Its Time Again

[Margaret]

Hi sweet Maria, Boyce has many blood clots in his jugular and in other areas in his neck, chest and arm on the right side. Only about 8-13% of people with DVT have it in their upper body. I will post some further information here:

http://your-doctor.com/healthinfocenter/medical-conditions/cardiovascular/cardiac-conditions/vascular-dz/dvt.html

[MRMRSU]

Hi Kelly: Great news for you and your hubby Tim on the all clear. Andy & I both get physicals every year...just for good measure (and we were doing this long before he ever got diagnosed). Keeping positive that it will be many more "ALL CLEAR's" for Tim.

They did say they would be looking in his lymph nodes for a return of cancer and he said...yeah but post RPLND I have no lymph nodes and the doc said they could grow back. Ever heard of this before??

Hi Margaret: That's great news also on the clear results for Boyce! You'll have to forgive me if you've posted this on another thread, but where does Boyce have blood clots? Also, I'm really anxious to know if you get any responses about the lymph nodes growing back...my heart just sank. We see our oncologist tomorrow and I'll ask him about it, too. Best wishes as always!

[Margaret]

Boyce went in for his CT results so I thought I would post about them...feels like everyone here is waiting for news too.

No sign of new cancer...great news of course! The blood clot thing seemed to get a rise out of our doc (which if you knew him you would know how rare that it). He just can't seem to understand why Boyce is having the DVT and he seemed frustrated by it. I don't think they are going to do much about it, but they did tell him he could take an asprin daily. ((Brace yourself for knee deep sarcasm)) Gosh all this high tech medicine and Boyce is all cured of his blood clot with a baby Bayer. It's a miracle!

I just really I think they need to look at this issue further but I am having one of those nights where I realize that I am not in charge of this. We had stomach injections (lovenox) and he was on Warafrin, now the clots are still here and he is on...baby Bayer...Oh well.

Boyce also has a small hernia they found on the CT scan, but they are not concerned with it. Of course the good news being that the rest of the scan is clean. They did say they would be looking in his lymph nodes for a return of cancer and he said...yeah but post RPLND I have no lymph nodes and the doc said they could grow back. Ever heard of this before??

love you guys!!

[TimsWife]

Thakn you for all of your comments. You guys make me laugh. I agree with Margaret (you are a hoot!), my husband upon inital diagnosis was not amused at all of the prodding and poking and that is part of the problem. Short of makign the appoint (which I do anyway) and drugging, having my naighbor carry him to the car and so on I do not know if that it a battle I will win. (kidding of course) I do appreciate all of the comments & believe along with you that physicals are the right thing to do.

[sldl1106]

Great news!!!

Rob is 35, he's only gone the last two years because we 1. finally found a great GP, and 2. His father had a genetic chromosomal disorder that Rob may have inherited, so that was his first "true" physical in years. And then all this happened. So he will continue to do it yearly. Whether he wants to or not.

[jaybird]

I think it is important for anyone who has had chemo to start getting yearly physicals. My BP and Cholesterol were perfect before treatment and both of them elevated above normal 3-5 years after treatment. I'm not sure about cholesterol but I do know that chemo can effect your BP so it's good to monitor it over the years and take meds if needed. Slightly elevated BP over a long period of time will really effect the duration of your life. At least thats what my urologist told me.

'Rooter to the Tooter'. funny....

[fuse929]

Congrats on the all-clear!!!

[Karen]

Kelly,
Great news on the all clear! I think Ray was in his 30s when he stared going for physicals. Good thing, because they dound he has high BP and high cholesterol (despite being skinny). It seems like overkill a bit, but the physical gets the urinanalysis, full bloodwork, EKG and checks for blood in the stools. I think it's an extra measure of reassurance.

[Margaret]

Thank you everyone- I really appreciate the support and Tmi was gievn the all clear today.

I do have a question though. Tim does not like to go to the doctor and is very willing (although whines and complains) about going for the every 4 months checks. Today the doctor asked him if he was going regularly for physicals- he looked at me and answered no. Tim's blood pressure is fine, his bloodwork is fine- ironically we had the insurance blood work done a month before he was diagnoised. Do all of you or your husbands go for yealry physicals, honestly? I mean Tim agreed when he is 40 he will go, but he is only 34.

Thanks in advance.

First of all....yippee for the great CT results.

I will answer you honestly, Boyce will be 40 next year and has never, ever been for a physical. And has not had a physical since he was told about the cancer. I assumed that going to the cancer center and being looked at from the rooter to the tooter (sorry, a little southern humor) would certainly be enough, but after hearing this, maybe I am mistaken. I am not sure I could get him to go even if I pushed. I struggle just to get Boyce to remember to do his blood work and CT scans every few months.

[TimsWife]

All Clear- I do have a questions though....

Thank you everyone- I really appreciate the support and Tmi was gievn the all clear today.

I do have a question though. Tim does not like to go to the doctor and is very willing (although whines and complains) about going for the every 4 months checks. Today the doctor asked him if he was going regularly for physicals- he looked at me and answered no. Tim's blood pressure is fine, his bloodwork is fine- ironically we had the insurance blood work done a month before he was diagnoised. Do all of you or your husbands go for yealry physicals, honestly? I mean Tim agreed when he is 40 he will go, but he is only 34.

Thanks in advance.

[Karen]

Definitely consider asking you doctors for some anti-anxiety meds. Ativan has helped me through some stressful days and nights (how about that Sis, we even get the same meds ).

Well, we do have that common genetic factor!

[Fish]

Kelly, Margaret, Rosy, Lori, and Alex:

Best wishes to all of you for clear results. I know how stressful these tests are, even several years out.

Definitely consider asking you doctors for some anti-anxiety meds. Ativan has helped me through some stressful days and nights (how about that Sis, we even get the same meds ).

My doctor's office is never consistant, sometimes they never call, my doc said if they don't call the tests were OK. Last month, they called the same day I had the CT -- and scared the heck out of me -- just to tell me "all clear"

I'll be thinking of you all.

Fish

[Lori]

I never thought of the ativan...that got me through several nights during the treatment why not during testing time. Jon has his CT Scan today 8 months post RPLND and blood work August 15th which will be 1 year from HDC! Until testing time the cancer is tucked back in my mind, but the anxiety rears its ugly head a day to two before tests.

Good luck to Tim and everyone else!

[Krokar]

I'm crossing my finger for Tim. I had the same treatement and I have 38 months check in next weeks. I hope for all of you that you will hear good news.

Alex

[roydeste]

hy,
I'm with us..my boyfriend has blood work monday and CT-PET the 2th august..
I'm very scared...
Il'll pray for anyboby

Love
Rosy