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  • Danny

    Thank you everyone so much for all your posts.

    I have some very difficult news. Danny was taken off of the Flavopuridol study this week. His HCG level has doubled since his last treatment. It is the last thing we ever wanted to hear.

    We are now frantically trying to figure out what is next. We are looking for clinical trials and second opinions. We are looking for a little hope. It looks like sloan is recommending single agent chemo. Either Gemcitabine or oral itopiside. There are trials at Sloan that danny could qualify for but they look full. We are just trying to figure this out.

    We understand the situation but we are not giving up. I believe there must be something out there that can help him.

    Thank you all again for all your words and thoughts and prayers.

    Lovestrong always,
    Mikey

  • #2
    My love and prayers, Mikey, Danny.

    Diane

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    • #3
      This is very hard news indeed, Michael and I know it was a real hard blow to Danny, you, and your family. I pray that the recommended chemo will work for Danny. Please let us know as soon as you can.

      I'm praying for you guys.. I just wish I could do something to help..

      Lots of love and prayers for you all .

      Tammy & Anthony

      Son Anthony DX 12/11/06
      L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
      4XEP 1/29-4/6/ 07
      AFP started increasing3 wks later
      Residual abdominal mass found on CT
      RPLND 6/8/07
      Cancer in pathology-
      80% mature teratoma, 20% Yolk Sac. --
      No adjuvent chemo and
      AFP normalised

      July 22, 2010 ---- 3 years all clear!

      Comment


      • #4
        Michael, Danny - I'm so sorry to hear this...I feel so helpless and wish I could offer you more than just my words. My love and support goes out to you and your folks. There is ALWAYS hope...don't ever lose that.
        Maria
        *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
        *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
        *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance

        Comment


        • #5
          I pray with all my might. Keep fighting! Call us any time day or night 908-850-5612. I'm so honored and blessed I know your Family (my Family). I despise the reason why. Get it on the run again. I wish this thing would take a form I could hit. I wish I could get my hands on it. Hang in Little Brothers. Please call us if you need anything. Prayers and hope to a level I've never known before mixed with a hatred towards this thing I've not known before either.
          All the Love I have to you,
          Mark
          Michael,
          I sent you a PM. My e-mail is [email protected] or [email protected].
          Last edited by TCLEFT; 08-17-07, 08:25 PM.
          I Love My Pack!

          sigpic

          Comment


          • #6
            I wish I could grant the one thing you need. We're here for you 24/7/365.
            201-445-2532. We're only a short trip away, we can be there in minutes.
            Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

            Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

            Comment


            • #7
              Michael, you, Danny and your Mom and Dad are constantly on my mind. Please don't give up. I am praying. Dianne
              Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
              Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

              Comment


              • #8
                Michael -

                I will keep you and your brother danny in my thoughts & prayers.

                pete
                - lump first noticed 11/20/2005
                - I/O right Dec 8, 2005
                - 95% embryonal / 5% seminoma
                - normal markers PRE surgery
                - no vascular invasion, tunica free of cancer, epididymis free of cancer, lungs free, lymph free
                - Stage I diagnosis
                - surveillance
                - mid feb '06, beta hcg slightly elevated = 4.6...small enlarged lower node seen on CT scan...
                - 3BEP began feb 20, 2006
                - finished 3 BEP, last bleo, april 17, 2006
                - CT scan, blood markers, chest..all clear
                - back on surveillance

                Comment


                • #9
                  Michael, Danny, Nancy and Ira,
                  We're pulling for you as hard as we can. E-mail or call me if you need anything this weekend.
                  Love, hope, faith, strength,
                  Karen
                  Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

                  Comment


                  • #10
                    Mikey and Danny,
                    I'm pushing all my vibes your way.
                    This is tough news indeed, but we are a touch bunch, and we are here.
                    I'm with Mark, I wish I could hit it.
                    LiveSTRONG
                    Joe and Majbritt
                    Stage III. Embryonal Carcinoma, Mature Teratoma, Choriocarcinoma.
                    Diagnosed 4/19/06, Right I/O 4/21/06, RPLND 6/21/06, 4xEP, All Clear 1/29/07, RPLND Incisional Hernia Surgery 11/24/08, Hydrocelectomy and Vasectomy 11/23/09.

                    Please see a physician for medical advice!

                    My 2013 LiveSTRONG Site
                    The 2013 Already Balders

                    Comment


                    • #11
                      Mikey and Danny my prayers are with you all the way. I'll be in the city this Sunday chi town area if you need anything you got my number on your pvtmsg.

                      Mike
                      Pure embryonal Carcinoma, orchietomy, rplnd, X-ray/blood markers every 3 months.
                      Pray, Hope and Don't worry.

                      Comment


                      • #12
                        Mikey and Danny....I opened this post and my heart is breaking...my prayers to St. Anthony will be for Danny...meeting you both and your family makes this such a personal thing...please don't give up....there are always miracles....where there is life there is hope.....my love to Danny....Mary Ellen and Don

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                        • #13
                          Hugs!!!!!!!!!!!!!!!!!!! I have copied your request for info to the scientists. Because of a few problems that Russell has had, I expect to speak with a most helpful and knowledgable urologist from San Francisco Tomorrow. I will ask his thoughts. This doctor also volunteers at "Second Opinion" in San Francisco. This group, I do believe, functions at the top of Maslow's chart. Although it is set up for info to Californians, I am going to copy and send for any possible ideas or directions. They are top docs on the west coast. (Regional Cancer Foundation-Second Opinion on Gough St in San Francisco.) Words are scarce, love is big....with you, Sharon
                          Click here to support my LIVESTRONG Challenge with Team LOVEstrong.

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                          • #14
                            I am so sorry to hear this

                            Danny is a real fighter with an incredible attitude.
                            There are still some other things to do for him.
                            My prayers are with Danny and all his familly.
                            Eric

                            Stage 1 seminoma in august 2001
                            with invaded spermatic chord and treated with RT
                            Relapse november 2005, 4 BEP and now back to surveillance

                            Comment


                            • #15
                              I'm so sorry for this setback. But if anyones is a true fighter, it's Danny. Love and Prayers to you all.
                              Krista
                              Brother Diag. 10/05 Non-Sem.
                              Right I/O 11/05
                              Surv
                              4XBEP 8/06
                              RPLND 12/06
                              2X VIP 1/22/07
                              Only completed 1 Rd.

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