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Baseline CT Scan After RPLND?

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  • Baseline CT Scan After RPLND?

    National Comprehensive Cancer Network (NCCN - which includes a panel of TC doctors known to so many - Motzer, Sheinfeld, Jonasch just to name a few) says in its guidelines for follow-up for nonseminoma:

    "Patients status post-RPLND, a postoperative baseline CT scan is recommended."

    How soon after surgery is this baseline supposed to take place? Or is this the 6-month interval abdominal/pelvic CT scans that are supposed to happen Year One? Any clarification or links to other sites would be much appreciated by these newbies about to embark on surveillance-life after RPLND.

    As always, thanks to you all.
    Maria
    *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
    *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
    *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance

  • #2
    Hi, I have no idea what the guidelines are but we had the CT Scan just prior to the RPLND and we had our next one in March. But Jon's schedule for CT Scans is every 4 months so I think the March scan simply coincided with that schedule. Hope your doing well!
    Lori and Jon
    Diagnosed 5/22/2006
    I/O 5/26/2006, Stage 3, Good
    Teratoma (Majority), Seminoma (10%), Yolk Sac
    3xEP then determined not working
    HDC w/stem cell transplant 8/16/06 to 9/25/06
    Chest and Neck surgery 10/9/06 - immature teratoma
    RPLND 11/16/06 - immature Teratoma
    2/29/2008 - markers continue to be normal!
    9/16/2008 - released from Dr. Einhorn's care

    Comment


    • #3
      Hi

      Well …I asked my doctor similar question.
      Generally, we discussed about follow-up schedule after RPLND.
      He said, regardless of guidelines, every case is different and frequency or type of tests could vary.
      For me, he suggests Chest X-ray + blood work every 3-4 months (next 2 years).
      CT scan and Scrotal Ultrasound tests are “optional” and they could be done later, but I have no date for them at this moment.
      Again, these tests depend of many things like RPLND pathology results, type of RPLND itself (open, lap, primary or post-chemo, etc)
      My opinion is that one of the biggest advantages of RPLND is exactly to eliminate the need of these frequent CT-scans.
      That explains why the post-RPLND CT-scans are not so strictly defined in guidelines.

      Peter.

      Comment


      • #4
        Here's what my onc did: stuck with the four-month schedule. I had a CT in late February 2005, one in April, then one right before the RPLND in May 2005 (IU insisted). RPLND was May 31. Next CT scan was in August, and we were back on the four-month plan.
        Vinny (aka Frank)
        http://vinnysgotcancer.blogspot.com

        left I/O 1/5/05; 95%EC / 5% mature teratoma; stage IIIC
        4x BEP 1/24/05 - 4/11/05; RPLND (left side) 5/31/05
        VATS resection of teratoma from left lung 4/26/06
        Presently surveilling

        Comment


        • #5
          Hi Lori, Peter, Frank: Thanks for your time and for the info...it really is a bit hard to find the proper (if there even exists such a thing) guidelines. Urologist thought that next CT scan should be in late-October (6 months after RPLND), but he said to check with our oncologist. We see him next week. Many thanks again!
          Maria
          *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
          *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
          *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance

          Comment


          • #6
            Originally posted by MRMRSU
            it really is a bit hard to find the proper (if there even exists such a thing) guidelines.
            This website may help you see some time-frames. http://www.nccn.org/professionals/p.../testicular.pdf

            Bobby
            4/26/07 - mass confirmed w/ no elevated markers
            4/27/07 - left I/O
            5/2/07 - Dx: 100% seminoma stage 1A
            Surveillance: CT/blood (6 month cycle)
            4/27/13 - 6 years cancer free!

            Comment


            • #7
              Originally posted by MRMRSU
              Urologist thought that next CT scan should be in late-October (6 months after RPLND), but he said to check with our oncologist.
              Definitely go with what the oncologist thinks. When in surveillance mode, your oncologist is your PCP.

