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Happy and concerned!

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  • Happy and concerned!

    Well, Rob went to Sloan yesterday to see the pulmonologist and oncologist.

    Dr. Motzer came in with the pathology. Rob's tumor, we finally know, was yolk sac tumor and teratoma. 58 lymph nodes removed, all were clear!! Very happy. Didn't do bloodwork this week, so the AFP as far as we know is still 4.1. Rob is cancer free.

    HOWEVER... since there was a small dot of active cancer in the necrotic tissue of the teratoma, protocol would have them giving Rob two more rounds of prophylactic chemo... but with his kidney problems, and how weak he still is from surgery, they will only put him on surveillance. They said the risk of his good kidney failing is greater than his risk of getting cancer again. But yet they weren't happy about moving on to surveillance. I wasn't at the visit, and I am curious - is there an alternative chemo? Something not so hard on the kidneys? From what I've read, platinum is the magic bullet for TC.

    Its frightening to think that you go to one of the best cancer hospitals in the world, see one of the top TC docs at the hospital, and he says, well, you could have a recurrence with additional chemo, a recurrence without it, or you'll never get it again. There's no way to know.

    We refuse to be upset about it. The news is that Rob is cancer free, and that's what we're celebrating.
    Rob and Stacy
    DX: 3/10/05, AFP: 15,047, L I/O: 3/28/05, Yolk sac tumor & teratoma, Stage IIIC, 3xBEP & 1xEP: 4/4/07 - 6/25/07, AFP: 14, RPLND 8/10/07, w. left kidney removed. 10/19/07, AFP: 1.9

  • #2
    Originally posted by sldl1106
    We refuse to be upset about it. The news is that Rob is cancer free, and that's what we're celebrating.
    Amen, sister! Congrats on the clear nodes! So what is the surveillance schedule he'll be on?
    Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.


    • #3
      Great attitude, move forward, think positive.
      Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
      Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma


      • #4
        I can understand your mixed feelings, I am certain I would feel the same way. Let him heal, they will keep an eye on things and I think choosing to focus on the cancer free a wonderful idea.

        Proud of you!
        Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
        Current DVT
        Current testosterone replacement therapy, Testim.

        "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum


        • #5
          Stacy This Is Great!!!! Way To Go You Guys!!
          Try Not To Focus On The What If's. Focus On Getting Him Strong And Celebrating Being Cancer Free!! Soooo Happy For You Guys!

          Lots Of Hugs!!
          Fiance Brian, dx:stage IIIC non-sem 4/18/07
          mets to lungs,liver,abdomin,large tumor near kidney
          hcg was 176,000!
          completed 1 rnd of TIP(had bad reaction to taxol)
          BEPx3 until 7/13/07
          7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
          10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
          AFP & HCG normal
          12/7/07 RPLND,right orchiectomy @ MSKCC
          12/18/07, rcvd pathology,all clear! no cancer!
          2/11/08 -Lung surgery dne @ MSKCC
          ALL CLEAR


          • #6

            It probably is best to rest the kidney for now. I wouldn't worry too much, you both deserve a chance to relax and enjoy.
            Right I/O 4/22/1988
            RPLND 6/20/1988
            Left I/O 9/17/2003

            Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.


            • #7
              Gotta love your attitude. It's exemplary . My best to you and Rob,
              "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
              11.22.06 -Dx the day before Thanksgiving
              12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.


              • #8
                Originally posted by sldl1106
                The news is that Rob is cancer free, and that's what we're celebrating.
                I'll raise a glass to that! Congratulations, Rob and Stacy!
                right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

                Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!


                • #9
                  This will never change but you will learn to deal with it.
                  you could have a recurrence with additional chemo, a recurrence without it, or you'll never get it again
                  Celebrate your victories.
                  Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                  Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.


                  • #10
                    Thanks for sharing! The mixed emotions are something else aren't they? Here's to a quick recovery and happy days ahead! Sharon
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