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  • one more question..........

    I would think that because Brian's markers are down to 6, that there is a good chance the cancer is almost gone? well, is it possible for the pet-scan to show alot of active cancer, even though he has low markers? thats what i am afaid of!

    Dawn
    Fiance Brian, dx:stage IIIC non-sem 4/18/07
    mets to lungs,liver,abdomin,large tumor near kidney
    hcg was 176,000!
    completed 1 rnd of TIP(had bad reaction to taxol)
    BEPx3 until 7/13/07
    7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
    10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
    AFP & HCG normal
    12/7/07 RPLND,right orchiectomy @ MSKCC
    12/18/07, rcvd pathology,all clear! no cancer!
    2/11/08 -Lung surgery dne @ MSKCC
    ALL CLEAR

  • #2
    Originally posted by DAWN82
    I would think that because Brian's markers are down to 6, that there is a good chance the cancer is almost gone? well, is it possible for the pet-scan to show alot of active cancer, even though he has low markers? thats what i am afaid of!

    Dawn
    Dawn,
    What did the Doctor or Nurse say to that question?
    They would be able to give you the answer where we could only guess.
    Stage III. Embryonal Carcinoma, Mature Teratoma, Choriocarcinoma.
    Diagnosed 4/19/06, Right I/O 4/21/06, RPLND 6/21/06, 4xEP, All Clear 1/29/07, RPLND Incisional Hernia Surgery 11/24/08, Hydrocelectomy and Vasectomy 11/23/09.

    Please see a physician for medical advice!

    My 2013 LiveSTRONG Site
    The 2013 Already Balders

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    • #3
      Ok, Let Me Rephrase My Question.....

      Ig Someone Goes Through The Chemo And Does Well, And Markers Have Gone Down, If The Petscan Shows Some Active Cancer, What Happens Next? More Chemo? Even Though The Markers Are Down? I Was Just Wondering What Some Experiences Were.

      Dawn
      Fiance Brian, dx:stage IIIC non-sem 4/18/07
      mets to lungs,liver,abdomin,large tumor near kidney
      hcg was 176,000!
      completed 1 rnd of TIP(had bad reaction to taxol)
      BEPx3 until 7/13/07
      7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
      10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
      AFP & HCG normal
      12/7/07 RPLND,right orchiectomy @ MSKCC
      12/18/07, rcvd pathology,all clear! no cancer!
      2/11/08 -Lung surgery dne @ MSKCC
      ALL CLEAR

      Comment


      • #4
        Dawn,
        I wish I could just give you a hug right. I know your anxiety if running very, very high, and we all go through the "what ifs" in our heads but until you hear the results on the PET you won't know the next steps.
        The AFP going down does show a response to the chemo, and AFP of 6 is excellent. Really, really excellent. Dr S, armed with the entire history, will guide you and guide you well. I know the wait is agonizing, focus on ths positives as best you can.
        We know what you are asking but can't answer it for you. Depending on what lights up there can be chemo, radiation or surgery.....just hang on until you know what you are dealing with and then we can give you our thoughts
        Karen
        Last edited by Karen; 08-16-07, 10:45 AM.
        Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

        Comment


        • #5
          Dawn:
          All we can really say is that if the PET lights up there will be additional treatment.
          Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

          Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

          Comment


          • #6
            Originally posted by dadmo
            Dawn:
            All we can really say is that if the PET lights up there will be additional treatment.
            Just remember what I posted on this subject elsewhere: there are normal structures that will light up on a PET because they are metabolically active (such as brown fat, the heart, and sometimes the kidney and the liver). You will have a path once Brian meets up with Dr. Sheinfeld. Hang tough,
            "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
            11.22.06 -Dx the day before Thanksgiving
            12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

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