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Two years have passed

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  • Two years have passed

    It's been a while since I've posted about my son's surveillance . He passed the two year mark in april and so far so good. Danny saw Dr. Sheinfeld last week and his next scan is in October. I'm sorry about not posting sooner but reading about this everyday was getting to me so I would just check in silently from time to time to see how everyone else was doing. I still worry that it's hiding somewhere in a lymph node or worse yet that he'll get it on the other side. I'm kind of upset today since Danny's older brother Dennis just had a sonogram today and he sees the urologist tomorrow. Could this be happening to our family again ????? Maybe it's something else. I hope. I'll let you know soon, Linda

  • #2
    Linda, it's good to hear from you and great to know that Danny reached his two year anniversary on surveillance. That's a huge milestone with non-seminoma! The odds of recurrence now are very low. Great news!

    We'll hope to hear that Dennis' symptoms are caused by something less serious than cancer. Hang in there, and keep us posted.
    right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

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    • #3
      Hi Linda: That's fantastic news for your son's to the same results for year three! Andy has brothers also, and we've been making sure they are checking. Hoping for the best for your son's good that he's being proactive. Happy thoughts from California!
      *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
      *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
      *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance


      • #4
        Linda, I will keep your family in my prayers that his brother is okay. Two years is wonderful news!
        Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
        Current DVT
        Current testosterone replacement therapy, Testim.

        "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum


        • #5
          Woo hoo! I just passed two years myself since the end of chemo (in April) and things look might nice from this side of things. Maybe soon he'll forget what it's like to have regular CT scans.
          Vinny (aka Frank)

          left I/O 1/5/05; 95%EC / 5% mature teratoma; stage IIIC
          4x BEP 1/24/05 - 4/11/05; RPLND (left side) 5/31/05
          VATS resection of teratoma from left lung 4/26/06
          Presently surveilling


          • #6
            Two years is a hugh number in the world of non-seminoma, you son for all practicle purposes is cured. Congratulations.
            Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

            Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.


            • #7
              That is such wonderful news for your son, Linda and for you, Vinny!! And it gives those of us who are dealing with non-sem a great amount of hope for a similar outcome. So thanks for sharing the good with us.
              Rob and Stacy
              DX: 3/10/05, AFP: 15,047, L I/O: 3/28/05, Yolk sac tumor & teratoma, Stage IIIC, 3xBEP & 1xEP: 4/4/07 - 6/25/07, AFP: 14, RPLND 8/10/07, w. left kidney removed. 10/19/07, AFP: 1.9


              • #8
                Great news about Dann'y 2 year mark!11 Any new on Dennis' ultrasound. Fingers crossed for your family !
                Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.