              Good luck!
              Vinny (aka Frank)
              http://vinnysgotcancer.blogspot.com

              left I/O 1/5/05; 95%EC / 5% mature teratoma; stage IIIC
              4x BEP 1/24/05 - 4/11/05; RPLND (left side) 5/31/05
              VATS resection of teratoma from left lung 4/26/06
              Presently surveilling

              Comment


              • #8
                Very interesting topic. Here is a quote from the TCRC website:

                "CT scans are not to be taken lightly. They provide a reasonably large dose of radiation, and they should not be used if they are not needed. Our surveillance protocols do not call for abdominal CT scans post RPLND or post radiation. Studies have shown that the odds of a recurrence in the retroperitoneum are very small following these therapies, and these odds do not justify the use of a CT scan. However, these studies also assume that the RPLND was done correctly by a surgeon familiar with the operation. The nodes should have been removed as a package, not plucked out one by one. If this was not the case, then it probably makes sense to add CT scans to the post RPLND surveillance protocol."
                Diagnosed 10/03/03
                I/O 10/15/03
                RPLND 1/21/04
                Completed the Boston Marathon 4/19/05
                Completed the Boston Marathon 4/17/06
                Baby Riley born on 3/29/09

                2012 Livestrong Challenge Web page

                Comment


                • #9
                  Originally posted by Kev332
                  Very interesting topic. Here is a quote from the TCRC website:

                  "CT scans are not to be taken lightly. They provide a reasonably large dose of radiation, and they should not be used if they are not needed. Our surveillance protocols do not call for abdominal CT scans post RPLND or post radiation. Studies have shown that the odds of a recurrence in the retroperitoneum are very small following these therapies, and these odds do not justify the use of a CT scan. However, these studies also assume that the RPLND was done correctly by a surgeon familiar with the operation. The nodes should have been removed as a package, not plucked out one by one. If this was not the case, then it probably makes sense to add CT scans to the post RPLND surveillance protocol."
                  Interesting Kevin, Boyce will have 4 CT scans this year and he had a full bi-lateral RPLND done at SK.
                  Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
                  Current DVT
                  Current testosterone replacement therapy, Testim.

                  "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

                  Comment


                  • #10
                    Jon will have 3 CT scans of chest, abdomen and pelvis a year for 2 years, then go to 2 a year for 3 years. We were told by Dr. Einhorn this schedule was due to the amount of teratoma Jon had removed. The amount of radiation does unnerve us, but even more so, does the return of teratoma.
                    Lori and Jon
                    Diagnosed 5/22/2006
                    I/O 5/26/2006, Stage 3, Good
                    Teratoma (Majority), Seminoma (10%), Yolk Sac
                    3xEP then determined not working
                    HDC w/stem cell transplant 8/16/06 to 9/25/06
                    Chest and Neck surgery 10/9/06 - immature teratoma
                    RPLND 11/16/06 - immature Teratoma
                    2/29/2008 - markers continue to be normal!
                    9/16/2008 - released from Dr. Einhorn's care

                    Comment


                    • #11
                      Originally posted by Lori
                      The amount of radiation does unnerve us, but even more so, does the return of teratoma.
                      Lori, very good point.

                      Here's to hoping that will never ever ever happen.

                      -M

                      Comment


                      • #12
                        A few more Q's

                        Thanks again everyone for your time...


                        Hi Kevin: So after your RPLND, what was your course of action? Any CT scans at all?

                        Hi Lori: When Jon's original pathology came back, did they tell you it was "immature" teratoma. It was in reading from the American Cancer Society website that we first even learned that there are different teratomas. How's everything been for Jon since RPLND?
                        Maria
                        *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
                        *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
                        *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance

                        Comment


                        • #13
                          MRMRSU,

                          I actually did get CT scans after my RPLND, i think it was about 2 a year for the first two years, and then after discussing this topic here, I asked my Oncologist about it. He and said I was correct, and that they were just yielding on the safe side, however he agreed with me and I haven't had one since. =) I still go for routine blood work and chest x-rays every 6 months.
                          Diagnosed 10/03/03
                          I/O 10/15/03
                          RPLND 1/21/04
                          Completed the Boston Marathon 4/19/05
                          Completed the Boston Marathon 4/17/06
                          Baby Riley born on 3/29/09

                          2012 Livestrong Challenge Web page

                          Comment


                          • #14
                            Hi Kevin: Thanks for the post...do you remember how long after your RPLND you went in for your first CT scan?
                            Maria
                            *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
                            *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
                            *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance

                            Comment


                            • #15
                              Anthony had RPLND on June 8th and his post-op Ct scans are scheduled for this friday July 27th.

                              Son Anthony DX 12/11/06
                              L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
                              4XEP 1/29-4/6/ 07
                              AFP started increasing3 wks later
                              Residual abdominal mass found on CT
                              RPLND 6/8/07
                              Cancer in pathology-
                              80% mature teratoma, 20% Yolk Sac. --
                              No adjuvent chemo and
                              AFP normalised

                              July 22, 2010 ---- 3 years all clear!

                              Comment

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