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  • some people can be so cruel!

    Hello all,

    So, today Brian got his new markers, as you can see from the prev thread

    they are at 10! from 14!. was talking to Brian's mom earlier, and she was talking with a freind on the phone, and explaining and updating her on some of the issues. His mom was talking about the concern of the tumors on his liver and how they might not want to operate. Her friend began to tell her (which is cruel!) " Sloans might not want to operate because maybe they already made their death quota! and they dont want anymore deaths!"

    ok, unless you work at Sloan Kettering, or have a Dr's degree, would you say that to a mother who is devistated over her son being sick? its bad enough for all of us with what is going on, we dont need to hear this!

    I was SOOOOO positive when Brian called me with his markers, and then i talk to her and my hopes just got shot down!
    Fiance Brian, dx:stage IIIC non-sem 4/18/07
    mets to lungs,liver,abdomin,large tumor near kidney
    hcg was 176,000!
    completed 1 rnd of TIP(had bad reaction to taxol)
    BEPx3 until 7/13/07
    7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
    10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
    AFP & HCG normal
    12/7/07 RPLND,right orchiectomy @ MSKCC
    12/18/07, rcvd pathology,all clear! no cancer!
    2/11/08 -Lung surgery dne @ MSKCC
    ALL CLEAR

  • #2
    then i talk to her and my hopes just got shot down
    Feel sorry for the woman who said this Dawn, her Mother apparently didn't have any kids that lived. I guess there's a purpose for all creatures. Some just elude us as to what that is. Ticks, mosquitoes, roaches, and this lady comes to mind. Don't let even the smallest battle that's won be spoiled by shear stupidty. Once we've found the cure for Cancer, perhaps the cure for ignorance would be a noble cause to pursue. I for one (of many) am elated to hear of Brian's progress. As for that lady (in my standard poetic style) F*&^ her and the *u^k%ng horse she rode in on.
    Mark
    I Love My Pack!

    sigpic

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    • #3
      Dawn -

      DO NOT let your hopes get shot down. There will be strange and rude comments from unlikely places here and there. Are you going to listen to them and let them bother you? No, you are not. You're going to listen to doctors, and blood results, and Brian.

      Nothing else really matters.
      Rob and Stacy
      DX: 3/10/05, AFP: 15,047, L I/O: 3/28/05, Yolk sac tumor & teratoma, Stage IIIC, 3xBEP & 1xEP: 4/4/07 - 6/25/07, AFP: 14, RPLND 8/10/07, w. left kidney removed. 10/19/07, AFP: 1.9

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      • #4
        Originally posted by TCLEFT
        Feel sorry for the woman who said this Dawn, her Mother apparently didn't have any kids that lived. I guess there's a purpose for all creatures. Some just elude us as to what that is. Ticks, mosqutoes, roaches, and this lady comes to mind. Don't let even the smallest battle that's won be spoiled by shear stupidty. Once we've found the cure for Cancer, perhaps the cure fore ignorance would be a noble cause to pursue. I for one (of many) am elated to hear of Brian's progress. As for that lady (in my standard poetic style) F*&^ her and the *u^k%ng horse she rode in on.
        Mark

        thank you mark, i agree %100! - i know these people arent Drs! but she just had to be a downer! It just makes me worried
        Fiance Brian, dx:stage IIIC non-sem 4/18/07
        mets to lungs,liver,abdomin,large tumor near kidney
        hcg was 176,000!
        completed 1 rnd of TIP(had bad reaction to taxol)
        BEPx3 until 7/13/07
        7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
        10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
        AFP & HCG normal
        12/7/07 RPLND,right orchiectomy @ MSKCC
        12/18/07, rcvd pathology,all clear! no cancer!
        2/11/08 -Lung surgery dne @ MSKCC
        ALL CLEAR

        Comment


        • #5
          Dawn, if his markers were at 35 that is cause for worry, the fact that they are down to 10 is cause for rejoicing. What that woman said to Brian's mother wasn't worth repeating. Try to have a nice weekend. Dianne
          Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
          Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

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          • #6
            Originally posted by DAWN82
            Her friend began to tell her (which is cruel!) " Sloans might not want to operate because maybe they already made their death quota! and they dont want anymore deaths!"
            All I can say is WTF?!?!
            Dawn, you need not dignify such a petulant, ignorant, and insensitive comment by feeling discouraged (I tried to find adjectives that were not swear words, although the latter fit better in this context and are more reflective of my reaction upon reading the quote). You got great news, and you should bask in it.
            "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
            11.22.06 -Dx the day before Thanksgiving
            12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

            Comment


            • #7
              That comment doesn't even make sense to me -- maybe the lady was trying to say something supportive and just failed miserably? I would try to forget it though and focus on your good news!

