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  • #16
    Originally posted by dannysbrother
    Tammy,

    I'm so glad to read this. Very relieved for you and your son.

    Sorry for not keeping up with the thread, just know I read when I can and always have you in my positive thoughts.

    Lovestrong,
    Mikey
    Michael,

    God bless you, and thank you. I know that you, danny, and your family are fighting a fierce battle right now, and I would not expect you to be keeping up with posts on this site.
    I'm watching for news about how dannys treatment is going, as I'm sure all members are.
    You all are in our thoughts and prayers daily.

    Praying for positive news-

    much love,
    Tammy

    Son Anthony DX 12/11/06
    L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
    4XEP 1/29-4/6/ 07
    AFP started increasing3 wks later
    Residual abdominal mass found on CT
    RPLND 6/8/07
    Cancer in pathology-
    80% mature teratoma, 20% Yolk Sac. --
    No adjuvent chemo and
    AFP normalised

    July 22, 2010 ---- 3 years all clear!

    Comment


    • #17
      Originally posted by sldl1106
      Tammy -

      I am so glad to see that the number has dropped!! That's a pretty good drop from 11. I hope it continues to go down.

      Getting a new onc. sounds like a good plan.

      Thank you Stacy

      Son Anthony DX 12/11/06
      L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
      4XEP 1/29-4/6/ 07
      AFP started increasing3 wks later
      Residual abdominal mass found on CT
      RPLND 6/8/07
      Cancer in pathology-
      80% mature teratoma, 20% Yolk Sac. --
      No adjuvent chemo and
      AFP normalised

      July 22, 2010 ---- 3 years all clear!

      Comment


      • #18
        Originally posted by mstlyn
        Michael,

        God bless you, and thank you. I know that you, danny, and your family are fighting a fierce battle right now, and I would not expect you to be keeping up with posts on this site.
        I'm watching for news about how dannys treatment is going, as I'm sure all members are.
        You all are in our thoughts and prayers daily.

        Praying for positive news-

        much love,
        Tammy

        I 2nd that tammy!! Michael we all love Danny and you! and we are here for you!


        Tammy i am so happy for you guys! waiting always sucks, but when you get some relief, it makes all the diffrence!

        Dawn
        Fiance Brian, dx:stage IIIC non-sem 4/18/07
        mets to lungs,liver,abdomin,large tumor near kidney
        hcg was 176,000!
        completed 1 rnd of TIP(had bad reaction to taxol)
        BEPx3 until 7/13/07
        7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
        10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
        AFP & HCG normal
        12/7/07 RPLND,right orchiectomy @ MSKCC
        12/18/07, rcvd pathology,all clear! no cancer!
        2/11/08 -Lung surgery dne @ MSKCC
        ALL CLEAR

        Comment


        • #19
          Tammy,
          I'm glad to hear that the markers seem to be normalizing. I am looking forward to hearing good news about the scans.
          "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
          11.22.06 -Dx the day before Thanksgiving
          12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

          Comment


          • #20
            Tammy,
            I loved seeing the lowering number included in your signaturs and fully expect to see an all clear on the scans! Hang in there....waiting sucks!
            Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

            Comment


            • #21
              Just to keep you updated. Nothing significant is going on with Anthonys markers lately.

              As you know, he is getting them checked weekly since it started to increase on Aug. 8th.

              His new chest scan was clear-

              AFP has been

              July 16- 3.2

              Aug 8- 9.2

              Aug 15- 11.9

              Aug 23- 7.2

              Aug 30 7.3

              HCG and LDH remain normal

              Son Anthony DX 12/11/06
              L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
              4XEP 1/29-4/6/ 07
              AFP started increasing3 wks later
              Residual abdominal mass found on CT
              RPLND 6/8/07
              Cancer in pathology-
              80% mature teratoma, 20% Yolk Sac. --
              No adjuvent chemo and
              AFP normalised

              July 22, 2010 ---- 3 years all clear!

              Comment


              • #22
                Having nothing exciting to report is exciting in itself. Congratulations.
                Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

                Comment


                • #23
                  Good news on the clear sacn and no rise! What's the plan going forward?
                  Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

                  Comment


                  • #24
                    Good news is no news, or something like that.
                    I Love My Pack!

                    sigpic

                    Comment


                    • #25
                      Yeah Im glad to see that it isn't rising, but I don't understand why it won't go back down like it was, so it does bug me a little. Thanks.

                      Karen, there is no plan and I hope it stays that way. There are only two ways this can go.

                      AFP will either rise and he will have HDC at Indiana, or it won't and he will be fine.
                      I'm curious to see the next results from the blood draw he had yesterday.

                      He has an appointment with his oncologist on the 13th of this month, and I'm sure they will be scheduling another abdominal/pelvis scan soon. His last one was July 27. Not sure if they are going to do them every 2 mos, or 3.

                      Son Anthony DX 12/11/06
                      L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
                      4XEP 1/29-4/6/ 07
                      AFP started increasing3 wks later
                      Residual abdominal mass found on CT
                      RPLND 6/8/07
                      Cancer in pathology-
                      80% mature teratoma, 20% Yolk Sac. --
                      No adjuvent chemo and
                      AFP normalised

                      July 22, 2010 ---- 3 years all clear!

                      Comment


                      • #26
                        Just an update on Anthonys AFP situation -

                        After starting to increase in august, Dr. Einhorn recommended that he start having AFP checks weekly to watch for a rising trend.

                        The last 3 weeks it has been hovering in the 7 range .. 7.2, 7.3, 7.1 with the latest one still pending.

                        Dr. Einhorn says that he is glad to see that the AFP has declined, and says he should go back to monthly checks

                        Son Anthony DX 12/11/06
                        L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
                        4XEP 1/29-4/6/ 07
                        AFP started increasing3 wks later
                        Residual abdominal mass found on CT
                        RPLND 6/8/07
                        Cancer in pathology-
                        80% mature teratoma, 20% Yolk Sac. --
                        No adjuvent chemo and
                        AFP normalised

                        July 22, 2010 ---- 3 years all clear!

                        Comment


                        • #27
                          That's great news, Tammy!! I'm sure that stubborn little bugger will level off or drop further.

                          Glad to hear he's back to monthlies.
                          Rob and Stacy
                          DX: 3/10/05, AFP: 15,047, L I/O: 3/28/05, Yolk sac tumor & teratoma, Stage IIIC, 3xBEP & 1xEP: 4/4/07 - 6/25/07, AFP: 14, RPLND 8/10/07, w. left kidney removed. 10/19/07, AFP: 1.9

                          Comment


                          • #28
                            That's really good news, Tammy. Having the encouragement of Dr. Einhorn must help alleviate any concerns. Best to you and Anthony,
                            "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
                            11.22.06 -Dx the day before Thanksgiving
                            12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

                            Comment


                            • #29
                              Wonderful news, Tammy!!!!
                              Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

                              Comment


                              • #30
                                What a relief for you!!! Already it is time for Russell to have chest film and tumor markers. I had someone at work come to me and let me know that I have been a bit grouchy. I can't say I was particularly nice back at that reply. It is horrible stress!!! Take care, Sharon
                                Click here to support my LIVESTRONG Challenge with Team LOVEstrong.

                                Comment

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