Biopsy Results - Help Needed

[David1969]

Thanks everybody for the help and advice it has ben much appreciated. I have been very lucky so far, with an appointment set-up for Dana-Farber next week and also the offer of help from Dr. Einhorn in Indy. I can't believe how helpful these guys have been. I will keep you all posted as to what treatment I plan to undertake.

[Kev332]

David,

Sorry about this news, hang in there buddy. By the way, I live in S. Windsor CT! Not too far from you at all, so if you need anything, please let me know.

-Kevin

[Mom]

David, the first step is finding out what the path is, the next step should be left up to the EXPERTS. The fact that your markers are normal is very encouraging. Was there any seminoma in your original path report? I am from Farmington and Jay was treated at UCONN Med Center 27 years ago. Perhaps they could administer your chemo following Sloan, IU or DF's protocol. I would ask if you could have it in-patient. I know you are being bombarded with advice from us but I think we all agree that you need to get a handle on this asap and we are all here to help. Dianne

[NavyHoldi99]

David -

Sorry to hear the news...I was there back in May. I went through 2 rounds of VIP this summer and it was inpatient. Truthfully...I don't know how I could have done it outpatient because the ifosfomide was dripped 24 hours a day for the entire week Monday through Saturday. Maybe there is a workaround for that, though.

I hope your appointment goes well tomorrow...keep us posted!

[TCLEFT]

David,
Sorry I'm late. I blew out the statistics not too long ago. Had Seminoma, a left i/o hence the handle, radiation. 2 to 3 % it coming back. Yup, 2 years later, in my mediastinal lymph nodes, liver, and pancreas. Went through 3 EP. I'm thinking all done. Nope 6 months later, back in the same places. Went through TIP out-patient (driving is not an option), finished in April, still All Clear. 9 out of 7 people have problems with statistics anyway. Forge ahead Bro and beat this SOB. We're here when you need us.
Mark

[Karen]

David,
You are not a number or a statistic...don't give that a second thought. Focus on getting the best opinion...or two...from an expert...and moving forwrd with the mondset that you will be victorious over this..and you can be. If you don't have faith in your oncologist you must get one you do have faith in. We're here for whatever you need, whenever you need it.

[David1969]

Thank you everyone for your encouragement and advice, I will keep you all updated on my progess.

[dadmo]

David:
Both TIP and VIP can be given on an outpatient basis but don't try driving yourself to or from the appointment.

[MRMRSU]

Ignore the negative 50% and concentrate on the positive 50%.

Great advice, Jay! Hi David - Sorry to hear about the recurrence, but as Jay said, see the glass half-full rather than half-empty. Hope and optimism are much better friends for the spirit. Best wishes...and I know you'll find the answers you seek.

[Jay68442]

Hi David,
I'm truly sorry to hear that the cancer has returned. I don't know the most recent protocols as I was diagnosed almost 20 years ago. I did have a similar situation to yours. I was diagnosed stage II. Almost a year after finishing treatment (3xBEP) the cancer returned. I was given the same odds as you, 50%. I underwent a RPLND, high-dose chemo and a bone marrow transplant. And here I am almost 20 years later. Ignore the negative 50% and concentrate on the positive 50%.
Stay strong and positive.
Jason

[Savin16]

I just wanted to say I am so sorry to hear about this. But you are headed in the right direction with getting inputs from Dana F. or Sloan or both. I'm sure you will beat this damn thing once and for all.

[Fed]

I'm glad you were able to get the advice you needed. I don't know whether VIP or TIP are given inpatient, but others here have done that protocol so they should be able to chime in.

[David1969]

I have just communicated with one of the experts at Dana Farbar and they are suggesting, subject to the path results, 4 rounds of either VIP or TIP Salavage chemo. Does anybody knw if this can be given on an outpatient basis or is it usually an inpatient regimen?

[Fed]

Gotcha. I sent you a PM with some pointers. I'm sure you will know by Monday exactly what was found -you'll certainly need that data. Let me know if there are any other ways I can help.

[David1969]

Fed,

Thanks for the help. I don't know the details of what was found in the biopsy yet as I was driving home when I got the call. They were hoping to find teratoma, however, since the urologist has described finding "more cancer cells" and because he feels I need more chemo and not another operation I have assumed it is not teratoma which has been found.