              Comment


              • #8
                all i can say is, i have never met anyone on this forum in person, but i love you all!.. we are all in this together and that means the world!

                I can definatly sleep tight knowing i got some good news today! i will try and not let a sick comment like that upset me

                happy friday all!
                DAwn
                Fiance Brian, dx:stage IIIC non-sem 4/18/07
                mets to lungs,liver,abdomin,large tumor near kidney
                hcg was 176,000!
                completed 1 rnd of TIP(had bad reaction to taxol)
                BEPx3 until 7/13/07
                7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
                10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
                AFP & HCG normal
                12/7/07 RPLND,right orchiectomy @ MSKCC
                12/18/07, rcvd pathology,all clear! no cancer!
                2/11/08 -Lung surgery dne @ MSKCC
                ALL CLEAR

                Comment


                • #9
                  Originally posted by DAWN82
                  all i can say is, i have never met anyone on this forum in person, but i love you all!.. we are all in this together and that means the world!
                  DAwn
                  Dawn, welcome to the family!!! You 're stuck with us for the long haul!
                  Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

                  Comment


                  • #10
                    Dawn, welcome to the family!!!
                    Ha Ha Mom and dadmo love me best. Sorry for that outburst. Just breaking out my humor shield again and trying to lance (good choice of words) some pesky demons. (You know what I mean my Jersey Sister). Take time to laugh Dawn. An orchid went bad, but there's still plenty of roses to admire. Have a Fantastic Weekend. Hey Dawn do you know about the party on the 11th? Wanna meet the family?
                    All I can say is WTF?!?!
                    Wild Turkey Foundation???
                    petulant, ignorant, and insensitive
                    Why the *&@# didn't I think of that.
                    Last edited by TCLEFT; 08-03-07, 06:26 PM.
                    I Love My Pack!

                    sigpic

                    Comment


                    • #11
                      There's one in every family, Mark.

                      Dawn, we can never know what's in someone's head. That comment seems off the wall. While I would have thought things like Mark and Fed, I would probably have actually said something like, "I have no idea what you mean by that."
                      Scott
                      right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

                      Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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                      • #12
                        How very sad! When Russell was first diagnosed, two people that I value, who work in the medical profession told me that "Kaiser wants it's cancer patients dead." (Different people, different times.) It was devastating to hear, but also made me realize that I was equally strong out the other side!!!!!!!!!!! Like you, the wind was knocked out of me, but I landed here. As difficult as it was, it helped me to focus even better and find the people who would be helpful, then discard "anything" that was a waste of time! Livestrong!! Sharon
                        Click here to support my LIVESTRONG Challenge with Team LOVEstrong.

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                        • #13
                          Dawn, water off a ducks back. I had someone close, buy me a cementary lot. You find out who you can count on in times like these. Tim
                          Stage 3 seminoma w/intratubular Germ/ embryonal carcinoma in lymph/ pulmonary metastases
                          I/O 7/2/03
                          BEPx4
                          Surveillance since 10/31/03

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                          • #14
                            To my Big Brother Mark

                            Originally posted by TCLEFT
                            Ha Ha Mom and dadmo love me best. Sorry for that outburst. Just breaking out my humor shield again and trying to lance (good choice of words) some pesky demons. (You know what I mean my Jersey Sister). .
                            Mark, this is going to hurt- so I'm just going to come out with it. Mom and DaddyMo Love me the most, it has always been that way- and always will!!!
                            I'm going to get the nicer car, I will go to the better college, my wedding will be paid for-all that.
                            So, don't let the jealosy consume you- go out and hit the bag, or get another TAT. Just don't get mad at me because I'm the favorite- Just remember, I will one day have power of attorney
                            Love you, Brother- see you next week
                            __________________
                            Stage III. Embryonal Carcinoma, Mature Teratoma, Choriocarcinoma.
                            Diagnosed 4/19/06, Right I/O 4/21/06, RPLND 6/21/06, 4xEP, All Clear 1/29/07, RPLND Incisional Hernia Surgery 11/24/08, Hydrocelectomy and Vasectomy 11/23/09.

                            Please see a physician for medical advice!

                            My 2013 LiveSTRONG Site
                            The 2013 Already Balders

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                            • #15
                              Originally posted by TCLEFT
                              Just breaking out my humor shield again and trying to lance (good choice of words) some pesky demons. (You know what I mean my Jersey Sister).
                              I do, my Jersey Bro.

                              I hope we don't have to break up a "mom...he's looking at me" moment with you and Joe at the party!!!
                              Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

                              Comment

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