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I have an appointment set up with Dr. Sheinseld November 8th. Does anyone know about him? The Sloan Kettering cancer institute in New York set me up with him.
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08/28/07: Diagnosed Stage 1A nonseminoma (65% teratoma (mature and immature), 10% embyonal carcinoma, 25% yolk sac); AFP: 120 ng/ml HCG: 6.8 IU/L
09/05/07: Right I/O; Clean CT
09/13/07: AFP: 41 ng/ml HCG: 0.5 IU/L
09/26/07: AFP: 12 ng/ml HCG: <2
10/22/07: AFP: 2.2 ng/ml HCG: <2
Surveillance All Clears: 11/09/07; 04/20/08; -
Yes, he is among the top 3 urologist in TC in the US! You're in great hands! He is from Venezuela, by the way, my same country!
Best of luck! -
Joel Sheinfeld is arguably the master of urological surgery. You will be in great hands."Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
11.22.06 -Dx the day before Thanksgiving
12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.
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oh
who are the other 2?
I am setting up appointment with Dr. Foster in Indiana.
Orchiectomy 2007/7/11
BEP x4 7/31/2007 to 10/15/2007
RPLND 12/11/2007Comment
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From what I have read here, Foster is also top notch. I believe he has treated other Forum members."Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
11.22.06 -Dx the day before Thanksgiving
12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.
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Lots of members have sat in that waiting room at Sloan. It's a very humbling experience to sit there with so many young guys swapping RPLND and chemo stories. You will definately not feel alone. Let us know how it goes!Last edited by Karen; 10-09-07, 08:53 PM.Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.
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Dr.S is the best but don't expect a warm and fuzzy bedside manner, he is very no-nonsense, but one of the best in the worldCo-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
Current DVT
Current testosterone replacement therapy, Testim.
"You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forumComment
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Don't expect any idle chit chat. He's all business but he's a master at what he does. Are you expecting him to do an RPLND?Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.
Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.Comment
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There are many posts on this forum about Dr. Sheinfeld.
He is considered one of the best TC surgeons, probably in the history of medicine. I'm so very happy I went to him for my RPLND, and that was before I knew about this forum.
Your first visit will be quick, don't blink
, and take notes.
Stage III. Embryonal Carcinoma, Mature Teratoma, Choriocarcinoma.
Diagnosed 4/19/06, Right I/O 4/21/06, RPLND 6/21/06, 4xEP, All Clear 1/29/07, RPLND Incisional Hernia Surgery 11/24/08, Hydrocelectomy and Vasectomy 11/23/09.
Please see a physician for medical advice!
My 2013 LiveSTRONG Site
The 2013 Already BaldersComment
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Does anyone watch Curb Your Enthusiasm? Because I swear Sheinfeld looks like Larry David.
Anyway. Physast, I adore him. My husband had many complications with his surgery and Sheinfeld literally did not sleep until he was well. One night there was a two-unit blood transfusion and Sheinfeld called our nurse every hour on the hour to check on my husband. He was in our room constantly until he knew Rob was truly out of the woods.
He is not warm and fuzzy and it took us almost three weeks to get him to laugh.
No one does anything without his express say-so.Rob and Stacy
DX: 3/10/05, AFP: 15,047, L I/O: 3/28/05, Yolk sac tumor & teratoma, Stage IIIC, 3xBEP & 1xEP: 4/4/07 - 6/25/07, AFP: 14, RPLND 8/10/07, w. left kidney removed. 10/19/07, AFP: 1.9Comment
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Great, I am glad that he is liked by people on the forum! Since he is a great surgeon I suspect he might bring up the RPLND surgery, but that is something I do not want to do. I am still waiting on my second opinion from Indianapolis.
I really do not know what to expect, but from what you all have said it will be quick to the point and exactly what he thinks needs to be done.08/28/07: Diagnosed Stage 1A nonseminoma (65% teratoma (mature and immature), 10% embyonal carcinoma, 25% yolk sac); AFP: 120 ng/ml HCG: 6.8 IU/L
09/05/07: Right I/O; Clean CT
09/13/07: AFP: 41 ng/ml HCG: 0.5 IU/L
09/26/07: AFP: 12 ng/ml HCG: <2
10/22/07: AFP: 2.2 ng/ml HCG: <2
Surveillance All Clears: 11/09/07; 04/20/08;Comment
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You should have seen his face when I hugged and kissed him. He ran away from me like the building was on fire. But I think I did get a tiny smileOriginally posted by sldl1106Does anyone watch Curb Your Enthusiasm? Because I swear Sheinfeld looks like Larry David.
Anyway. Physast, I adore him. My husband had many complications with his surgery and Sheinfeld literally did not sleep until he was well. One night there was a two-unit blood transfusion and Sheinfeld called our nurse every hour on the hour to check on my husband. He was in our room constantly until he knew Rob was truly out of the woods.
He is not warm and fuzzy and it took us almost three weeks to get him to laugh.
No one does anything without his express say-so.
Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
Current DVT
Current testosterone replacement therapy, Testim.
"You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forumComment
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Brian is having his RPLND by Dr. sheinfeld in a about a month. like everyone says, hes is not a very chatty, chipper, warm and fuzzy guy!
and the bedside manner is, well, non-existent! BUT! we are aware that he is the BEST!!!!!!!! and thats all that matters!! Brian says, he looks like homie the clown! and yes, i could see how you would think he looks like larry david! ahahaha. thats so true!
best of luck with everything! if you are going to him, you are going to be taken care of very well!Fiance Brian, dx:stage IIIC non-sem 4/18/07
mets to lungs,liver,abdomin,large tumor near kidney
hcg was 176,000!
completed 1 rnd of TIP(had bad reaction to taxol)
BEPx3 until 7/13/07
7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
AFP & HCG normal
12/7/07 RPLND,right orchiectomy @ MSKCC
12/18/07, rcvd pathology,all clear! no cancer!
2/11/08 -Lung surgery dne @ MSKCC
ALL CLEAR Comment
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Here's a picture of Jason and Dr. SheinfeldAttached FilesSon Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.
Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.Comment
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My husband had is RPLND from Dr. Foster at IU. Dr. Foster also was a part of his chest/neck surgery. We absolutely believe Dr. Foster is the best there is. He's done over 1400 of these (in the week we were there he did 5 in that week). The hospital itself is top notch, the nurses are wonderful and the city is great. We went for a second opinion at Sloan prior to getting a third opinion at IU and we were not received well at Sloan. But there are many, many people here who've been treated at Sloan with great experiences. I think you will be in amazing hands wherever you go. Good Luck.Lori and Jon
Diagnosed 5/22/2006
I/O 5/26/2006, Stage 3, Good
Teratoma (Majority), Seminoma (10%), Yolk Sac
3xEP then determined not working
HDC w/stem cell transplant 8/16/06 to 9/25/06
Chest and Neck surgery 10/9/06 - immature teratoma
RPLND 11/16/06 - immature Teratoma
2/29/2008 - markers continue to be normal!
9/16/2008 - released from Dr. Einhorn's careComment
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