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just when i thought everything was going good....

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  • #16
    Dawn, I just read through the thread. I'm sorry for what you are having to feel right now. I know I would be feeling the exact same way.
    After reading what everyone has wrote, it seems that they are all right. It probably isn't anything to worry about to much. I know that's easier said than done. Steve and I have seemed to be following in yours and Brians footsteps and when I read your first post in this thread my stomach turned. But everyone's responses made me feel better.
    Keep strong!


    • #17
      Dawn -

      This happened to Rob also, the post is floating around here somewhere. It was around 12 or something, then went up a point-and-a-bit and I just freaked out. Everyone calmed me down, and the next labs showed another decrease of several points. I remember crying after talking to Mary Ann; she was happy that it had gone down also!

      Margaret described it to me as this: bucketful of water with, say, blueberries floating in it. One time you dip your hand in, you come up with 15. Next time, 9. Next time, maybe 11. It just fluctuates sometimes, and that's normal.

      Try to not give too much focus to it, (if you can) and wait for the next test.
      Rob and Stacy
      DX: 3/10/05, AFP: 15,047, L I/O: 3/28/05, Yolk sac tumor & teratoma, Stage IIIC, 3xBEP & 1xEP: 4/4/07 - 6/25/07, AFP: 14, RPLND 8/10/07, w. left kidney removed. 10/19/07, AFP: 1.9


      • #18
        Thank You Everyone..

        thanks for the boosts.. but, its just soooooo scary because, they have never gone up before this past test and hes almost 2 months post chemo, im just afraid the cancer is coming back, it only went up .4, but to me its alot because its never gone up. what if the chemo is wearing off? im freaking!

        Fiance Brian, dx:stage IIIC non-sem 4/18/07
        mets to lungs,liver,abdomin,large tumor near kidney
        hcg was 176,000!
        completed 1 rnd of TIP(had bad reaction to taxol)
        BEPx3 until 7/13/07
        7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
        10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
        AFP & HCG normal
        12/7/07 RPLND,right orchiectomy @ MSKCC
        12/18/07, rcvd pathology,all clear! no cancer!
        2/11/08 -Lung surgery dne @ MSKCC
        ALL CLEAR


        • #19
          Hang on Dawn! It seems just as we get our feet on the ground it starts to quake again. Notice that I live in Californina. With Russell it was the Bleo Tox. I think that it was occurring during chemo and they just kept passing me off as a worried mother. It is frightening and it seems like no one can really hear you!!! Reading through the posts however, it looks like Brian is in the right hands...they are looking and hearing. Just like Russell needed a Mom, Brian needs your happy and healthy reflections!!....his girlfriend. No one else can be that, if he doesn't have you there, he won't get that sweetness at all! Keep the balance!!! Livestrong, Sharon
          Click here to support my LIVESTRONG Challenge with Team LOVEstrong.


          • #20
            hi dawn -

            it is scary how much these markers can control you...bhcg drove me nuts...

            you want this to be a perfect science, black & enough from even the experts, and you find anything over zero is elevated, then you read under 2 is fine...and some say under 5 is fine....

            other sites say bhcg should never be elevated in males, ever....and then, I have an email from dr. einhorn saying there are some males that have elevated hcg and have no cancer and never will have it....he once wrote me and said if hcg was under 10 and there were no other signs of cancer on xrays or CT scans, he would never start chemo....

            a good friend who works in a lab and conducts these tests reinforced what fed said...namely the reliability (from one test to the next) is not perfect and there is a margin of error...

            In the end, I suppose this is what living as cancer patient on surveillance is about....the ups/downs etc....

            I wish there was something I could say to relieve the anxiety...but there isn't really, beyond reinforcing this is a tiny jump, that many have gone thru, and all turns out day at a time...

            - lump first noticed 11/20/2005
            - I/O right Dec 8, 2005
            - 95% embryonal / 5% seminoma
            - normal markers PRE surgery
            - no vascular invasion, tunica free of cancer, epididymis free of cancer, lungs free, lymph free
            - Stage I diagnosis
            - surveillance
            - mid feb '06, beta hcg slightly elevated = 4.6...small enlarged lower node seen on CT scan...
            - 3BEP began feb 20, 2006
            - finished 3 BEP, last bleo, april 17, 2006
            - CT scan, blood markers, chest..all clear
            - back on surveillance


            • #21
              It was Jason's HCG that kept elevating. It never got above 5 and then all on it own it began to drop.
              Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

              Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.