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RPLND tomorrow

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  • RPLND tomorrow

    Hi Everyone -

    Well, tomorrow is Rob's RPLND. We have to be at Sloan at 5:45 a.m. He's still going through the "prep" part of today.

    As always, if there are any tips you have that I can pass along, by all means let me know. I greatly appreciate how you all have been here for us and all the questions and worries we've had so far. The information and support is really invaluable.

    I have to pack now; everyone stay healthy - or get healthier - while we're gone!! Hopefully I'll get to check the forum from the hospital; I don't know if I'm going to bother bringing Rob's laptop.

    Love and Livestrong -
    Rob and Stacy
    DX: 3/10/05, AFP: 15,047, L I/O: 3/28/05, Yolk sac tumor & teratoma, Stage IIIC, 3xBEP & 1xEP: 4/4/07 - 6/25/07, AFP: 14, RPLND 8/10/07, w. left kidney removed. 10/19/07, AFP: 1.9

  • #2
    Stacey, my son Chris had his RPLND at Sloan two years ago...yes, you will be able to access a computer both in the waiting room downstairs and also up on his floor....he is in good hands at Sloan.....they will have him up and walking quicker than you think.....good luck and I will be thinking of you both....Mary Ellen


    • #3
      One big tip is to keep the catheter bag below his waist when you move it. Having that stuff flush back in is no fun.
      Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

      Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.


      • #4
        Our best wishes to Rob for a very speedy, uneventful recovery with a terrific pathology report. Keep us posted, Stace. Dianne
        Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
        Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma


        • #5
          Stacy my dear friend...I think you've already taken to heart my one piece of advise about RPLND, so I'll just wish you and Rob much luck tomorrow. I remember having to be at the hospital at 5:45am for Andy's surgery. His took about 6 hours, and Stacy I'll warn you that the last hour really starts to make your skin crawl, so find something that will keep you occupied as much as possible. Waiting sucks!

          I'm sure everyone's been practicing their happy dances in anticipation of a great recovery for Rob.

          "In this age, which believes that there is a short cut to everything, the greatest lesson to be learned is that the most difficult way is, in the long run, the easiest."
          - Henry Miller

          Hang tough Rob & Stacy...and take good care! We'll be thinking of you on Friday.
          *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
          *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
          *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance


          • #6
            Hey, I had my RPLND by Dr. Sheinfeld at Sloan exactly 6 weeks ago. He is definitely in good hands. Make sure to walk as much as possible - I think they told me something like 14 laps around the floor is a mile. The more you walk, the sooner you can eat, drink, etc. It's tough not being able to drink for a few days - just be prepared for that. For me, the morphine did not really relieve pain, so they gave me something stronger the first day or so - it was good, whatever it was! Do EXACTLY what Dr. Sheinfeld recommends. Follow everything that man says and you will be just fine! Anyhow, good luck. Say "hi" to Dr. Sheinfeld for me!

            *Diagnosed 2/26/2007 - left testicle - 2.5 cm mass
            *Radical Orchiectomy 2/29/2007 - embryonic germ cell tumor
            *Initial CT scan revealed one enlarged lymph node at 1.5cmx1.5cm
            *Subsequent CT scan 2 weeks later revealed lymph node had doubled to 2.7cmx2.7cm.
            *Underwent 4 rounds of Chemotherapy (Cisplatin/Etopiside) from March-June 2007
            *CT scan revealed node had shrunk to 0.7cmx0.7cm
            *RPLND surgery performed by Dr. Sheinfeld at MSKCC June 27, 2007


            • #7
              good luck tomorrow!!!

              Fiance Brian, dx:stage IIIC non-sem 4/18/07
              mets to lungs,liver,abdomin,large tumor near kidney
              hcg was 176,000!
              completed 1 rnd of TIP(had bad reaction to taxol)
              BEPx3 until 7/13/07
              7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
              10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
              AFP & HCG normal
              12/7/07 RPLND,right orchiectomy @ MSKCC
              12/18/07, rcvd pathology,all clear! no cancer!
              2/11/08 -Lung surgery dne @ MSKCC
              ALL CLEAR


              • #8
                Best of Luck!!!
                I Love My Pack!



                • #9
                  My best wishes to Rob on a successful surgery and a prompt recovery.
                  "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
                  11.22.06 -Dx the day before Thanksgiving
                  12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.


                  • #10
                    Best wishes for an uneventful RPLND. Make sure Rob doesn't rush his recovery. Don't let him lift anything heavier than his arms for at least 6 weeks!
                    Right I/O 4/22/1988
                    RPLND 6/20/1988
                    Left I/O 9/17/2003

                    Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.


                    • #11
                      Hi Stacy

                      I had my RPLND done lastweek at Sloan, Rob will be in good hands they will take good care of him. The sponge on a stick will help a lot to moist his lips, ask the nurse and they wil give you a bunch of them. The whole 5th floor is WIFI accessible they have an internet access in front of the nurses station too it's the lounge area. They will make him do the laps on the 2nd day but tell Rob to take his time take it easy. Pain and discomfort is the hardest especially sleeping and getting off bed but he will have the controll of the morphine PCA. Garage parking is on 68th and York that connects all the way to the hospital from the basement. I had baby wipes on me because I started to smell like a champion on my 3rd day, sponge bath is okay too 4th day I took a shower. My IV drips were ( potassium ch, morphine PCA and zantac). Other than that stay strong and livestrong I will include Rob on his swift recovery : ) .
                      Pure embryonal Carcinoma, orchietomy, rplnd, X-ray/blood markers every 3 months.
                      Pray, Hope and Don't worry.