopefully his recovery from surgery will be quick and uneventful, and he can get back to his regular life. I've been as worried about him as I was when my own son was going through this.

    Jennifer

    Once you become a mother, worry becomes your middle name. Thank you for caring.

    Hugs,
    Tammy & Anthony

    Leave a comment:


  • mstlyn
    replied
    Originally posted by Savin16
    Glad to hear Anthony is home. I've been thinking of you both.
    Thank you for keeping us in your thoughts.

    Leave a comment:


  • mstlyn
    replied
    Originally posted by dannysbrother
    two guys in NYC are cheering for you and your son.

    That RLPND is Danny's goal to get to... he can't wait to join the club!

    I wish Anthony healing, a smooth recovery and continued success!!

    -Michael
    Well I pray that Danny will get there very soon too! He is a very strong young man, and an inspiration to us, and I'm sure to anyone that is battling this disease.

    He is also very lucky to have a brother like you to stand strong in this fight with him. I read your posts and think of you both often.

    Thank you for cheering us on! You and Danny certainly have the same from us and everyone else on this forum.

    Prayers for you and Danny.

    HUGS,

    Tammy & Anthony

    Leave a comment:


  • mstlyn
    replied
    Originally posted by oscar666
    Very good !
    About the markers, you know, they need some time to go down.
    Everything will be fine.
    Yes I understand that it can take a few weeks for them to normalize, but just to see that it is heading in the right direction would be nice. I was going to ask the oncologist to have his markers checked this week, but I decided to just wait until after his follow-up appt. with the surgeon since that is now only a week away.

    How are things going with you?

    Leave a comment:


  • mstlyn
    replied
    Originally posted by NavyHoldi99
    Glad to hear you guys are home! Sounds like he had a rougher time of it at the hospital...so hopefully he is resting and getting stronger each day at home!

    Hey Brett

    I don't know if he had a rougher time or not, but he sure did have a lot of pain and violent vomiting after a day of drinking water and juice. He thought he was dying and I had to re-assure him that he wasn't.

    I read your site and I'm glad to hear that you are on the mend as well. Is your appetite returning yet? Anthony's is gradually returning. He eat's, but small amounts at a time.

    He also lost weight.

    During chemo he got up to around 184 and as of two days ago he is at 164. The nutritionist said he should weigh about 200 lbs. She gave him a list of things to help with that.

    She told him to eat 6 times a day consisting of

    High calorie/high protein, 2800 calories a day and try to get around 110 g. protein daily.

    RIGHT! Thats A LOT OF FOOD!

    Leave a comment:


  • mstlyn
    replied
    Still hanging in there, anxious to find out about the AFP. I thought a couple days of rest after Anthony was discharged from the hospital and I would feel back to normal, but I'm more tired than usual and that is my excuse for not posting to everyone yet.

    I keep signing in, and signing right back out

    I know I don't have to tell any of you about the waiting and wondering, and the toll it can take.

    I'm sitting here with my cuppa-java, willing myself to wake up and join everyone again.

    Leave a comment:


  • NavyHoldi99
    replied
    Glad to hear you guys are home! Sounds like he had a rougher time of it at the hospital...so hopefully he is resting and getting stronger each day at home!

    Leave a comment:

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