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  • #1

    Another Random Update

    Hello everyone,

    Well it's been an interesting week. Just finished talking with my doctor and have no overall good news, but I am starting a new treatment. On the downside my bHCG count is now an amazing 116,000. As for the new treatment, i'll be starting oral etoposide today with my crazy idea of getting radiation started on my lungs to get rid of clusters of tumors since my body can handle a lot and heals very quickly still (anything that stays away from my bone marrow is good!). It will be interesting to see what the radiologist think of my ideas. Well i'll try to keep everyone up to date.

    On another side, my doctor said it would be a good idea to contact Dr. Einhorn in Indiana for ideas especially access to new trails for germ cell cancer. If anyone has the best phone number to contact him or his secretary please PM it to me!

    Thanks, and have a good long weekend!
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  • #2
    NS8000 how old are you since you are taking everything well? How are you feeling? Have you had a stem cell transplant or discussed it?????
    Diagnosed August 2005
    R/O August 2005 AFP 210

    4xEP beginning December 2005
    End Feb/March 2006 AFP 4.6
    April 2006 AFP 22 and rising

    Tandem Stem Cell Transplant 7/06 - 9/06
    December 07 AFP = 3.3
    December 07 CT = Clear!

    15+ months remission

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    • #3
      Originally posted by NS8000
      On another side, my doctor said it would be a good idea to contact Dr. Einhorn in Indiana for ideas especially access to new trails for germ cell cancer. If anyone has the best phone number to contact him or his secretary please PM it to me!
      Without question! You'll find the contact information at this link.
      Scott
      right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

      Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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      • #4
        NS8000, I wish you all the best in your new treatment.
        Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
        Current DVT
        Current testosterone replacement therapy, Testim.

        "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

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        • #5
          Thinking only the best for you!!! I keep reminding myself that to be this tired, I must be doing something worthwhile. You are paving a path. It is always the most difficult for the first person, but others will follow you and be thank-ful for your work!! Picturing you well, Sharon
          Click here to support my LIVESTRONG Challenge with Team LOVEstrong.

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          • #6
            Niki,
            Missed this post somehow but have been thinking about you and hoping you are doing OK. Definately contact Einhorn. Keep strong!!!
            Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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            • #7
              Just checking in to see how you're doing and if you got in touch with Einhorn.
              Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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