Announcement

Collapse
No announcement yet.

neuropathy

Collapse
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
  • #1

    neuropathy

    i'm sure this subject has been touched on but anyone outthere on gabapentin? my onc started me on it not long ago and it isnt doing much for my feet. at my 5 week post rplnd recheck thursday my onc uped it to 1 cap 3x aday instead of 2x. any suggestions? oh markers came back and the afp was 2 and hcg was less then 2 ;-). with that said we'll be going to our annual relay for life tonite as i'd like to see what it's all about.

    thanks

    fight the good fight....you can win
    severe back pain ( found to be tumor rpgct) no pain/irregularities with twins at all
    diagnosed 11-15-06 stage 3c mets to lungs/shortness of breath, choriocarcinoma, hcg 212,000
    11-16-06 1st of 4 rnds. in patient bep
    2-07 1st of 3 rnds. in patient salvage tip
    met dr. einhorn 4-17-07 ultra-sound (1st one)
    5-10-07 left i/o (immature teratoma)
    7-12-07 rplnd (dr.foster)
    8-16-07 all-clear and in surveillance mode
    started TRT...androgel 12-5-08
    fight the good fight...you can win
    Tags: None
  • #2
    I was on Lyrica. All it did after a while was knock me out. I'm trying Cymbalta this Weekend. I'll let you know if and when it kicks in. fingers crossed.
    Best of Luck,
    Mark
    I Love My Pack!

    sigpic

    Comment

    • #3
      Originally posted by k.strehle
      oh markers came back and the afp was 2 and hcg was less then 2 ;-). with that said we'll be going to our annual relay for life tonite as i'd like to see what it's all about.
      Congrats on the "all clear". The Relay for Life is very emotional during the candle lighting.
      Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

      Comment

      • #4
        Hi Kendall: Glad to see you're doing well...sorry that I have no pearls of wisdom to offer on your question but I just wanted to say "hi". Have a great time tonight...I'm sure it will be very powerful and moving.
        Maria
        *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
        *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
        *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance

        Comment

        • #5
          relay for life was very moving, had luminaries lined all the way around the track. had 1 made for my mother(multiple myloma) and 1 for myself. thanks for the replys. i asked doc. about that lycria (sp) and he said that it would not help me...mmmmm. so i guess that is why he uped mine to 3x aday. will let know.
          thanks
          severe back pain ( found to be tumor rpgct) no pain/irregularities with twins at all
          diagnosed 11-15-06 stage 3c mets to lungs/shortness of breath, choriocarcinoma, hcg 212,000
          11-16-06 1st of 4 rnds. in patient bep
          2-07 1st of 3 rnds. in patient salvage tip
          met dr. einhorn 4-17-07 ultra-sound (1st one)
          5-10-07 left i/o (immature teratoma)
          7-12-07 rplnd (dr.foster)
          8-16-07 all-clear and in surveillance mode
          started TRT...androgel 12-5-08
          fight the good fight...you can win

          Comment

          • #6
            Hi:

            I've been treated for peripheral neuropathy not related to TC, but caused by degenerative disk disease, mostly sciatic pain. I've tried nortriptyline, gabapentin, cymbalta, and lyrica. I can't really say if any have helped; they've all caused side effects that forced me to stop taking them within a week of beginning treatment. They ranged from drowsiness/dizziness to feeling too wired. But these meds are really varaible from person to person, and I don't tolerate most meds very well. The doctor told me he has 70 year old patients taking 5x the dose of gabapentin that I could not tolerate. So keep trying, hopefully you'll find something that will help.

            Mark:
            I hope the cymbalta helps, that problably gave me the least side effects of anything that I tried.

            BTW: I find it interesting that the doc would tell you that lyrica would not work if he thinks gabapentin will. Both drugs bind to the same subunit of voltage-dependant calcium channels in the central nervous system.

            Mmmmmm is right!!!
            Last edited by Fish; 08-20-07, 08:31 AM.
            Fish
            TC1
            Right I/O 4/22/1988
            RPLND 6/20/1988
            TC2
            Left I/O 9/17/2003
            Surveillance

            Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.

            Comment

            • #7
              tell me more about cymbalta.....forgot to mention while at indy i had a chance to talk to dr. einhorn in july 11 about gabapentin. he said i will know in a day or two if it will help, otherwise it wont. the damage will take nothing but time if it comes back at all. will try and go to 4x aday next week or two, if that doesnt help it looks like im sol. will just have to deal with it.
              thanks for the input

              kendall
              severe back pain ( found to be tumor rpgct) no pain/irregularities with twins at all
              diagnosed 11-15-06 stage 3c mets to lungs/shortness of breath, choriocarcinoma, hcg 212,000
              11-16-06 1st of 4 rnds. in patient bep
              2-07 1st of 3 rnds. in patient salvage tip
              met dr. einhorn 4-17-07 ultra-sound (1st one)
              5-10-07 left i/o (immature teratoma)
              7-12-07 rplnd (dr.foster)
              8-16-07 all-clear and in surveillance mode
              started TRT...androgel 12-5-08
              fight the good fight...you can win

              Comment

              • #8
                Originally posted by k.strehle
                tell me more about cymbalta.....forgot to mention while at indy i had a chance to talk to dr. einhorn in july 11 about gabapentin. he said i will know in a day or two if it will help, otherwise it wont. the damage will take nothing but time if it comes back at all. will try and go to 4x aday next week or two, if that doesnt help it looks like im sol. will just have to deal with it.
                thanks for the input

                kendall
                Cymbalta is an anti-depressant with neuropathy indications as well. So far, the pain is lessened, but not gone, and I'm a bit tired. Still a work in progress. Hopefully everything will stabilize.
                Mark
                I Love My Pack!

                sigpic

                Comment

                • #9
                  Kendall:

                  Cymbalta (duloxetine HCl) is a potent inhibitor of serotonin and norepinephrine reuptake by nerve endings. It also inhibits dopamine reuptake, but not as strongly.

                  While classified as an antidepressant, clinical trials showed that it was effective in treating peripheral neuropathy in diabetic patients, which is why doctors have been trying it for peripheral neuropathy related to other causes (disk problems and chemo side effects), however, I don’t think there have been any clinical trials for neuropathy caused by back problems or chemo.

                  If you go to www.rxlist.com and type in cymbalta, you can get the detailed info.

                  It might be worth considering if gabapentin doesn’t work. For me it made me feel too wired, (probably from the inhibition of norepi reuptake) so I had to stop.

                  Best wishes.
                  Fish
                  TC1
                  Right I/O 4/22/1988
                  RPLND 6/20/1988
                  TC2
                  Left I/O 9/17/2003
                  Surveillance

                  Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.

                  Comment

                  • #10
                    thanks, am almost done with rx that was filled and will ask about cymbalta. worth a shot. i head back to work (light duty) 9-10 and at times i do lots of walking so maybe i can try some prior to that

                    thanks again

                    kendall
                    severe back pain ( found to be tumor rpgct) no pain/irregularities with twins at all
                    diagnosed 11-15-06 stage 3c mets to lungs/shortness of breath, choriocarcinoma, hcg 212,000
                    11-16-06 1st of 4 rnds. in patient bep
                    2-07 1st of 3 rnds. in patient salvage tip
                    met dr. einhorn 4-17-07 ultra-sound (1st one)
                    5-10-07 left i/o (immature teratoma)
                    7-12-07 rplnd (dr.foster)
                    8-16-07 all-clear and in surveillance mode
                    started TRT...androgel 12-5-08
                    fight the good fight...you can win

                    Comment

                    Previous template Next
                    Working...
                    X