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Sore Skin?

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  • Sore Skin?

    Hi everyone -

    I think Rob may finally be joining us for some of his own questions... who knows, but that's what he's telling me.

    In the meantime - he is having two leftover side effects: his feet are absolutely killing him, and the skin on his legs is so sensitive it hurts to scratch or touch.

    We know the hands and feet seem to worsen 3 to 5 months post chemo, which is exactly where we are right now, but the pain in his feet really impedes him from having to walk around for more than just a little at a time. He's in constant pain. I've read other posts describing similiar feelings with that, so we know its common but not to what extent.

    But anyone experience severe skin sensitivity, localized? His is just on his legs. We're baffled. Unless it is from all the fluid build up, which then released and took away his muscle tone. But I'm just grasping at straws.
    Rob and Stacy
    DX: 3/10/05, AFP: 15,047, L I/O: 3/28/05, Yolk sac tumor & teratoma, Stage IIIC, 3xBEP & 1xEP: 4/4/07 - 6/25/07, AFP: 14, RPLND 8/10/07, w. left kidney removed. 10/19/07, AFP: 1.9

  • #2
    When Brian and I lay in bed and watch tv, his legs are very jumpy, and he says he cant get comfy, then when he gets up to walk, his feet hurt alot and he limps for a bit, until he gets going. and he had mentioned alot that the back of his calves hurt too....
    Fiance Brian, dx:stage IIIC non-sem 4/18/07
    mets to lungs,liver,abdomin,large tumor near kidney
    hcg was 176,000!
    completed 1 rnd of TIP(had bad reaction to taxol)
    BEPx3 until 7/13/07
    7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
    10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
    AFP & HCG normal
    12/7/07 RPLND,right orchiectomy @ MSKCC
    12/18/07, rcvd pathology,all clear! no cancer!
    2/11/08 -Lung surgery dne @ MSKCC


    • #3
      Stacy, have you called the doctor and asked them? I think it is worth a phone call.
      Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
      Current DVT
      Current testosterone replacement therapy, Testim.

      "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum


      • #4
        good morning -

        I am about 16 months or so post chemo...and I would say it took close to 9 months...really one year before my body seemed to settle legs stayed swollen for quite a while post chemo...and facial hair would come in fine, then be spotty, then fine....running or swimming...I'd be ok, then would cramp up...etc...about 2 months post chemo, I developed hard lumps in my nipples....just hormones balancing out...and by 8 months post chemo they were gone....but that one scared me...

        it can get frustrating...but I'd just take the attitide that it'll be a good year until things start settling in and not worry about each little thing...just keep your appointments and you are doing all you can do.

        best wishes,

        - lump first noticed 11/20/2005
        - I/O right Dec 8, 2005
        - 95% embryonal / 5% seminoma
        - normal markers PRE surgery
        - no vascular invasion, tunica free of cancer, epididymis free of cancer, lungs free, lymph free
        - Stage I diagnosis
        - surveillance
        - mid feb '06, beta hcg slightly elevated = 4.6...small enlarged lower node seen on CT scan...
        - 3BEP began feb 20, 2006
        - finished 3 BEP, last bleo, april 17, 2006
        - CT scan, blood markers, chest..all clear
        - back on surveillance


        • #5
          Hi Stacy: Much love to you and Rob and I hope you can find some relief for the current side-effects he's experiencing. Sorry I have no info to offer on this, but wanted to send you my good wishes. I've been meaning to check up on you!
          *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
          *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
          *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance