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Ok, Brian got a letter in the mail from Bosl's office yesterday and it stated that his has to have a 2nd ct-scan next friday right before his Petscan?
only this time, they are not going to use oral OR! IV contrast! this doesnt make any sense to me.
NOW i am so scared! what if something is wrong? anyone have any clue what is going on? his last ct-scan was on july 26th
Dawn
Fiance Brian, dx:stage IIIC non-sem 4/18/07
mets to lungs,liver,abdomin,large tumor near kidney
hcg was 176,000!
completed 1 rnd of TIP(had bad reaction to taxol)
BEPx3 until 7/13/07
7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
AFP & HCG normal
12/7/07 RPLND,right orchiectomy @ MSKCC
12/18/07, rcvd pathology,all clear! no cancer! 2/11/08 -Lung surgery dne @ MSKCC ALL CLEAR
This sounds pretty standard. Usually CT scans are done both with oral and IV contrast. The oral contrast highlights mainly the GI tract, while the IV contrast enhances vascular and lymphatic structures. My guess is that they are aiming to overlay the CT with the PET to make a PET-CT composite. The CT will pinpoint the location of structures and masses, and the PET will "color" the ones that are very metabolically active. It all sounds like standard-operating-procedure, so the letter shouldn't be cause for alarm.
"Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
11.22.06 -Dx the day before Thanksgiving
12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.
Dawn,
I have to admit I don't recall the reason why, but I did have CT scans both with and without contrast. Don't get too worked up, easier said than done, I know. I don't think this CT comparison is unusual.
Dawn,
I agree with Fed's take on this...makes perfect sense that contrast would not be needed to overlay with a PET.
I still think you need a sit-down (not the NJ type ) with Dr Bosl and a list of your questions or concerns.
Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.
Dawn,
I agree with Fed's take on this...makes perfect sense that contrast would not be needed to overlay with a PET.
I still think you need a sit-down (not the NJ type ) with Dr Bosl and a list of your questions or concerns.
SO YOU DONT THINK I SHOULD WORRY EITHER?
JUST ROUTINE TEST ALONG WITH THE PET SCAN?
Fiance Brian, dx:stage IIIC non-sem 4/18/07
mets to lungs,liver,abdomin,large tumor near kidney
hcg was 176,000!
completed 1 rnd of TIP(had bad reaction to taxol)
BEPx3 until 7/13/07
7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
AFP & HCG normal
12/7/07 RPLND,right orchiectomy @ MSKCC
12/18/07, rcvd pathology,all clear! no cancer! 2/11/08 -Lung surgery dne @ MSKCC ALL CLEAR
correct me if i'm wrong, but I believe the contrast dye is not exactly easy on the kidneys or liver. perhaps they are excluding the contrast this time around to give his body a break.
I don't think you should be worried about this letter. Doing these scans will give Bosl and better indication of what is going on with Brain. It's a thorough set of scans that will provide a lot of information and tell Bosl and other docs what the next step should be.
Hi Dawn,
Did Brian have his scan today?
Have you heard from the liver surgeon?
Just so you know, I've had several CT Scans wothout contrast- I wish they were all without contrast.
It is not unusual at all.
Let us know how You are doing too.
Joe
Stage III. Embryonal Carcinoma, Mature Teratoma, Choriocarcinoma.
Diagnosed 4/19/06, Right I/O 4/21/06, RPLND 6/21/06, 4xEP, All Clear 1/29/07, RPLND Incisional Hernia Surgery 11/24/08, Hydrocelectomy and Vasectomy 11/23/09.
Hi Dawn,
Did Brian have his scan today?
Have you heard from the liver surgeon?
Just so you know, I've had several CT Scans wothout contrast- I wish they were all without contrast.
It is not unusual at all.
Let us know how You are doing too.
Joe
Hello Joe,
Brian only went for a marker test yesterday. he goes for the 2nd ct-scan and the pet scan on 8-10. i just dont understand why they have to have a 2nd one when JUST did one on 7-26. i am praying with all my heart that his #'s are ok and didnt go up. we should get the results today (hopefully!)
will keep you all informed
happy friday everyone!
Dawn
Fiance Brian, dx:stage IIIC non-sem 4/18/07
mets to lungs,liver,abdomin,large tumor near kidney
hcg was 176,000!
completed 1 rnd of TIP(had bad reaction to taxol)
BEPx3 until 7/13/07
7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
AFP & HCG normal
12/7/07 RPLND,right orchiectomy @ MSKCC
12/18/07, rcvd pathology,all clear! no cancer! 2/11/08 -Lung surgery dne @ MSKCC ALL CLEAR
Hi Dawn,
Did Brian have his scan today?
Have you heard from the liver surgeon?
Just so you know, I've had several CT Scans wothout contrast- I wish they were all without contrast.
It is not unusual at all.
Let us know how You are doing too.
Joe
Ps...... As far as i know, they did not speak with the liver surgeon as of yet.
and as far as i am going? well, i had to go to the Dr the other day because i am just having a really hard time with everything. i am going to also see a counsler.
Fiance Brian, dx:stage IIIC non-sem 4/18/07
mets to lungs,liver,abdomin,large tumor near kidney
hcg was 176,000!
completed 1 rnd of TIP(had bad reaction to taxol)
BEPx3 until 7/13/07
7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
AFP & HCG normal
12/7/07 RPLND,right orchiectomy @ MSKCC
12/18/07, rcvd pathology,all clear! no cancer! 2/11/08 -Lung surgery dne @ MSKCC ALL CLEAR
Right I\O 11/28/06 - 100% EC with vascular invasion - CT shows enlarged abdominal lymph node (30mm) and 12 small lung nodules (the bigger 13mm) - Chemo started 01/02/2007 - 4xBEP - end 03/22/2007 - 03/22/2007 tumor marker normal - 04/23/2007 CT shows two small lung nodules (3mm and 4 mm) and lymph node 12mm - 05/23/2007 tumoral marker normal - 06/06/07 CT is stable - 07/23/07 tumoral marker normal - 08/02/2007 CT-PET shows all clear - On surveillance from 08/04/07
Ps...... As far as i know, they did not speak with the liver surgeon as of yet.
and as far as i am going? well, i had to go to the Dr the other day because i am just having a really hard time with everything. i am going to also see a counsler.
Dawn,
I am really glad you are seeking some emotional support. This is a difficult time for you and reaching out for help is a great thing. I am proud of you.
Margaret
Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
Current DVT
Current testosterone replacement therapy, Testim.
"You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum
Just wanted to let everyone know that i overreacted about the 2nd ct-scan -I spoke to Dr. Bosl's assistant and she explained that they do it together automatically.
thursday is the Pet-scan and i am FREAKING out!
Fiance Brian, dx:stage IIIC non-sem 4/18/07
mets to lungs,liver,abdomin,large tumor near kidney
hcg was 176,000!
completed 1 rnd of TIP(had bad reaction to taxol)
BEPx3 until 7/13/07
7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
AFP & HCG normal
12/7/07 RPLND,right orchiectomy @ MSKCC
12/18/07, rcvd pathology,all clear! no cancer! 2/11/08 -Lung surgery dne @ MSKCC ALL CLEAR
Dawn,
There's no point in stressing out right now. Brian is in great hands at MSKCC and by having you by his side. Since all you can do right now is wait, you should try to find some distractions for the next couple of days. Although it's meant to be wicked hot and humid today, you should go out on the town, have some ice cream or Italian ice, hang out in Central Park... get the cancer out of your mind for the time being. I understand the stress, and waiting is definitely a nuisance. You guys will deal with the PET-CT when the time comes on Thursday. Hang tough, girl!
"Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
11.22.06 -Dx the day before Thanksgiving
12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.
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