Tweet
Lori:
When it comes to either Skinner or Sheinfeld I don't think you can go wrong, both men do over 100 RPLND's a year.
When it comes to either Skinner or Sheinfeld I don't think you can go wrong, both men do over 100 RPLND's a year.
-
Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.
Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering. -
Yes, Dr. Sheinfeld is the best.....he did my sons RPLND two years ago...and while he may not have the best bedside manner - to Chris our son, he was wonderful. I drove him crazy and he got used to it the week we were there...but Chris and him had a great understanding....take care..Mary EllenComment
-
So everyone says he is good for the RPLND, but I am not seeking this surgery. And I assume he will try to push this on me if he is an expert.
Is he good for surveillance as well?08/28/07: Diagnosed Stage 1A nonseminoma (65% teratoma (mature and immature), 10% embyonal carcinoma, 25% yolk sac); AFP: 120 ng/ml HCG: 6.8 IU/L
09/05/07: Right I/O; Clean CT
09/13/07: AFP: 41 ng/ml HCG: 0.5 IU/L
09/26/07: AFP: 12 ng/ml HCG: <2
10/22/07: AFP: 2.2 ng/ml HCG: <2
Surveillance All Clears: 11/09/07; 04/20/08;Comment
-
If the lymph nodes are still swollen he will want you to have an RPLND. My big concern for you is that you had 50% teratoma. If the nodes have teratoma in them they really should be removed.Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.
Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.Comment
-
My CT scan did not show any swollen lymph nodes. Actually the CT scan came back all clean (full scan) except for a 7mm nodule on m right liver, but the doctor said that it was probably nothing. I would agree if the lymph nodes were swollen I would be more than willing to have the surgery.
And like you said with the teratoma it's best to get that out because Chemo and radiation do not do so well with teratoma.
I should be getting my second opinion on my path from Indianapolis this week. Maybe even today!08/28/07: Diagnosed Stage 1A nonseminoma (65% teratoma (mature and immature), 10% embyonal carcinoma, 25% yolk sac); AFP: 120 ng/ml HCG: 6.8 IU/L
09/05/07: Right I/O; Clean CT
09/13/07: AFP: 41 ng/ml HCG: 0.5 IU/L
09/26/07: AFP: 12 ng/ml HCG: <2
10/22/07: AFP: 2.2 ng/ml HCG: <2
Surveillance All Clears: 11/09/07; 04/20/08;Comment
-
Not having swellen nodes is great. Make sure you bring copies of everything to Sloan when you visit them.Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.
Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.Comment
-
I just read your PM. I have already been getting everything ready to fax to Sloan. My slides and copies of CT and Ultrasound are on the way to sloan (fed ex).Not having swellen nodes is great. Make sure you bring copies of everything to Sloan when you visit them.
My first 2month follow up scan is scheduled for Nov 16th with DUKE, but I am hoping they will just do it while I am in New York.08/28/07: Diagnosed Stage 1A nonseminoma (65% teratoma (mature and immature), 10% embyonal carcinoma, 25% yolk sac); AFP: 120 ng/ml HCG: 6.8 IU/L
09/05/07: Right I/O; Clean CT
09/13/07: AFP: 41 ng/ml HCG: 0.5 IU/L
09/26/07: AFP: 12 ng/ml HCG: <2
10/22/07: AFP: 2.2 ng/ml HCG: <2
Surveillance All Clears: 11/09/07; 04/20/08;Comment
-
Physast,Originally posted by Physast
I live near Duke, if you ever need a place to stay while you are in town, you will always have a place with us.Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
Current DVT
Current testosterone replacement therapy, Testim.
"You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forumComment
-
just got my second opinion on my path report...
See.. http://www.tc-cancer.com/forum/showthread.php?t=669408/28/07: Diagnosed Stage 1A nonseminoma (65% teratoma (mature and immature), 10% embyonal carcinoma, 25% yolk sac); AFP: 120 ng/ml HCG: 6.8 IU/L
09/05/07: Right I/O; Clean CT
09/13/07: AFP: 41 ng/ml HCG: 0.5 IU/L
09/26/07: AFP: 12 ng/ml HCG: <2
10/22/07: AFP: 2.2 ng/ml HCG: <2
Surveillance All Clears: 11/09/07; 04/20/08;Comment
-
Dr. Sheinfeld is just great. I know he can be sort of matter-of-fact but I always felt like he and I had a special doctor-patient connection. We are both from Scarsdale, NY so he asked me all about what part of the town I live in, etc (his kids went to my high school). I am also on the BYU ski team and compete at a collegiate level - he seemed very interested in that (I think he is a skier) and in reassuring me that I would be totally 100% ready for the ski season, just 4 months post-RPLND. He told me he has performed the RPLND on several professional athletes, including hockey and football players, and they have all gone back to play professionally with no loss of ability. What an incredible man and what a blessing to have him as a doctor, whether he performs the RPLND or not - he and his support staff are all the very best! I owe my future children to his skilled hands!*Diagnosed 2/26/2007 - left testicle - 2.5 cm mass
*Radical Orchiectomy 2/29/2007 - embryonic germ cell tumor
*Initial CT scan revealed one enlarged lymph node at 1.5cmx1.5cm
*Subsequent CT scan 2 weeks later revealed lymph node had doubled to 2.7cmx2.7cm.
*Underwent 4 rounds of Chemotherapy (Cisplatin/Etopiside) from March-June 2007
*CT scan revealed node had shrunk to 0.7cmx0.7cm
*RPLND surgery performed by Dr. Sheinfeld at MSKCC June 27, 2007Comment
Comment