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  • #1

    results

    Brian just stated that he was told by the Dr. that the petscan showed slight halo around tumors...... markers are at 5, #'s still low enough for surgery, has to have a liver biospy, and if the Dr. decides they have to operate, it will be a long surgery and they might have to remove a kidney so at thist point, i am still in the dark with everything.

    Dawn
    Fiance Brian, dx:stage IIIC non-sem 4/18/07
    mets to lungs,liver,abdomin,large tumor near kidney
    hcg was 176,000!
    completed 1 rnd of TIP(had bad reaction to taxol)
    BEPx3 until 7/13/07
    7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
    10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
    AFP & HCG normal
    12/7/07 RPLND,right orchiectomy @ MSKCC
    12/18/07, rcvd pathology,all clear! no cancer!
    2/11/08 -Lung surgery dne @ MSKCC
    ALL CLEAR
    Tags: None
  • #2
    Boyce and I spoke to Dawn tonight....and I know you are worried sick Dawn...but I am posting so our family here can rally around you...We are here for you....all of us!
    Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
    Current DVT
    Current testosterone replacement therapy, Testim.

    "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

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    • #3
      Dawn,
      I'm know exactly how you feel. You are wishing you will get all the answers, but once again you start to play the waiting game. It's so hard waiting for all the results and wondering what exactly will happen next. But it sounds as though Brian is in good hands. I am here for you! I know how fustrating things can get.
      Hugs,
      Sabrina

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      • #4
        Hi Dawn: Hang in there...I know the waiting and the uncertainty sucks. I always paralleled the waiting game with a heavy fog. It always felt like you were stuck trying to get through the thick of it, but no matter how many steps you took the fog just lingered. Here's hoping that clarity comes your way SOON! Best wishes...we're hoping for good news for you and Brian.
        Maria
        *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
        *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
        *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance

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        • #5
          Dawn, thinking of you and hoping you get your answers soon. As we all know, the waiting and unanswered questions is the hardest part. Just keep pushing those doctors!

          Lori
          Lori and Jon
          Diagnosed 5/22/2006
          I/O 5/26/2006, Stage 3, Good
          Teratoma (Majority), Seminoma (10%), Yolk Sac
          3xEP then determined not working
          HDC w/stem cell transplant 8/16/06 to 9/25/06
          Chest and Neck surgery 10/9/06 - immature teratoma
          RPLND 11/16/06 - immature Teratoma
          2/29/2008 - markers continue to be normal!
          9/16/2008 - released from Dr. Einhorn's care

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          • #6
            Hi Dawn, I know you wanted Dr. Sheinfeld's number...646-422-4311 a second number is 646-422-5840. I hope this helps and you get the answers you need.

            Big hugs.
            Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
            Current DVT
            Current testosterone replacement therapy, Testim.

            "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

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            • #7
              Dawn, Hang in. Know we're all here for whatever you need.
              Much Love,
              Mark
              I Love My Pack!

              sigpic

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              • #8
                Dawn, hang in there...the waiting game with this whole thing is the worst....keep in touch.many prayers.......Mary Ellen

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                • #9
                  Dawn -

                  This is a hard and confusing time for you both right now, I am sure. Please know how IN LOVE with Joel Sheinfeld I am... and I know many on the forum have such positive things to say about him. It's true, when he says jump around here, everyone asks, how high?? Rob had a nephrectomy also (kidney removed) and he came through with flying colors, so far. We are awaiting pathology, but Sheinfeld was very pleased with the surgery (his own words) and he comes to check on Rob almost every day. He is very involved with his patients. Know that Brian will be here a little longer than the average patient but his caregivers have been wonderful. If you have any questions about anything, send me a PM or I can answer you here.
                  Rob and Stacy
                  DX: 3/10/05, AFP: 15,047, L I/O: 3/28/05, Yolk sac tumor & teratoma, Stage IIIC, 3xBEP & 1xEP: 4/4/07 - 6/25/07, AFP: 14, RPLND 8/10/07, w. left kidney removed. 10/19/07, AFP: 1.9

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