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  • #31
    Thanks everyone ... Fed, yes I felt more relaxed when Dr. Einhorn said to go back to monthly tests.

    Sharon, I sure do understand. I notice that I start feeling kind of sick to my stomach when it's time to get test results, and I'm moody. It's hard to just feel normal .. it's like a dark cloud hanging overhead all the time, never knowing what to expect next. I pray that Russell's scans and markers come back 100% clean. Let us know, please.

    Also, I see questions about how often to do CT scans, and there seems to be different opinions not only depending on the type and extent of cancer, but just from one doctor to another in an individual case.

    Anthonys RPLND surgeon said CT's every 2 or 3 months.

    His oncologist said every 3, but then the date he was going to set him up for would have been 4 months post RPLND.

    I asked Dr. Einhorn and he said .. every 4 months for the first 2 years .. and then years 3 - 5 every six months.

    Im not sure if it's different because Anthony had a relapse, or partial response to chemo, compared to someone that has complete response.

    Son Anthony DX 12/11/06
    L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
    4XEP 1/29-4/6/ 07
    AFP started increasing3 wks later
    Residual abdominal mass found on CT
    RPLND 6/8/07
    Cancer in pathology-
    80% mature teratoma, 20% Yolk Sac. --
    No adjuvent chemo and
    AFP normalised

    July 22, 2010 ---- 3 years all clear!

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    • #32
      I am happy the markers are stable!
      Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
      Current DVT
      Current testosterone replacement therapy, Testim.

      "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

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