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Tomorrow Is The Big Day!

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  • #1

    Tomorrow Is The Big Day!

    Just wanted to remind everyone that brian goes to get his pet-scan results tomorrow and also to mee with Dr. sheinfeld!

    i dont know what i am going to do!!! i will be stuck at work i couldnt take off.. and i so BADLY want to be there with him

    can anyone tell me there experience with Dr. sheinfeld in the beginning? like what they remember discussing with him? we were sure if Brian was going to have the surgeries, But my guess is that if sheinfeld wants to meet with Brian, he will be having surgery? i dont think they would waste his time?


    Dawn
    Fiance Brian, dx:stage IIIC non-sem 4/18/07
    mets to lungs,liver,abdomin,large tumor near kidney
    hcg was 176,000!
    completed 1 rnd of TIP(had bad reaction to taxol)
    BEPx3 until 7/13/07
    7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
    10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
    AFP & HCG normal
    12/7/07 RPLND,right orchiectomy @ MSKCC
    12/18/07, rcvd pathology,all clear! no cancer!
    2/11/08 -Lung surgery dne @ MSKCC
    ALL CLEAR
    Tags: None
  • #2
    Hi dawn, I also e-mailed you.

    First one of Dr. Sheifeld's 'fellows' will come in to talk to you. Ours was very nice and took a full report from us. After, Dr.S will come in, do a full exam, go over the PET scan and then answer any questions. Dr. S is not a chatty guy...he is very direct and no-nonsense about things...but he is nice and made us feel that we were in good hands. His nurses will be there and they will give him strict instructions on what to do regarding eating, drinking, pre-surgery and post surgery. Follow the rules, no questions asked, they know what they are talking about so trusting them is key.

    I feel certain he would not have made the appt. with Brian just to tell him he would not be doing the surgery. My guess is that they are planning to move forward with the RPLND. You are in some of the best hands in the world.

    Let us know how it goes!!
    Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
    Current DVT
    Current testosterone replacement therapy, Testim.

    "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

    Comment

    • #3
      Dawn:

      I can't offer any info on Dr. S, but my thoughts and prayers are going to be with you and Brian tomorrow.

      Fish
      Fish
      TC1
      Right I/O 4/22/1988
      RPLND 6/20/1988
      TC2
      Left I/O 9/17/2003
      Surveillance

      Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.

      Comment

      • #4
        Hi Dawn, I agree with Margaret...Dr. Sheinfeld is no nonsense, but the best there is! We met with him on a Thursday afternoon and Chris had surgery the next day .....we knew he was in good hands....I am sure all will go great...Mary Ellen

        Comment

        • #5
          Dawn,
          I agree with everyone else. If he's meeting Sheinfeld he will recommend the RPLND and it will be soon. Just remember this guy is as good as it gets.
          Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

          Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

          Comment

          • #6
            Hey Dawn,
            It's mommo..... redundent....but Dr. S is the best. The fellows come in and make "some" small talk with you (personal touch) .. but Dr. S is the BIG guy..... 'we were in sloan for 10 days with Jason....everyone was great. H
            Just try to hang in there. As the time gets closer, we'll have lots of info for you.......

            Comment

            • #7
              Dawn,
              I'll be here praying for you. Let me know how it goes, I can't wait...

              Comment

              • #8
                Thank you to all for your prayers and advise! it really helps!!
                i will let everyone know when i hear. i couldnt take off work today to be with him

                Dawn
                Fiance Brian, dx:stage IIIC non-sem 4/18/07
                mets to lungs,liver,abdomin,large tumor near kidney
                hcg was 176,000!
                completed 1 rnd of TIP(had bad reaction to taxol)
                BEPx3 until 7/13/07
                7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
                10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
                AFP & HCG normal
                12/7/07 RPLND,right orchiectomy @ MSKCC
                12/18/07, rcvd pathology,all clear! no cancer!
                2/11/08 -Lung surgery dne @ MSKCC
                ALL CLEAR

                Comment

                • #9
                  Im Freeeeeaaaaaking!

                  I am stuck at work here waiting for a phone call from Brian or his mom
                  i am so nervous for the results that i am making myself feel sick. his appt was at 11:15 and its now 12:30!! im probably jumping the gun here, but this is so hard not being with him


                  Dawn
                  Fiance Brian, dx:stage IIIC non-sem 4/18/07
                  mets to lungs,liver,abdomin,large tumor near kidney
                  hcg was 176,000!
                  completed 1 rnd of TIP(had bad reaction to taxol)
                  BEPx3 until 7/13/07
                  7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
                  10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
                  AFP & HCG normal
                  12/7/07 RPLND,right orchiectomy @ MSKCC
                  12/18/07, rcvd pathology,all clear! no cancer!
                  2/11/08 -Lung surgery dne @ MSKCC
                  ALL CLEAR

                  Comment

                  • #10
                    Hope you hear from them soon Dawn.

                    If he is anything like my husband he doesn't relize how important it is to you even if it is negative and he forgot to call.

                    Sending cyber hugs


                    Becki

                    Husband Right I/O 09/06
                    -70% Embryonal Carcinoma
                    -20% Teratoma
                    -10% Yolk Sac Tumor
                    11/06- lymph nodes 1.8x1.4 and 1.9x1.4
                    12/06-PET Scan confirms activity in lymph nodes, lymph nodes 2.2x2.2 and 2.4x2.3
                    1/07-Start 3xBEP
                    4/07-PET clear, lymph nodes down to 1.1x0.5 and 1.8x1.0
                    6/07-lymph nodes 1.2x1.0 and 1.9x.9
                    8/07-lymph nodes 1.1x1.0 and 2.0x1.2
                    10/07-lymph nodes 2.0x1.5 and 2.7x1.8
                    11/07- PostChemo LRPLND-found burnt out teratoma
                    11/09-Enlarging lymph node 1.2 cm near renal veins

                    Comment

                    • #11
                      Of all the things we had to endure while battling cancer, waiting was the worst....hands down. I hope you hear soon.
                      Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
                      Current DVT
                      Current testosterone replacement therapy, Testim.

                      "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

                      Comment

                      • #12
                        Waiting Suck!

                        I'll be praying for you. Hang in there!!!

                        Comment

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