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  • PET/CT this week

    My husbands PET/CT is this week. I am starting petitioning for prayers and positive thoughts early. I have spent as much time as I could these past two months thinking as many positive thoughts as I can.

    The PET/CT is on Friday and I am already getting that ever so common sinking feeling.

    I kept myself from worrying over it as much as I could, but that all seems to fly out the door the closer to the test you get. You all know that very well though.

    I wish results were instant!

    He has blood work as well...but as it is always normal....that never seems to matter!

    The follow up appointment isn't until the following Friday We do usually get called with the results prior to that.

    Off to take a few more deep, relaxing breaths!

    Becki

    Husband Right I/O 09/06
    -70% Embryonal Carcinoma
    -20% Teratoma
    -10% Yolk Sac Tumor
    11/06- lymph nodes 1.8x1.4 and 1.9x1.4
    12/06-PET Scan confirms activity in lymph nodes, lymph nodes 2.2x2.2 and 2.4x2.3
    1/07-Start 3xBEP
    4/07-PET clear, lymph nodes down to 1.1x0.5 and 1.8x1.0
    6/07-lymph nodes 1.2x1.0 and 1.9x.9
    8/07-lymph nodes 1.1x1.0 and 2.0x1.2
    10/07-lymph nodes 2.0x1.5 and 2.7x1.8
    11/07- PostChemo LRPLND-found burnt out teratoma
    11/09-Enlarging lymph node 1.2 cm near renal veins

  • #2
    Hi Becki, boy do I know this feeling. There is no good way to wait it out, because the waiting always stinks...but I will focus on the finish line and keep checking for the "all clear" post from you! I know it is coming.
    Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
    Current DVT
    Current testosterone replacement therapy, Testim.

    "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

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    • #3
      Me too! Russell's tests were just completed. Even after the tests come back ok, it is like there is a rebound effect. I am kind of depleted and grumpy mixed with relief. Very odd combinations. Because of the Bleomycin Toxicity, every little cold that happens along gets me concerned. But...the reality is that Russell is happy in school, feeling strong and has his best foot forward! Take care, Sharon
      Last edited by Russell's Mom; 10-02-07, 12:55 AM.
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      • #4
        Originally posted by mercyriver
        My husbands PET/CT is this week. I am starting petitioning for prayers and positive thoughts early.
        Sending mine your way. I know the feeling....waiting sucks...but oh, how good that "all clear" will sound! Hang in there Becki!
        Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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        • #5
          Originally posted by mercyriver
          My husbands PET/CT is this week. I am starting petitioning for prayers and positive thoughts early.
          Lots of 'em coming your way!
          Scott, [email protected]
          right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


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          • #6
            We all need good vibes this week (it's also my surveillance week ). Best of luck to your husband!
            "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
            11.22.06 -Dx the day before Thanksgiving
            12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

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            • #7
              Becki and Fed:

              Sending lots of good thoughts and prayers to you both.
              Fish
              TC1
              Right I/O 4/22/1988
              RPLND 6/20/1988
              TC2
              Left I/O 9/17/2003
              Surveillance

              Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.

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              • #8
                Today's positive karma is comming your way.
                Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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                • #9
                  Post us a few "all clears" Fed and Becki!! Good thought with you both!
                  Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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                  • #10
                    Becki and Fed, I think there is going to be a lot of hits on this forum waiting to hear your news. I know it is nerve-racking and I am a fine one to say "you shouldn't worry over things you can't control" but hang in there. Staying positive helps, it makes that squirrelly feeling in your stomach go away for a few minutes. Dianne
                    Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
                    Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

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                    • #11
                      Thinking of you both.
                      Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
                      Current DVT
                      Current testosterone replacement therapy, Testim.

                      "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

                      Comment


                      • #12
                        Warm and fuzzy prayers to you both!!!!!
                        "Faith is being sure of what we hope for and certain of what we do not see". Heb 11:1

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                        • #13
                          Becki and Fed:
                          Can't wait to hear those two words from you two. I'm up later this Month (Ya-freakin-hoo). Just have to sure up the date. All my, well everything, to you two.
                          Much Love,
                          Mark
                          I Love My Pack!

                          sigpic

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                          • #14
                            Positive thoughts coming from VT!
                            Lori and Jon
                            Diagnosed 5/22/2006
                            I/O 5/26/2006, Stage 3, Good
                            Teratoma (Majority), Seminoma (10%), Yolk Sac
                            3xEP then determined not working
                            HDC w/stem cell transplant 8/16/06 to 9/25/06
                            Chest and Neck surgery 10/9/06 - immature teratoma
                            RPLND 11/16/06 - immature Teratoma
                            2/29/2008 - markers continue to be normal!
                            9/16/2008 - released from Dr. Einhorn's care

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                            • #15
                              Hang in there Becki!!!! Positive Karma with you until you get the "all clear"!
                              Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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