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  • hi everyone!!!

    i think i have found the right place
    (i am not native)

    diagnosed 27/07/07 markers were: 210 AFP/ 240 Bhcg
    right I/O 30/07/07
    path:%40 EC / %30 YS / %20 sem / %10 immtr tera.
    no lymphatic invasion- no vascular inv- limited to test.
    doctor prefered to choose 'surveillance'
    22/08/2007 mark: bhcg normal / 13 afp

    the day after tomorrow i will get another blood test! it will be nearly one month
    and i should be clear of afp (i hope with all my heart)

    what is the possibility of treatment without chemo or rplnd!



    yes! you can!!!!!!
    Last edited by TC Destroyer; 06-28-11, 10:28 AM. Reason: Spam
    -------------------------------------------------------------------------
    27/07/07 diagnosed
    30/07/07 Right I/O
    path: 5.00 cm mass with EC %40 / Imm. ter. %30 / semin %20 / YS %10
    no vaslucar inv./ no lymphatic inv/no metastis
    Stage I-A
    surveillance
    24/10/07 CT showed 2 enlarged nodes
    Stage II-B
    markers:
    27/07/07 B-hcg:202 /AFP:260
    13/08/07 B-hcg:0.306 /AFP:32/ LHD:293
    20/08/07 AFP:13.25
    05/09/07 AFP:3.7
    05/10/07 AFP:2.7 B-hcg:6.01
    30/10/07 AFP:6.0 B-hcg:17

  • #2
    Welcome, Sercan, I'm glad you found us. It sounds as though surveillance is working out for you so far: your AFP is dropping just as expected, by half every 5-7 days. About 70% of men with stage I non-seminoma are cured by the orchiectomy alone, so your odds are pretty good. Obviously, it's critical to make every appointment, so if you should have a recurrence, you catch it early.
    Scott, [email protected]
    right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


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    • #3
      Sercan:
      Turkey? I think your the first from there, welcome. From what you know so far surveillance seems like a good option. If your markers contine to drop and you have no signs of spread you have a really great chance that you're already cured. That would be great. Please keep us posted on the results of your follow-ups and make sure you don't miss any appointments.
      Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

      Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

      Comment


      • #4
        Welcome Sercan. Actually, you're our second from Turkey...."karyaleylant" is another member (I remember this because his post title was "TC from Turkey" and I thought it was implicating the food as a cause! You sound like you 're on the right path.
        Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

        Comment


        • #5
          Aydından selamlar..

          Sercan selamlar ... Bizde Türkçe bir site kurabilseydik harika olurdu. Tüm batın tomografisi çekildi mi ?

          Comment


          • #6
            good news!!!!

            i have just checked my blood mark!!

            05/09/07-----> AFP 3.7 (max 7)

            i want to hug every one of you!!!!

            i can surely sense that this week will be the week of good news for everybody!!! wait and see!
            ]
            Last edited by TC Destroyer; 06-28-11, 10:29 AM. Reason: spam
            -------------------------------------------------------------------------
            27/07/07 diagnosed
            30/07/07 Right I/O
            path: 5.00 cm mass with EC %40 / Imm. ter. %30 / semin %20 / YS %10
            no vaslucar inv./ no lymphatic inv/no metastis
            Stage I-A
            surveillance
            24/10/07 CT showed 2 enlarged nodes
            Stage II-B
            markers:
            27/07/07 B-hcg:202 /AFP:260
            13/08/07 B-hcg:0.306 /AFP:32/ LHD:293
            20/08/07 AFP:13.25
            05/09/07 AFP:3.7
            05/10/07 AFP:2.7 B-hcg:6.01
            30/10/07 AFP:6.0 B-hcg:17

            Comment


            • #7
              Wonderful news!!!!!
              Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

              Comment


              • #8
                Hooray! Great news about your markers!
                Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
                Current DVT
                Current testosterone replacement therapy, Testim.

                "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

                Comment


                • #9
                  Fantastic news about your AFP! Good for you!!!
                  Rob and Stacy
                  DX: 3/10/05, AFP: 15,047, L I/O: 3/28/05, Yolk sac tumor & teratoma, Stage IIIC, 3xBEP & 1xEP: 4/4/07 - 6/25/07, AFP: 14, RPLND 8/10/07, w. left kidney removed. 10/19/07, AFP: 1.9

                  Comment


                  • #10
                    i want to get your ideas about sometihng which confuses me much!


                    end of this april, my right test. swollen and shrank it lasted one day. then came back to normal, so i didnt think it was an extraordinary condition. then in may or june my nipples began to hurt abit and in july it swoolen and didnt not back to normal, so went to doctor in july and diagnosed. the problem is about 3 months passed before first sign! but i am I-A in stage. it sounds too good to believe.

                    what you think about it?
                    Last edited by TC Destroyer; 06-28-11, 10:29 AM. Reason: spam
                    -------------------------------------------------------------------------
                    27/07/07 diagnosed
                    30/07/07 Right I/O
                    path: 5.00 cm mass with EC %40 / Imm. ter. %30 / semin %20 / YS %10
                    no vaslucar inv./ no lymphatic inv/no metastis
                    Stage I-A
                    surveillance
                    24/10/07 CT showed 2 enlarged nodes
                    Stage II-B
                    markers:
                    27/07/07 B-hcg:202 /AFP:260
                    13/08/07 B-hcg:0.306 /AFP:32/ LHD:293
                    20/08/07 AFP:13.25
                    05/09/07 AFP:3.7
                    05/10/07 AFP:2.7 B-hcg:6.01
                    30/10/07 AFP:6.0 B-hcg:17

                    Comment


                    • #11
                      The sore nipples are from the elevated b-HCG. You are posting only your AFP numbers but I am assuming you are also having B-HCG and LDH checked? Your markers are normal 3 months out, your scans were clear, no sign of spread....very good news. Are you having any problems now?
                      Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

                      Comment


                      • #12
                        tomorrow i will go to hospital to show my marker to doc.
                        He just requested afp for now neither B-hcg nor LHD. but i will talk to him about that.
                        Last edited by TC Destroyer; 06-28-11, 10:29 AM. Reason: spam
                        -------------------------------------------------------------------------
                        27/07/07 diagnosed
                        30/07/07 Right I/O
                        path: 5.00 cm mass with EC %40 / Imm. ter. %30 / semin %20 / YS %10
                        no vaslucar inv./ no lymphatic inv/no metastis
                        Stage I-A
                        surveillance
                        24/10/07 CT showed 2 enlarged nodes
                        Stage II-B
                        markers:
                        27/07/07 B-hcg:202 /AFP:260
                        13/08/07 B-hcg:0.306 /AFP:32/ LHD:293
                        20/08/07 AFP:13.25
                        05/09/07 AFP:3.7
                        05/10/07 AFP:2.7 B-hcg:6.01
                        30/10/07 AFP:6.0 B-hcg:17

                        Comment


                        • #13
                          Sercan,
                          You absolutely must have B-HCG checked...espicially since your B-HCG was quite elevated before surgery. An elevation in B-HCG or AFP in your case would signal a possible recurrance. Please make sure all three markers are checked while on surveillance. Let us know how it goes tomorrow.
                          Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

                          Comment


                          • #14
                            doc day

                            i have showed my AFP this morning to my doc. he said he had been expecting this afp level. and he gave me another appointment, one month later but this time he asks for B-hcg besides AFP. i asked why he hadn't asked for B-hcg last time. he said it isnt possible to rise of a marker while the other is falling, so if my afp had't come to normal limits he would have thought something was wrong.
                            that's all for now. i will wait and see
                            Last edited by TC Destroyer; 06-28-11, 10:30 AM. Reason: spam
                            -------------------------------------------------------------------------
                            27/07/07 diagnosed
                            30/07/07 Right I/O
                            path: 5.00 cm mass with EC %40 / Imm. ter. %30 / semin %20 / YS %10
                            no vaslucar inv./ no lymphatic inv/no metastis
                            Stage I-A
                            surveillance
                            24/10/07 CT showed 2 enlarged nodes
                            Stage II-B
                            markers:
                            27/07/07 B-hcg:202 /AFP:260
                            13/08/07 B-hcg:0.306 /AFP:32/ LHD:293
                            20/08/07 AFP:13.25
                            05/09/07 AFP:3.7
                            05/10/07 AFP:2.7 B-hcg:6.01
                            30/10/07 AFP:6.0 B-hcg:17

                            Comment


                            • #15
                              I don't follow that logic. You should have bHCG checked, as well.
                              Scott, [email protected]
                              right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


                              Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

                              Comment

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