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the soonest appt Dr. Sheinfeld gave us was sept. 27th!
thats so long from now, hopefully we can get something sooner. but yes the RPLND is next, along with the other surgeries.
what do you mean you slept in a holiday inn express last night? everything ok margaret?
My first joke here...I guess it was a dud!
So glad to hear that he is going to get the RPLND
Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
Current DVT
Current testosterone replacement therapy, Testim.
"You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum
OH AHAHAHA, SORRY, IM KINDA SLOW WHEN IT COMES TO JOKES, I WILL KEEP EVERYONE UPDATED WHEN WE HEAR SURGERY DATE
LOVE AND HUGS TO YOU ALL!~!
DAWN
Fiance Brian, dx:stage IIIC non-sem 4/18/07
mets to lungs,liver,abdomin,large tumor near kidney
hcg was 176,000!
completed 1 rnd of TIP(had bad reaction to taxol)
BEPx3 until 7/13/07
7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
AFP & HCG normal
12/7/07 RPLND,right orchiectomy @ MSKCC
12/18/07, rcvd pathology,all clear! no cancer! 2/11/08 -Lung surgery dne @ MSKCC ALL CLEAR
Margaret - I thought that was SO funny!! I was laughing, maybe we just have similar humor.
DAWN!!! So much relief and congratulations to you both. Yeah, Sheinfeld is a busy guy but its really only three weeks away and it will be here before you know it.
In the meantime, we will drill this into your head: DO NOT let Brian eat too soon after RPLND surgery... low fat for three days before the surgery, FAT FREE in the hospital and for two weeks after. Very important.
Rob and Stacy
DX: 3/10/05, AFP: 15,047, L I/O: 3/28/05, Yolk sac tumor & teratoma, Stage IIIC, 3xBEP & 1xEP: 4/4/07 - 6/25/07, AFP: 14, RPLND 8/10/07, w. left kidney removed. 10/19/07, AFP: 1.9
Margaret - I thought that was SO funny!! I was laughing, maybe we just have similar humor.
DAWN!!! So much relief and congratulations to you both. Yeah, Sheinfeld is a busy guy but its really only three weeks away and it will be here before you know it.
In the meantime, we will drill this into your head: DO NOT let Brian eat too soon after RPLND surgery... low fat for three days before the surgery, FAT FREE in the hospital and for two weeks after. Very important.
thank you Stacy - we will definatly remember that. his mom keep stressing to him the fat free diet. Brian is VERY stubborn though. how is Rob doing? i read on one of your posts, that he went into renal failure?!! that is scary because Brian also has to have a kidney removed. what happened?
Dawn
Fiance Brian, dx:stage IIIC non-sem 4/18/07
mets to lungs,liver,abdomin,large tumor near kidney
hcg was 176,000!
completed 1 rnd of TIP(had bad reaction to taxol)
BEPx3 until 7/13/07
7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
AFP & HCG normal
12/7/07 RPLND,right orchiectomy @ MSKCC
12/18/07, rcvd pathology,all clear! no cancer! 2/11/08 -Lung surgery dne @ MSKCC ALL CLEAR
Don't worry about him eating too soon. Dr. S is his doctor and I promise you he will NOT let him eat or drink before he feels it is safe. In fact, I think he waits a little longer than needed...but better to be safe than sorry. The low fat drill will be more critical once he returns home from the hospital. No fat for about 10 days and then introduce fats slowly into his diet. Some lean chicken and some rice. Don't feed him a steak dinner as a reward on his 10th day or anything . We will help you through it. It is not as taxing as it sounds.
Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
Current DVT
Current testosterone replacement therapy, Testim.
"You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum
Don't worry about the renal failure with Brian. Rob had a set of things that led up to it. The fluid wouldn't drain from his body, and his WBC was up, so they thought there was an infection somewhere - but there was no fever - so they did a CT scan to look for an issue. The contrast dye from the CT was too taxing on his remaining kidney, and his creatinine level shot up, which is bad. (Creat. level should be 1.2-1.6 and Rob's was 6. something)
Usually with a CT scan you have to drink water to flush the dye out of the kidney, but Rob had so much fluid in his body that they couldn't allow that. So it was a culmination of a bunch of things, but the fluid released finally and his kidney is now fine.
And Margaret is right, Sheinfeld won't let Brian eat or drink anything for a few days at least after surgery. Just do what he says.
Rob and Stacy
DX: 3/10/05, AFP: 15,047, L I/O: 3/28/05, Yolk sac tumor & teratoma, Stage IIIC, 3xBEP & 1xEP: 4/4/07 - 6/25/07, AFP: 14, RPLND 8/10/07, w. left kidney removed. 10/19/07, AFP: 1.9
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